Tag Archives: Event

MULTI-ACT Event: Does your research impact society responsibly?

On 12 November 2019, the EU-funded MULTI-ACT project – in which EBC is heavily involved – will host its first project-dedicated event in Brussels, Belgium. The project, which began in May 2018, aims to increase the impact of health research on people with brain diseases by creating and implementing a new model allowing for the effective cooperation of all relevant stakeholders.

After one and a half years of work, a number of work packages have completed their work and will have plenty to present on the day. The focus of the event will be the following:

• A new governance criterion allowing effective cooperation of all relevant stakeholders in multi-stakeholder research initiatives and transformative governance;

• Innovative guidelines for effective patient engagement across the health research and innovation path;

• A new tool for the assessment of the research impact across different dimensions including excellence, efficacy, social, economic and patient reported dimension and to better tie the research results to the objectives of the initiative.

To learn more about the project, please visit the MULTI-ACT website and social media channels.

An agenda & registration page will follow soon. For logistical details, please see below:

Venue:
University Foundation/Fondation Universitaire
Rue d’Egmont 11, 1000 Brussels

Date & Time:
12 November 2019
10:00-14:00 (Registration & welcome coffee begins at 9:30)

Registration now open for BAW 2019 event: “Mood and Food: Exploring the gut-brain connection”

One of EBC’s annual activities is to hold an outreach event for Members of the European Parliament and the general public during the Brain Awareness Week (BAW). This global campaign is held in March every year and aims to increase public awareness on the progress and benefits of brain research.

This year we focus on “Mood and Food: Exploring the gut-brain connection”. Join us in the European Parliament in Brussels (JAN 3Q Brasserie) on the 6th of March from 18:00 to 20:00.

This Brain Awareness Week event will focus on the connection between mood and food, exploring the relationship between what you eat and how it can affect your mood and daily function. Held as a reception this year, the event will combine food, informal presentations and discussion with experts in this growing field of research.

This event is kindly hosted by MEPs Marian Harkin (ALDE, IE) and Jose Inacio Faria (EPP, PT) and held in partnership with the European Dana Alliance for the Brain (EDAB) and the Federation of European Neuroscience Societies (FENS).

We look forward to welcoming our speakers, Dr. Alejandro Arias-Vasquez (New Brain Nutrition Project),  Kimberley Wilson (Monumental Health, NHS Mental Health Trust Governor) and moderator Prof. Patrice Boyer (EBC Vice President).

CLICK HERE to register your attendance!

EBC holds “Enhanced engagement through public-private partnerships” event as part of the Value of Innovation series

Today, the European Brain Council, together with its members and industry partners, hosts the event “Enhanced engagement through public-private partnerships: Sustaining therapeutic innovation to address patient needs” as part of its Value of Innovation series.

The full day event will provide the opportunity for individual EBC members and industry partners to showcase their latest initiatives to the broader EBC membership and other key stakeholders including the European Parliament & Commission, highlighting collaboration, innovation and multi-stakeholder engagement. Built around a number of keynote speeches, presentations and poster presentations, the aim for the day is to create a forum and foster dialogue focused on improving outcomes for patients in 3 key areas – Research & Development in Brain Health, Patient Engagement and Disease Awareness.

The day will be divided into Keynote lectures, presentation sessions, an interactive session and a lunchtime poster session. Confirmed speakers and chairs include: Prof. Monica Di Luca (EBC President), Dr. Pierre Meulien (Director, Innovative Medicines Initiative – IMI), Ms Sohini Chowdhury (Deputy CEO, The Michael J. Fox Foundation for Parkinson’s Research), Mr Andrew Powrie-Smith (Executive Director of Communications & Partnerships, EFPIA) and Prof. Guendalina Graffigna (Catholic University of the Sacred Heart Milan), Ms Donna Walsh (Executive Director, EFNA). See the full programme booklet here for the list of all 12 speakers and poster presentations.

The interactive session will allow participants the opportunity to engage and collaborate on a number of topics, including how industry and EBC stakeholders should collaborate to advance and accelerate access to major medical breakthroughs in CNS conditions and enhance the speed of translation of science to clinical application as well as how Industry and EBC stakeholders should enhance partnerships to improve patient engagement in their conditions.

The anticipated outcomes of the day will be to create a debate that will generate a nucleus of ideas that describe how public-private partnerships and multi-stakeholder engagement can improve outcomes for patients with Brain conditions across the three prescribed areas of focus.

EBC thanks its partners for their support of the day:

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EBC at 27th Alzheimer Europe Conference

EBC is in Berlin this week for the 27th Alzheimer Europe Conference, focusing this year on the theme “care today, cure tomorrow”. In partnership with MSD we are present at the exhibition and will hold a special symposium on the 4th October during lunch (beginning 12:45): Early intervention in Alzheimer’s disease: For a new understanding of AD across its spectrum.

Please visit our booth to learn more about the Value of Treatment case study on Alzheimers and pick up your brand new extended publication of the Alzheimers case study findings or download it HERE.

Alzheimer’s disease (AD) is a progressive disorder that spans over many years, in other words: the brain
starts deteriorating years before symptoms emerge. When are affected people becoming “patients” across
the spectrum of AD and what can we do about it? Between the early signs of being affected by AD and the
ability to provide treatment, many years will pass and many things could have been done. Amidst the call for
early intervention and putting knowledge and resources in the hands of patients and care givers, we are still
faced with a number of societal, ethical, technical and medical challenges. These are the premises of our
lunch session, where we would like to discuss the concept of “early intervention” across its many facets and
develop a new understanding of AD.

In this short session, experts and stakeholders will present the scientific rationale for this new understanding
of Alzheimer’s disease and the ethical challenges it holds; explore the opportunities to monitor and control
the risk factors through eHealth interventions; and to assess the potential socio-economic impact of treating
AD before the onset of dementia.

Speakers include:

Moderator: Donna Walsh (EFNA)
SS4.1. Nilsy Desaint (MSD): Would You Want to Know If You’ll Get Alzheimer’s?
SS4.2. Dr. Alex Milton (University of Southampton): eHealth interventions to prevent dementia
SS4.3 Dr. Ron Handels (University of Maastricht): The value of treating Alzheimer’s disease before the onset of dementia

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The Value of Treatment for Brain Disorders (VoT) Closing Conference, 22 June 2017

The EBC Final Conference on the Value of Treatment for Brain Disorders research project will take place on Thursday 22 June 2017 at 10:00 am, followed by a reception at 17:15 pm, held under the auspices of the Maltese EU Presidency.

The conference will take place in Hall 400, The Square Meeting Centre, 3 Coudenberg, 1000 Brussels.

The Conference will focus on 1) addressing the burden of diseases and issues in the current health care system, the health services delivery and care pathways design and 2) proposing evidence-based and cost-effective solutions to achieve high value for patients.

EBC will release research conclusions and will launch a Policy White Paper.  The White Paper recommendations will highlight unmet needs, new research developments, benefits of seamless care, and will build on key results from case studies and consultations with experts.

Brain disorders are highly prevalent and disabling conditions: neuropsychiatric disorders will affect at least one in three European citizens during their lifetime (an estimated 38.2% of the EU population annually). When the brain is damaged, it can affect different functions of the human body and can lead to disorders impacting both individuals and society.

This conference brings together high level representatives of Ministries of Health and Social Affairs, the European Commission, WHO, OECD and other key international institutions, as well as international experts who are at the forefront of shaping health policy. This includes keynote speeches from Martin Seychell (Deputy Director-General, Directorate General for Health and Food Safety, European Commission) and Dr. Line Matthiessen, Acting Director, Health Directorate, Directorate General for Research & Innovation, European Commission).

The full agenda and registration page can be found HERE

Please email Stephanie Kramer for further questions or details.

 

Exchange of good practices in OSH – Healthy Workplaces Campaign Partner event (22.03.17)

On 22-23 March 2017, EBC attended a two-day exchange of good practices event for Official Campaign Partners of the Healthy Workplaces Campaign in Brussels, organised by the European Agency for Safety and Health at Work (EU-OSHA).

The opening session on 22 March began with a welcome speech by Christa Sedlatschek, Director of EU-OSHA, followed by an introduction to the 2016-17 Healthy Workplaces Good Practice Awards category of Official Campaign Partners by the Chair of the Jury.

Two series of parallel workshops gave participants the opportunity to collaborate and share their experiences. The first workshop focused on the importance of ‘leadership in OSH’. Representatives from LEGO, Ideal Standard and Siemens shared good practices on why leadership is key to motivating workers and for creating the right working organisation, processes and environment for successes.

The second workshop on ‘a business case for well-being’ featured speakers from the International Safety and Health Construction Coordinators Organization (ISHCCO), Toyota Material Handling and SAP who will talk about ‘prevention through design’, the principle of placing people at the heart of design and development decisions to create a good working space.

The first day ended with a presentation of the main findings of the workshops followed by a networking cocktail, as well as the Healthy Workplaces Good Practice Awards and Campaign Partner Ceremony, where the winner, SAP, was announced.

The workshops continued on day two where representatives from ISHCCO and SAP discussed ‘linking OSH strategy to business strategy’ by taking current examples from the audience and working on ways to link to the overall business strategy of the respective organisation.

In parallel, speakers from Baxter and Delphi discussed the ‘harmonisation of OSH KPI reporting’, providing an overview of the current status, evaluation of current degree of standardisation and highlighting the opportunities and risks.

The event concluded with a presentation of the main findings of the workshops and an outlook on the forthcoming Healthy Workplaces Campaign 2018-19 on dangerous substances. EBC received recognition as an official campaign partner of the Healthy Workplaces campaign 2016-2017.

 

 

 

 

 

 

 

 

 

 

To see photos from the event click here.

 

 

Brain Awareness Week: Lunch Debate (14.03.17)

What is Brain Awareness Week?

Brain Awareness Week (BAW) is the global campaign to increase public awareness of the progress and benefits of brain research. Founded in 1996 by the Dana Alliance for Brain Initiatives, BAW unites the efforts of partner organizations from around the world in a week-long celebration of the brain every March. Partners include universities, hospitals, K-12 schools, advocacy groups, government agencies, service organizations, professional groups, and affiliates.

During BAW, partners organize creative and innovative activities in their communities to educate and excite people of all ages about the brain and the promise of brain research. Activities are limited only by the organizers’ imaginations.

The Dana Alliance invites all organizations to join the growing ranks of partners worldwide. By being a part of this global effort, partners add their voice to the message of hope that brain research brings—a message that will have even greater impact when delivered in concert with thousands of other voices from around the world.

As part of Brain Awareness week, EBC organized a lunch debate, held at The University Foundation, Brussels on 14 March, 2017. The subject of the debate was “Expanding Brain Research in Europe: A societal Need?”

 

The main objectives of the event were to:
  • Highlight the growing societal need to expand brain research in Europe, and provide an open forum for policymakers and relevant stakeholders to discuss and debate on the subject.
  • Provide a forum for discussion of all stakeholders involved in order to raise awareness and create ways of collaboration, as well as encouragement for all sides to act.
  • Recognize brain disorders as social and economic burdens, and that the expansion of brain research is vital.
  • To start a conversation and work in alignment with the EU institutions relevant to health and research.

EBC Executive Director Frédéric Destrebecq introduced and moderated the event, which involved a panel of three guest speakers, each addressing the subject from their own standpoint: Hilkka Kärkkäinen, President of Global Alliance of Mental Illness Advocacy Networks-Europe (GAMIAN)-Europe spoke about Research in Mental Health and the patient’s involvement, reminding us that the patients themselves are also experts; Alexander Schubert, Executive Director of the European College of Neuropsychopharmacology (ECNP) spoke about the challenges to innovation in brain research.

                               

Lars Kristiansen, Executive Director of the Federation of European Neuroscience Societies (FENS) addressed the societal impact and the need to strengthen brain research in Europe; Stéphane Hogan, Head of Sector for Neurosciences at the European Commission Directorate-General for Research & Innovation ‎(DG Research) finished with a presentation on the work of The European Commission’s DG Research and Innovation, giving us the policymakers’ perspective and response.  The presentations were followed by contributions from the audience and general discussion among panelists and audience members.

                 

The event proved to be highly successful with insightful presentations, interesting discussion,  and great networking opportunities during the walking lunch that followed.

(Left to right: Lars Kristiansen, Alexander Schubert, Hilkka Kärkkäinen, Frederic Destrebecq and Stephane Hogan)

Find out about Brain Awareness Week in France here.

Mental Health & Active Ageing Conference, 8 February 2017

On 8 February 2017,  EBC attended the Mental Health & Active Ageing: Ensuring opportunities and participation in society at all ages conference, organized by Mental Health Europe together with MEP Deirdre Clune (Ireland, EPP).  Held in the European Parliament, Brussels,  the meeting gathered more than 50 people to discuss the importance of active ageing and why it matters to mental health. Speakers and participants of the meeting involved experts and policy makers including the Irish Minister for Mental Health and Older People Helen Mc Entee, Nigel Henderson, President of Mental Health Europe, Johan Ten Geuzendam, European Commissioner and Professor Alan Walker, Mopact Project Coordinator. The overall message coming out from the event was positive and full of hope: demographics are changing, life expectancy rises, but ageing should not be seen as a burden for society but rather, as an opportunity.

The presentations and following discussions addressed the European dimension of active ageing and why it matters to mental health, the direct link between mental health and active ageing as well as what some of the best practices are in promoting active ageing and positive mental health.  Also addressed were the lifespan approach to mental health and existing policy frameworks in Europe.

Among the many recommendations expressed by speakers and participants, one that was repeated was the  need for training of geriatricians, general practitioners as well service providers to mental health issues. More information about possible side effects of medication for older people that have implications on mental health should also be provided. Experts also emphasized the importance of developing age-friendly policies and integrated strategies in collaboration with organisations representing older persons and mental health associations, calling for more joint thinking and budgetary integration between occupational health and safety, employment and health policies at national and European level.

For more information on the outcomes of the meeting, click here.