During this time of COVID-19, organisations across Europe and the world are working hard to better understand the virus and how it impacts not only society as a whole but the more at-risk groups such as those living with chronic conditions. EBC invites everyone to please have a look through the various ongoing consultations as well as resources available for the brain community, listed below. If you have an ongoing survey or resource available, please don’t hesitate to contact us: comm@braincouncil.eu

EBC Statements

EBC Statement: The Impact of COVID-19 on Brain Health

As stressed in many scientific articles and in most of the health authority reports, the impact of COVID-19 on brain health during the last months has been a major and dramatic one, with severe mental and neurological consequences.

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Lessons learned from COVID-19: the importance of putting health and research first

Statement issues by Prof. Monica Di Luca (President) on behalf of the European Brain Council during the first months of the COVID-19 pandemic.

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Surveys/Consultations 

EBC Members and Community

Survey on the impact of COVID-19 on neurology service delivery

European Federation of Neurological Associations (EFNA)

Many surveys have captured the impact of the Covid-19 pandemic on patients’ access to treatment and care. With this survey, the European Federation of Neurological Associations (EFNA) in partnership with the European Academy of Neurology (EAN), want to better understand how care pathways were reconfigured for the neurology patient community during the first wave of the pandemic.

COVID-19 Survey for patients

GAMIAN-Europe

We have all been affected by the current COVID-19 pandemic – and mental health has never been so much in the spotlight. This is an opportunity to underline the importance of mental health and to ensure appropriate understanding of the needs of patients, now as well as post-COVID. This is why GAMIAN-Europe has taken the initiative to carry out a survey, focusing on the patient experience and patient needs, both in the short as well as in the longer term.

External Surveys/Consultations

Lean European Open Survey: studying SARS-CoV-2 collectively

Lean European Open Survey (LEOSS)

The new SARS CoV II 2019 is spreading rapidly. Mandated by the ESCMID Emerging Infections Task Force (EITaF) and supported by the German Infectious Disease Society, the Lean European Open Survey (LEOSS) want to better understand the implications of the new virus on patients by systematically documenting patient data across Europe. Medical professionals are invited to register here.

Resources

EBC Members and Community

EANcore CoVID-19

European Academy of Neurology (EAN)

As the CoVID-19 pandemic spreads across Europe and the world, in response the European Academy of Neurology is launching EANcore CoVID-19. This resource aims to help neurologists in Europe and beyond prepare for and manage the challenges this global crisis is bringing. 

COVID-19: Resource hub for neurology patients

European Federation of Neurological Associations (EFNA)

The European Federation of Neurological Associations (EFNA) has created a page dedicated to disease specific information and other useful resources in relation to the coronavirus COVID-19 pandemic.

COVID-19 Resource centre

European Psychiatric Association (EPA)

The page of the European Psychiatric Association (EPA) contains links to high-quality COVID-19 resources for both health professionals and the general public. The EPA will expand the selection to include resources in multiple languages as they become available. 

COVID-19 Platform

Global Alliance of Mental Illness Advocacy Networks-Europe (GAMIAN-Europe)

Global Alliance of Mental Illness Advocacy Networks-Europe (GAMIAN-Europe), a patient-driven pan-European organisationhas created a COVID-19 Platform where you can find international and national resources, COVID-19 helplines and services, input from their members and much more. 

IBRO COVID-19 Series: Global Neuroscience Experiences

International Brain Research Organization (IBRO)

The COVID-19 pandemic has by now affected everyone, including the global neuroscience community. To capture the experiences of different brain researchers around the world, IBRO has launched its “COVID-19 Series: Global Neuroscience Experiences,” a collection of video interviews featuring personal perspectives from our community. 

COVID-19 in Neurosurgery: News, Guidelines and Discussion Forum

The European Association of Neurosurgical Societies (EANS)

The European Association of Neurosurgical Societies (EANS) has created a discussion forum for neurosurgeons.

External Resources

COVID-19 and Autism

Autism Parenting Magazine

Autism Parenting Magazine, the leading magazine for parents of autistic children as well as professionals seeking to work with children on the spectrum, has published essential resources to support parents of autistic children during the COVID-19 pandemic, including social stories, visual schedules, expert tips and coping strategies for autism families throughout quarantine.

COVID-19 Data Portal

BioMed Alliance

The BioMed Alliance launched a new page providing an overview of resources on COVID-19. The page contains information on BioMed Alliance activities and highlights materials that medical & research societies and relevant authorities have published on the COVID-19 virus. A series of links to relevant information pages is available on the page as well, including useful information on research funding, statistics and links to initiatives such as the European COVID-19 Data Portal

COVID-19 Overview

General Secretariat of the Council

The General Secretariat of the Council has published a page that gives an overview on the latest meetings, press releases and policies of the Council of the EU and the European Council in relation to the COVID-19 coronavirus outbreak.

COVID-19 Knowledge space

Fraunhofer Institute for Algorithms and Scientific Computing SCAI

SARS-CoV-2 imposes a threat to human beings, to our economy and society. The Fraunhofer Institute for Algorithms and Scientific Computing SCAI aims at rapidly generating a comprehensive COVID-19 pharmacome and to use thCOVID-19 Knowledge space to predict new drug candidates and better treatments against COVID-19. 

Publications

Neuroinvasion of SARS-CoV-2 in human and mouse brain

JEM – Journal of Experimental Medicine

Neuroinvasion of SARS-CoV-2 in human and mouse brain

Neurological manifestations and neuro-invasive mechanisms of the severe acute respiratory syndrome coronavirus type 2

European Journal of Neurology

Neurological manifestations and neuro-invasive machanisms of the severe acute respiratory coronavirus type 2