Stichting Platform CADASIL recently joined as member of the Dutch Brain Council (DBC), which makes the DBC one of the fastest growing patient platforms in the Netherlands. The work of the foundation revolves around supporting research into Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy (CADASIL) and increasing awareness about this condition among the [...]
Members of a consortium, among which EBC, that works towards developing a Polish Brain Plan recently met in Warsaw to discuss the outcomes of a survey on brain health. The results indicate that only 20 percent of Polish citizens considers their knowledge about brain disorders to be good or very good. Furthermore, only 2 percent [...]
EBC representatives were present at the Committee Meeting of the "Societal Impact of Pain" (SIP) hosted at the Foundation Universitaire on 4 October. The SIP platform was launched in 2009 with the aim of raising awareness of the relevance that pain has on societies, sharing best practices across all EU member states and fostering European-wide [...]
EBC is in Berlin this week for the 27th Alzheimer Europe Conference, focusing this year on the theme "care today, cure tomorrow". In partnership with MSD we are present at the exhibition and will hold a special symposium on the 4th October during lunch (beginning 12:45): Early intervention in Alzheimer’s disease: For a new understanding of [...]
EBC representatives attended the event “Research & Innovation in Europe” organized in the European Parliament on 27 September. The discussion primarily revolved around the future FP9 research scheme as well as its potential impact on the European economy. Furthermore, the speakers of the three panels presented on topics such as public return on R&I public [...]
A new report from the European Brain Council reveals poor diagnosis and treatment of Restless Legs Syndrome which makes it one of the most costly neurological disorders in Europe Restless Legs Syndrome (RLS) is a serious neurological disorder which has a high prevalence but is very often not recognized or even diagnosed as a disease, [...]
On 13 & 14 September, EBC held its 3rd Board Meeting of the year and a full day strategic workshop, with the aim of developing a discussion on 2017-2018 activities as well as on the developments of key topics of interest for EBC and its member organisations. We had an excellent turn out, with representatives [...]
The European Brain Council marks World Suicide Prevention Day with the release of a summary of Facts and Recommendations on Suicide in Europe. Written over the last couple of months by a working group of suicide experts (listed in the pdf below), the policy summary is released today to mark the awareness day. More than 150,000 [...]
EBC held an exhibition booth at the Congress from 3-5 September, where EBC colleagues were able to meet Congress attendees to introduce the work and activities of EBC. There was excitement over the selfie wall, and many came to pick up the Value of Treatment Policy White Paper and 2016 Annual Report, as well as [...]
EBC, alongside member organisations EPA, ECNP, GAMIAN-Europe and EUFAMI, has endorsed a new Joint Statement on the need to further invest in mental health research and the implementation of a European Partnership on mental health and wellbeing written by the Trimbos Institute. As written in the introduction of the statement, "mental ill health leads to huge [...]
