Rethinking Schizophrenia

Rethinking Schizophrenia is a research-driven project offering tangible policy changes to improve the lives of people living with schizophrenia across Europe. It challenges the status quo and refreshes the European policy debate on people living with schizophrenia and encourages multi-stakeholder-driven policy. The project falls under #BeyondTheVoices campaign.

About schizophrenia

Schizophrenia is a complex mental health condition identified as one of the 15 leading causes of disability globallyWhile an estimated 24 million people live with schizophreniaapproximately 7individuals out of 1000 will be diagnosed in their lifetime. In Europe, schizophrenia affects 0.31.5% of the population. Despite the low prevalence, schizophrenia has a huge societal burden: often diagnosed between late adolescence and early adulthood, with later onset in women, it impacts every aspect of life, including relationships, education, and employment. Despite the substantial progress in the treatment, people with schizophrenia have a life expectancy 10-20 years below that of the general populationAssociated with unemployment and early retirement, psychiatric comorbidities, and premature death, schizophrenia has the highest median societal cost per patient of all mental illnesses.  

Beyond the Voices of Schizophrenia

Despite improvements and innovation in recent years, people living with schizophrenia face variations in access to optimal treatment and care. There is a lot about schizophrenia that is not fully understood and the high-quality care and support needed by people living with this condition is often unavailable. 

There is a clear need to rethink the management of schizophrenia and redesign the care pathways to ensure optimal treatment and care for all people living with schizophrenia in Europe. Based around patient testimonies, the aim of the project is to highlight the need to optimise the way we manage schizophrenia by building a strong, coherent, evidence-based policy narrative which speaks to the current priorities in schizophrenia and draws from the current policy landscape in Europe. 

The Rethinking Schizophrenia project falls under the Rethinking the management of brain disorders series, research-driven projects offering policy recommendations to make tangible changes with the aim to improve the lives of people living with brain disorders, neurological and mental alike, across Europe. 

Rethinking the Schizophrenia Care Pathway

The second phase of the project, Rethinking the Schizophrenia Care Pathway, co-created by the European Brain Council (EBC) and the European Psychiatric Association (EPA), will aim to examine health gains and societal impacts resulting from optimal healthcare interventions in comparison with current care or inadequate treatment and convert data evidence to policy recommendations on how to improve the care pathways. In-depth patient care pathway analysis will be conducted for optimized care and development of concrete strategiesThe project covers 9 countries (Belgium, Denmark, France, Germany, Hungary, Italy, Poland, Spain and UK).  

Join us in our online survey and support us in better understanding of the care pathway of people from the first episode of psychosis and schizophrenia to long-term care throughout the mental health system in different European countries with a focus on youth and young adults! The survey will help us identify the major problems and defficiencies of the care pathway and how it can be optimised.

We invite all healthcare providers (psychiatrists, psychologists, nurses, social workers, general practioners, etc.), particularly from the selected countries (Belgium, Denmark, France, Germany, Hungary, Italy, Poland, Spain and UK), to provide their insights on this topic and complete the survey.

It takes approximately 10 minutes to fill in the form. The responses are anonymous and should primarily reflect the situation in your country, your personal experience and opinion. The survey will be open until 31 July 2024.

Experts involved in the project

Report endorsers

This project was supported with a grant from Boehringer Ingelheim. The company had no involvement in the research nor in the drafting of the report. All outputs are non-promotional and not specific to any particular treatment or therapy.