Latest News
EBC presents at eHealth Tallinn 2017, announces upcoming event
EBC Executive Director Frédéric Destrebecq traveled to Tallinn today to take part in the eHealth Tallinn 2017 high-level conference. The event centred around 'Health in the Digital Society. Digital Society for Health' and was organised by the Estonian Ministry of Social Affairs as part of Estonia’s Presidency of the Council of the European Union, ECHAlliance and HIMSS Europe. EBC was invited to [...]
EBC marks World Mental Health Day 2017
October 10 is World Mental Health Day, which this year focuses on Mental Health at the Workplace. It is the 25th year of World Mental Health Day, an initiative that each year aims to raise awareness on mental health and the continued issues people living with mental health conditions go through on a day to day basis, as well as [...]
Launch Portuguese Brain Council
EBC is pleased to announce that a Portuguese Brain Council was established this October, following a stakeholder meeting at the Faculty of Medicine of the University of Coimbra. The Council aims to facilitate cooperation between patient organizations, scientific societies and individual experts in Portugal. Furthermore, improving care and treatment of patients living with nervous system disorders as well as informing [...]
CADASIL joined as member of the Dutch Brain Council
Stichting Platform CADASIL recently joined as member of the Dutch Brain Council (DBC), which makes the DBC one of the fastest growing patient platforms in the Netherlands. The work of the foundation revolves around supporting research into Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy (CADASIL) and increasing awareness about this condition among the general public and medical experts. [...]
Polish Brain Plan
Members of a consortium, among which EBC, that works towards developing a Polish Brain Plan recently met in Warsaw to discuss the outcomes of a survey on brain health. The results indicate that only 20 percent of Polish citizens considers their knowledge about brain disorders to be good or very good. Furthermore, only 2 percent admitted that they themselves have [...]
SIP Steering Committee Meeting 4 October
EBC representatives were present at the Committee Meeting of the "Societal Impact of Pain" (SIP) hosted at the Foundation Universitaire on 4 October. The SIP platform was launched in 2009 with the aim of raising awareness of the relevance that pain has on societies, sharing best practices across all EU member states and fostering European-wide policy strategies for an improved [...]
EBC at 27th Alzheimer Europe Conference
EBC is in Berlin this week for the 27th Alzheimer Europe Conference, focusing this year on the theme "care today, cure tomorrow". In partnership with MSD we are present at the exhibition and will hold a special symposium on the 4th October during lunch (beginning 12:45): Early intervention in Alzheimer’s disease: For a new understanding of AD across its spectrum. Please visit [...]
Research & Innovation for Europe: What after 2020?
EBC representatives attended the event “Research & Innovation in Europe” organized in the European Parliament on 27 September. The discussion primarily revolved around the future FP9 research scheme as well as its potential impact on the European economy. Furthermore, the speakers of the three panels presented on topics such as public return on R&I public investments, excellence in research and [...]
Press Release: Restless Legs Syndrome (RLS) is a major burden on healthcare budgets in Europe
A new report from the European Brain Council reveals poor diagnosis and treatment of Restless Legs Syndrome which makes it one of the most costly neurological disorders in Europe Restless Legs Syndrome (RLS) is a serious neurological disorder which has a high prevalence but is very often not recognized or even diagnosed as a disease, leading to delayed diagnosis and/or [...]
EBC Board Meeting & Strategic Workshop
On 13 & 14 September, EBC held its 3rd Board Meeting of the year and a full day strategic workshop, with the aim of developing a discussion on 2017-2018 activities as well as on the developments of key topics of interest for EBC and its member organisations. We had an excellent turn out, with representatives from almost all of our [...]