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Last week to register for the MULTI-ACT Project’s Final Conference
After years of work, the outcomes of the MULTI-ACT project will be presented at the Final Conference, “The MULTI-ACT model: the path forward for participatory governance in health research and innovation”, to be held virtually on 23 March 2021 at 14:00-17:00. The EU-funded MULTI-ACT project aims to increase the impact of health research on people with brain diseases. It [...]
Pioneers in migraine research that has led to the development of new treatments awarded world’s top Brain Prize
EBC is pleased to share the announcement of the winners of the 2021 Brain Prize, Professors Lars Edvinsson, Peter Goadsby, Michael Moskowitz, and Jes Olesen, who is the Founding President of EBC. We congratulate them all on their achievement! A group of four neuroscientists from Denmark, Sweden, UK, and USA who discovered a key mechanism that causes migraine [...]
EBC supports European Stakeholder Group statement on maintaining the exchange of critical health data
EBC is happy to support the statement released by CPME, on behalf of the European Stakeholder Group, on the draft adequacy decision on the UK data protection regime issued by the European Commission on 19th February 2021. Protecting the benefits of the free flow of personal data must be a top priority. The absence of an adequacy decision would [...]
EBC, EFNA and GAMIAN-Europe launch registration for Brain Awareness Week event
Brain Awareness Week 2021 EBC in partnership with EFNA & GAMIAN-Europe Patient Engagement in EU-Funded Brain Research Projects Digital Event – 16 March, 12:30-14:00 The European Brain Council (EBC), the European Federation of Neurological Associations (EFNA) and GAMIAN-Europe are pleased to invite you to our upcoming Brain Awareness Week event on Patient Engagement in EU-Funded Brain Research Projects, to be held on [...]
EBC raises awareness on Rare Disease Day
EBC is happy to recognise and support Rare Disease Day today, held this year under the theme “Equity”. As emphasized by EURORDIS, equity in practice means meeting people’s specific needs and eliminating barriers preventing their full participation in society. For people living with a rare disease, equity implies social opportunity, non-discrimination in education and work, and equitable access to [...]
What can we learn from the vaccination campaign?
Just over a month ago, EBC published its statement on the impact of COVID-19 on brain health, hoping that the growing evidence of the long-term effects of the disease would be taken into account in the planning for post-pandemic recovery at the EU and national levels. It continues to grow more evident that COVID-19 has grave consequences on both neurological [...]
MULTI-ACT project launches Save the Date for Final Conference
MULTI-ACT Final Conference The MULTI-ACT Model: The Path Forward for Participatory Governance in Health Research and Innovation 23 March 2021 (14:00-17:00 CET) After years of work, the outcomes of the MULTI-ACT project will be presented at the Final Conference, “The MULTI-ACT model: the path forward for participatory governance in health research and innovation”, to be held virtually on 23 March 2021. [...]
Event report: Virtual workshop on the off-label use of medicines in Sweden and Norway
Striking the right balance between timely access to medicines and maintaining the highest standards of patient safety. Introduction to the event The event, hosted by the Swedish Brain Foundation, the Norwegian MS Association and the European Brain Council was held virtually on 24 November 2020. It brought together over 80 representatives from Norway and Sweden, and a distinguished list [...]
EU-Funded BRAINTEASER project, bringing AI home for better care of ALS and MS, kicks off!
Officially started on the 1st of January 2020, the H2020 BRAINTEASER project kicked off its operational activities on 28 and 29 January, at the presence of its project officer Mr Tobias Wiesenthal, Head of Sector 'Research and Innovation' at DG CONNECT.H.3 – eHealth, Well-Being and Ageing. All the 11 partners, a multidisciplinary gender-balanced consortium from academia, industry, clinical settings [...]
EBC launches statement on the impact of COVID-19 on brain health
Around one year ago to date, the first cases of the Coronavirus disease 2019, or COVID-19, were recorded to be spreading rapidly across countries in Asia and soon, Europe and the rest of the world. Since then, the world has been held at relative stand-still and the global population has been tested to its limits to adapt to "the [...]