EBC MEMBER ACTIVITIES

The membership of the EBC consists of patient groups, scientific and professional organisations as well as industrial partners. As per its statutes, the EBC accepts as Full Members pan-European umbrella organisations with an interest in the brain. Any organisation that supports the aims of the EBC can apply to become an observer in order to contribute in an advisory capacity. Organisations or individuals that have contributed in an outstanding fashion to the aims of the EBC can also become honorary members.

MEMBER ORGANISATION

European Paediatric Neurology Society (EPNS)
Website

Sue Hargreaves and Mel Knowles

info@epns.info

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NEWS, ACTIVITIES & ACHIEVEMENTS

Latest activities

A new EPNS Board was elected for the term 2022-2026, with Professor Kevin Rostasy from Germany appointed as the EPNS President.

Our number of EPNS members continues to grow, with many new members welcomed.

The European Journal of Paediatric Neurology (EJPN), the official journal of the EPNS which accepts high-quality papers primarily of a clinical research nature on the whole spectrum of paediatric neurological disease, had its Impact Factor increased to 3.1

Scientific and Research Committee Activities:

  • 7th EPNS Research Meeting, following cancellation of the planned event in Stockholm in 2020, for the safety of our participants and faculty the highly successful meeting took place as a fully virtual event on 25-26 November 2021. Organisers were Professor Barbara Plecko and Professor Thomas Sejersen.

·       14th EPNS Congress, postponed due to the pandemic, the Congress went ahead on 28 April – 2 May 2022 as a hybrid event, held simultaneously in Glasgow, UK and on a virtual platform. Organised by Professor Sameer Zuberi, this was a very special Congress with over 1000 in-person and 600+ virtual participants, allowing delegates to connect again with friends, colleagues, and industry partners all focused on delivering the best possible care for children with neurological disorders and sharing the latest in science and medicine.

EPNS Guidelines Committee is undertaking project to develop a library of EPNS approved Guidelines in the field of Paediatric Neurology. Not wanting to ‘re-invent the wheel’, the first phase of the project has started by collecting and reviewing existing guidelines from across Europe.

Education and Training Committee Activities:

  • EPNS Training Course Jurmala (Latvia), local Organiser: Jurgis Strautmanis. The 2nd in the series in the Latvian training course cycle was fully virtual and was a memorable interactive event.
    • 24-25 March 2022: Acute Paediatric Neurological Diseases course moderated by Professor Maja Steinlin.
    • 30-31 March 2022: Immune Mediated Diseases and Infections course moderated by Professor Banu Anlar and Professor Kevin Rostasy.
  • EPNS Educational Webinars, the EPNS has been delighted to offer free webinars on topics of key interest to Child Neurologists on the 2nd Wednesday of each month.
  • EPNS Training Guide, was rolled out following the EPNS syllabus with a dedicated chapter to each topic. Each chapter lists what a European trainee in paediatric neurology should have knowledge of by the end of their training, with a section at the end giving ‘essential’ and ‘desirable’ activities. To complement the EPNS Training Guide there will be a 3-year cycle of EPNS teaching covering the relevant topics using the EPNS webinars and all EPNS training courses.
  • EPNS Exam, led by Professor Maja Steinlin, steps have been taken to implement an EPNS Exam and set a standard for general level of knowledge for Paediatric Neurologists. It will be an evaluation of Learning Objectives and Training Conditions as stated in the new EPNS Training Guide. Two formative EPNS Exam trials were held during the EPNS VIRTUAL Training Course Jurmala (Latvia) in April 2021 and during the EPNS Congress in Glasgow 2022.
  • Online learning courses, on Principles and Practice of Child Neurology in Infancy have been offered to EPNS members at a significant discount.
  • EPNS Fellowships, 6 awarded to take place in 2022
  • EPNS Visiting Teacher, one awarded to take place in 2022

Advocacy and Collaboration Committee Activities:

This new EPNS committee formed in 2022.

The EPNS has contributed to a consultation by the World Health Organisation (WHO) on an Intersectoral Global Action Plan on epilepsy and other neurological disorders (GAP) to address challenges and gaps in providing care and services for people with neurological disorders and we advocated for the document to be more child neurology focused, with a strong message about the concept of lifelong neurological disorders and antenatal/maternal health influencing neurological disorders.

The EPNS has continued to strengthen partnerships and new connections at a European level and beyond to raise the voice of child neurology. Our collaborations include:

  • European Brain Council (EBC)
  • OneNeurology
  • European Academy of Neurology (EAN)
  • European Reference Networks (ERNs)
  • European Society for Child and Adolescent Psychiatry (ESCAP).
  • African Child Neurology Association (ACNA)
  • Asian and Oceanian Child Neurology Association (AOCNA)
  • Child Neurology Society (CNS)
  • International Child Neurology Association (ICNA)
  • European Federation of Neurological Associations (EFNA)
  • EURORDIS

The Committee of National Advisers (CNA) continues to be our valuable link to the European national paediatric neurology associations.

Young EPNS (YEPNS) committee

This committee became firmly established and their work in 2021 has been exceptional.

The Journal Club and Case Discussion webinar series organised by the Young EPNS (YEPNS) were launched in 2021 and take place on the 4th Wednesday in alternately.

Plans for 2022/2023

Scientific and Research Committee:

·       15th EPNS Congress will take place in Prague on 20-24 June 2023 with the theme ‘from genome and connectome to cure.’ Organised by Professor Pavel Kršek.

·       8th EPNS Research Meeting, October/November 2024 in Ljubljana, organised by Professor Zvonka Rener Primec and Dr Jasna Orazem.

·       16th EPNS Congress, will take place in Munich on 8-11 July 2025.

EPNS Guidelines Committee will begin to roll out new guidelines and endorse existing guidelines.

Education and Training Committee:

  • EPNS Exam, the plan is to roll-out the first summative examination in 2023.
  • The Moodle, work is being carried out to implement an easily accessible EPNS Moodle to support EPNS training and education with resources stored to support the EPNS Exam and Training Guide.
  • EJPN Educational Supplement, webinar speakers will provide papers for the EJPN.
  • Current 3-year training cycle 2021-2023, Jurmala, Local Organiser: Dr Jurgis Strautmanis. April 2023:
    • Neurometabolics: moderated by Professor Barbara Plecko and Professor Michel Willemsen
    • Epilepsy: moderated by Professor Lieven Lagae and Professor Dana Craiu
  • 4th EPNS Cambridge Masterclass 2022, 15 – 17 September 2022 (postponed from 2020) taking place in Corpus Christi College, Cambridge, UK. Local Organisers: Rob Forsyth and Florian Heinen. With the topic “Inflamed minds; inflamed people” this will be a small event with approx. 40 delegates, will be face to face to enable interaction with small groups and the mentoring model with junior and senior partners. Following tradition, it is not just a scientific meeting, but it has a multi-perspective element including a humanities perspective (literature, art, philosophy), which has worked well in the past.
  • 5th Biennial Caucasus Teaching Course 2022, plans are in progress for a proposed hybrid course in November 2022 covering the topic Neurological aspects of behavioural, neuropsychological, and psychiatric childhood problems including learning difficulties. More information will be shared with EPNS members as plans develop.
    • Next 3-year training cycle 2024-2026, Ferrara, Italy: Local organiser: Professor Agnese Suppiej
    • EPNS Central Eurasia Workshop, an in-person only event in Almaty, Kazakhstan, postponed from 2020, a new date will be announced in due course.
    • EPNS Fellowships, to be advertised in summer 2022 to take place in 2023.
    • EPNS Visiting Teacher, to be advertised in summer 2022 to take place in 2023.

    Advocacy and Collaboration Committee:

    There are many plans to further develop links with associated organisations and advocate on behalf of the field of child neurology at the highest level.