In the context of the 78th World Health Assembly (WHA) being held in Geneva on 19–27 May 2025, the European Brain Council (EBC) fully supports the Resolution on Rare Diseases: ‘Rare Diseases: A Global Health Priority for Equity and Inclusion’. Spearheaded by Rare Diseases International and a broad coalition of partners, this initiative acknowledges [...]
On February 28, marking the 2025 Rare Disease Day, the European Parliament’s Public Health Committee (SANT) kicked off its survey on rare diseases. The purpose of this public consultation is to provide a basis for the forthcoming work of the Committee in bringing a better understanding of the challenges of persons affected by rare diseases and views of [...]
Towards A Rare Brain Disease Ecosystem Rare Disease Day 2025 | 'More than you can imagine' The Rare Disease Day event 2025, organised by the European Brain Council (EBC), was held on February 20, 2025. The event gathered researchers, clinicians, policymakers, industry representatives and patient advocacy groups to address [...]
On the International Phenylketonuria Day 2024, the European Brain Council (EBC) is pleased to publish the 'The Value of Education: Digital Care Pathways for Rare Brain Diseases. The Case of Phenylketonuria (PKU)' study insights. About Phenylketonuria Rare diseases typically display a high level of symptom complexity and variability. Individuals diagnosed with [...]
On the occasion of Rare Disease Day, 29 February 2024, the European Brain Council (EBC) held the event Towards a Rare Brain Disease Ecosystem at the University Foundation, Brussels, to raise awareness on rare brain diseases and their societal impact. The event brought together researchers, clinicians, persons living with a rare brain disease and industry to [...]
On the occasion of World Mental Health Day on 10 October 2023, The European Psychiatry released a Special Issue on The Value of Treatment (VOT) focusing on Early Intervention and Continuity of Care for Mental Disorders (Anorexia Nervosa, Autism and Major Depressive Disorder). With this new Study, the European Brain Council (EBC), together with [...]
