Towards A Rare Brain Disease Ecosystem Rare Disease Day 2025 | 'More than you can imagine' The Rare Disease Day event 2025, organised by the European Brain Council (EBC), was held on February 20, 2025. The event gathered researchers, clinicians, policymakers, industry representatives and patient advocacy groups to address [...]
On the International Phenylketonuria Day 2024, the European Brain Council (EBC) is pleased to publish the 'The Value of Education: Digital Care Pathways for Rare Brain Diseases. The Case of Phenylketonuria (PKU)' study insights. About Phenylketonuria Rare diseases typically display a high level of symptom complexity and variability. Individuals diagnosed with [...]
On the occasion of Rare Disease Day, 29 February 2024, the European Brain Council (EBC) held the event Towards a Rare Brain Disease Ecosystem at the University Foundation, Brussels, to raise awareness on rare brain diseases and their societal impact. The event brought together researchers, clinicians, persons living with a rare brain disease and industry to [...]
On the occasion of World Mental Health Day on 10 October 2023, The European Psychiatry released a Special Issue on The Value of Treatment (VOT) focusing on Early Intervention and Continuity of Care for Mental Disorders (Anorexia Nervosa, Autism and Major Depressive Disorder). With this new Study, the European Brain Council (EBC), together with [...]
