EBC looks forward to being part of the 9th European Academy of Neurology congress, to be held on 1-4 July, 2023 in Budapest, Hungary with a TV studio special session centred around its advocacy work for the brain. This session, taking place on 3 July 2023 at 16:15-17:15 CET and led by members of [...]
On 7 December 2022 at 16:00-17:30, the European Alliance for Patient Access (EAfPA), with support of the European Brain Council (EBC) and European Federation of Neurological Associations (EFNA), hosted an event in the European Parliament on Rare Neurological Diseases in the EU, exploring the importance of early diagnosis and real-world evidence (RWE) to drive better [...]
In recent months, discussions on brain health have much focused on how to bring brain research and brain health on the European agenda. Patient organisations have also been very active in bringing their views to the discussion. However, we increasingly find that in relation to research in brain health and innovation, patient involvement has not [...]
On 16 March 2021, on the occasion of Brain Awareness Week 2021, the European Brain Council, in partnership with the European Federation of Neurological Associations & GAMIAN-Europe, held an event on Patient Engagement in EU-Funded Brain Research Projects. The event aimed to shed light on the current state of patient engagement in EU-funded brain [...]
The next European elections take place on 23-26 May 2019, when 350 million EU citizens will again have their chance to elect the 751 members of the European Parliament (EP). In light of these elections, EBC has joined many like-minded organizations in producing its own Election Manifesto, a call and reminder to MEPs, old and [...]
This Brain Awareness Week, The European Federation of Neurological Associations (EFNA) has launched a Survey of Young Europeans with Neurological Conditions: https://www.surveymonkey.com/r/EFNA-YS The objective of this survey is to gain an understanding of the biggest issues affecting participants in their daily lives and also to learn about their relationships with and opinion of patient groups. [...]
