Stephanie Kramer2023-01-02T14:47:01+00:0001-12-2022|
On 7 December 2022 at 16:00-17:30, the European Alliance for Patient Access (EAfPA), with support of the European Brain Council (EBC) and European Federation of Neurological Associations (EFNA), hosted an event in the European Parliament on Rare Neurological Diseases in the EU, exploring the importance of early diagnosis and real-world evidence (RWE) to drive better [...]
Stephanie Kramer2022-04-27T14:45:37+00:0027-04-2022|
In recent months, discussions on brain health have much focused on how to bring brain research and brain health on the European agenda. Patient organisations have also been very active in bringing their views to the discussion. However, we increasingly find that in relation to research in brain health and innovation, patient involvement has not [...]
Stephanie Kramer2021-05-26T12:33:03+00:0026-05-2021|
EBC recently joined the OneNeurology Partnership. The focus of this Partnership in 2021 will be in influencing the development of the World Health Organisation’s new Global Action Plan on epilepsy and other neurological disorders [GAP]. The GAP represents a unique opportunity to build an integrated response to neurology across the life course and within healthcare systems [...]
Stephanie Kramer2021-11-05T12:42:23+00:0026-03-2021|News|
On 16 March 2021, on the occasion of Brain Awareness Week 2021, the European Brain Council, in partnership with the European Federation of Neurological Associations & GAMIAN-Europe, held an event on Patient Engagement in EU-Funded Brain Research Projects. The event aimed to shed light on the current state of patient engagement in EU-funded brain [...]
Stephanie Kramer2020-07-24T12:48:07+00:0024-07-2020|News|
The European Brain Council is glad to announce the release of its 2019 Annual Report, filled with content shedding light on projects, events and activities and further achievements of EBC, its members and its stakeholders. You can read and download the full report here.
admin_ebc2019-07-03T12:21:03+00:0003-07-2019|News|
EBC was present again this year at the Congress of the European Academy of Neurology, marking their 5th year of annual congresses. This year the congress was held in Oslo, Norway, and EBC was pleased to be able to participate in the Exhibition Hall as well as in the Scientific Theatre and EFNA-EAN Special Session. [...]
admin_ebc2019-04-15T10:44:13+00:0015-04-2019|News|
The Brain, Mind and Pain (BMP) initiative has today launched its Book of Evidence for the 2019-2024 EU mandate. This Book of Evidence (BoE) sets a strategic vision on policy action to deliver better care for people with neurological and chronic pain disorders in the EU. It will be used as the core policy document of the [...]
admin_ebc2019-04-03T08:12:29+00:0003-04-2019|News|
Alzheimer’s disease (AD) – the most common cause of dementia – is one of the most significant medical and societal challenges of our time. It does not discriminate and affects everyone, across all generations – from the people who develop the condition, to the families that care for them and the taxpayers who fund health [...]
admin_ebc2018-11-21T23:07:41+00:0021-11-2018|News|
EBC endorses joint Alzheimer’s white paper setting out strategic vision on policy action to deliver better care for people with Alzheimer’s, their families and their carers in Europe The white paper, Driving policy to optimise care for people with Alzheimer’s disease in Europe today and tomorrow, launched today in the European Parliament, outlines clear priorities for [...]
admin_ebc2018-03-13T15:30:16+00:0013-03-2018|News|
This Brain Awareness Week, The European Federation of Neurological Associations (EFNA) has launched a Survey of Young Europeans with Neurological Conditions: https://www.surveymonkey.com/r/EFNA-YS The objective of this survey is to gain an understanding of the biggest issues affecting participants in their daily lives and also to learn about their relationships with and opinion of patient groups. [...]
