EBC is a network of key players in the “Brain Area”, with a membership encompassing scientific societies, patient organisations, professional societies and industry partners.
1 05-2022

Value of Treatment (VOT) case study on phenylketonuria (PKU) | EPNS Congress 2022

2022-03-30T12:45:15+00:0001-05-2022|

  The Value of Treatment for Brain Disorders (VOT) is a health economics and outcomes research project coordinated by the European Brain Council (EBC). According to the World Health Organization, disorders of the brain affect up to one in three people worldwide.  A second round (VOT2) on new therapeutic areas was launched in 2019, focusing on The Value of [...]

28 06-2021

VOT2 Case Studies on Rare Diseases & Mental Disorders present findings at Synthesis Meeting on 8 June 2021

2021-08-30T14:11:31+00:0028-06-2021|News|

On 8 June 2021, EBC hosted a virtual Synthesis Meeting for the Value of Treatment 2 case study working groups to present their preliminary findings. The Value of Treatment for Brain Disorders (VOT) is a health economics and outcomes research project coordinated by the European Brain Council (EBC). EBC conceptualized in 2015 the Value [...]

28 06-2021

EBC raises awareness on International Phenylketonuria Day

2021-06-28T07:41:17+00:0028-06-2021|News|

EBC is happy to recognise and support International Phenylketonuria (PKU) Day, which takes place annually on 28 June — the birthday of two stalwarts of PKU, Robert Guthrie (1916-1995) and Horst Bickel (1918-2000). The ongoing 2019-2021 Value of Treatment (VOT) project for Brain Disorders and its recent synthesis meeting on 8 June 2021 aimed to [...]

16 12-2020

Value of Treatment 2: working sessions report

2020-12-16T13:00:33+00:0016-12-2020|News|

The Value of Treatment (VOT) research project, initiated and coordinated by EBC, aims to identify treatment gaps and causing factors along the care pathway and propose solutions to address them; assess health gains and socio-economic impacts resulting from best practice healthcare interventions, in comparison with current care or no treatment. Furthermore, its objective is to [...]

15 05-2019

Joint meeting of 2nd round of EBC “Value of Treatment” project working groups

2019-05-15T12:12:52+00:0015-05-2019|News|

On 15 May 2019, a joint meeting was held in Brussels for the new case studies of the 2nd round of the EBC Value of Treatment project. Working groups in the fields of Mental Disorders: Eating Disorders (Anorexia Nervosa), Major Depressive Disorder and Autism Spectrum Disorder* and Rare Neurological Disorders: Ataxia, Dystonia and Phenylketonuria (PKU) have [...]

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