EBC is a network of key players in the “Brain Area”, with a membership encompassing scientific societies, patient organisations, professional societies and industry partners.
18 01-2024

Towards a Rare Brain Disease Ecosystem

2024-02-23T08:27:49+00:0018-01-2024|

The main purpose of Rare Disease Day is to raise awareness about rare diseases and their impact on the lives of those affected. Encouraging policy changes can influence policymakers to create policies and regulations that better address the needs of people with rare diseases, including improved access to diagnosis and treatment. To raise awareness [...]

31 01-2023

Europe Rare Disease Summit 2023

2023-02-24T11:01:10+00:0031-01-2023|

With a new Rare Disease International Day coming up, Bamberg Health in collaboration with key actores of the industry, is organizing the Europe Rare Disease Summit in Madrid (Spain) and virtually. The objective of the Summit was to discuss the key trends and topics relating to diagnostics and treatments for Rare Diseases, as [...]

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