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The main purpose of Rare Disease Day is to raise awareness about rare diseases and their impact on the lives of those affected. Encouraging policy changes can influence policymakers to create policies and regulations that better address the needs of people with rare diseases, including improved access to diagnosis and treatment.

To raise awareness on rare brain disease, this event, organised by the European Brain Council, will bring together researchers, clinicians, persons living with brain disease and industry to share their perspectives and priorities in the rare brain disease research, care, and policy space. This will result in the 2024 strategic plan for the EBC rare brain disease ecosystem.

Practical information

Date: Thursday, 29 February 2024
Time: 09:30 – 14:00 (Brussels time)
Location: University Foundation (Francqui Room), Rue d’Egmont 11, 1000 Brussels, Belgium & livestream
Registration for online attendance: register here
Registration for in-person attendance: please contact us at comm@braincouncil.eu

All participants must register before attending this event. Once registered for the online participation, Zoom instructions will be sent via email closer to the date.