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Special webinar organised by the European Huntington’s Disease Association (EHA) and  the European Reference Network for Rare Neurological Diseases (ERN-RND):

Date: Monday April 6
Time: 4 pm – 5.30 CET
Topic:  “Huntington’s disease and the Covid-19 pandemic – a difficult combination
Join the webinar: https://zoom.us/j/284555212

There is no need to sign up in advance to the webinar.

 

Further details:

The current situation related to the Covid-19 pandemic causes a lot of strain and isolation on Huntington’s disease (HD) patients and their families.  All the restrictions imply big changes in daily life and the routines are hard to maintain.  We hear that families struggle, feel scared and isolated.

In order to support you in this situation, EHA and ERN-RND are organizing a webinar  on  Zoom with a panel of multi language HD experts from a variety of European countries well-known in the HD community and active members of the European HD Network (EHDN).

The webinar will give you information about the specific risks for HD patients, update on consequences for the ongoing HD studies and trials, and some advice on how to cope with this new situation. The experts are there to answer any question you have in your language.

Confirmed speakers:

Astri Arnesen – European Huntington Association
Professor Bernhard Landwehrmeyer (Neurologist) – Germany
Alzbeta Muehlbaeck (Neuropsychiatrist ) – Germany/Slovakia
Professor Anne-Catherine Bahoud Levi (Neurologist) – France
Professor Hugh Rickards (Psychiatrist) – UK
Dr Yuri Seliverstov – Russia
Natalia Grigorova (Psychologist) – Bulgaria
Filipa Julio (Neuropsychologist) – Portugal
Dr Alzbeta Muehlbaeck (Neuropsychiatrist) – Germany
Professor Maria Judit Molnar (Neurogeneticist) – Hungary
Dr Jose Lopez Sendon (Neurologist) – Spain
Dr Lasse Philstrøm (Neurologist) – Norway
Ramona Moldova (Neuropsychologist ) – Romania
Dr Wioletta Krysa (Geneticist ) – Poland
Professor Ferdinando Squitieri (Neurologist) – Italy

The primary target audience are patients and patients’ family members but clinicians are also very welcome to attend.

http://www.ern-rnd.eu/?p=7032