EBC Launches ‘Rethinking Neurofibromatosis Type 1’ to Propose Policy Recommendations for an Improved Care Pathway
The European Brain Council (EBC), in collaboration with Neurofibromatosis Patients United (NFPU), is pleased to launch the 'Rethinking Neurofibromatosis Type 1' project on the occasion of EBC's Rare Disease Day event, held on February 24th, 2026 in Brussels. Neurofibromatosis is a rare genetic disease, that includes three different diseases that affect over 250,000 people [...]
