European Brain Council (EBC) President, Prof Monica di Luca, is featured in the latest Open Access Government, a digital publication that provides an in-depth perspective on key public policy areas from all around the world. Prof Di Luca provides a voice for the brain research community here, exploring how the brain research community is affected by [...]
The Value of Treatment (VoT) project, a 2-year study initiated by the European Brain Council (EBC) in 2018, has been highlighted in the European Reference Network for Rare Diseases (ERN) Newsletter that is sent on a quarterly basis by the Directorate-General for Health & Food Safety of the European Commission. According to the European Reference Network on Rare Neurological Diseases (ERN-RND), there are 500,000 people living with rare [...]
The new decade started out as any other but rapidly unfolded into a scenario that the world will remember for decades to come. What many in Europe and the western world viewed as an isolated incidence of a novel coronavirus in China and dotted across neighbouring Asian countries – [...]
The public webcast “COVID on campus: Will R&D ecosystems survive?”, organized by Science|Business, was held on Wednesday 22nd April 2020. This online meeting assessed the disruption brought by the Covid-19 crisis on public and private organizations involved in research and innovation and explored solutions for addressing the impact on R&D systems. First to speak was [...]
During this time of COVID-19, organisations across Europe and the world are working hard to better understand the virus and how it impacts not only society as a whole but the more at-risk groups such as those living with chronic conditions. EBC invites everyone to please have a look through the various ongoing consultations as [...]
EFNA has published a message from those living with neurological disorders who may be directly at increased risk from COVID-19, including through disruptions in their healthcare provision. In the statement, EFNA explores three challenges to face this situation without neglecting patients with brain disorders: ensuring equitable access to treatments, services and supports, reinvigorating neuroscience [...]
EBC has endorsed the Alzheimer Europe's calling for caution and sound ethical principles in the current triage guidelines, which would exclude people with dementia from life-saving access to ventilators during the COVID-19 pandemic. Alzheimer Europe emphasises its commitment to a human rights based approach to dementia and its firm belief that after diagnosis, people with [...]
Update: Due to the Covid-19 crisis and overwhelming requests from the community calling for deadline lenience, the European Commission announced that the deadline for the Horizon 2020 health-related calls has been postponed. SC1-2020 is postponed to 4 June 2020 and, in addition, the deadlines of H2020-SC1-DTH-2020 and H2020-SC1-FA-DTS-2020 will be also extended to 18 June [...]
The European Brain Council (EBC), together with its member societies the European Federation of Neurological Associations (EFNA), the Global Alliance of Mental Illness Advocacy Networks-Europe (GAMIAN-Europe), the European Academy of Neurology (EAN), the European Association of Neurosurgical Societies (EANS), the European College of Neuropsychopharmacology (ECNP), the European Psychiatric Association (EPA), the Federation of European Neuroscience Societies (FENS) and [...]
Brain Awareness Week (16-22 March 2020) The European Brain Council and The Health Policy Partnership launch the RETHINKING MS project on the occasion of Brain Awareness Week 2020. RETHINKINGMS, a pan-European report offering tangible policy changes to improve the lives of people living with MS across Europe went live this week, accompanied by dedicated country [...]