EBC is happy to recognise and support International Phenylketonuria (PKU) Day, which takes place annually on 28 June — the birthday of two stalwarts of PKU, Robert Guthrie (1916-1995) and Horst Bickel (1918-2000). The ongoing 2019-2021 Value of Treatment (VOT) project for Brain Disorders and its recent synthesis meeting on 8 June 2021 aimed to [...]
On the occasion of the approaching World Multiple Sclerosis Day (30 May 2021), the European Brain Council is excited to announce the release of its new policy paper, "RETHINKING MS in times of COVID-19". This new paper is part of the main report "RETHINKING MS in Europe", a research-driven project offering tangible policy changes [...]
There is consensus among stakeholders that patient engagement at different points of the medicines lifecycle is critical to fostering patient access to innovative therapeutic solutions, and delivering better health outcomes for patients. IMI PARADIGM, a public private consortium consisting of patients, academia, industry, HTA bodies and regulators, developed a toolkit to make patient engagement [...]
The European Brain Council is pleased to invite you to join us for the upcoming Value of Treatment for Brain Disorders Research Project “Case studies on Rare Diseases and Mental Disorders” Virtual Synthesis Meeting to be held on 8 June 2021 at 13:00-17:30. The Value of Treatment (VOT) is a health economics and outcomes research project addressing all brain disorders, conceptualized in 2015 by the [...]
The 3rd Brain Innovation Days digital event on "Fast-tracking brain innovation in times of COVID-19" will take place on 27 March 2021 (12:30 - 14:00 CET) The last 14 months have been a most testing time for the world in general and for global health in particular. COVID-19 took the world by surprise as [...]
The European Brain Council (EBC) is pleased to invite you for the Value of Treatment 2 (VOT 2) Synthesis Meeting, to be held virtually on 8 June 2021 (13:00-17:00 CET). Experts participating in the research will present a synthesis of the results so far and examine the most critical issues in brain diseases in Europe from different perspectives including policymakers, innovators, academia [...]
The European Brain Council (EBC) is pleased to launch the Save the Date for the Value of Treatment 2 (VOT 2) Synthesis Meeting, to be held virtually on 8 June 2021 (13:00-17:00 CET). Experts participating in the research will present a synthesis of the results so far and examine the most critical issues in brain diseases in Europe [...]
The Value of Treatment (VOT) research project, initiated and coordinated by EBC, aims to identify treatment gaps and causing factors along the care pathway and propose solutions to address them; assess health gains and socio-economic impacts resulting from best practice healthcare interventions, in comparison with current care or no treatment. Furthermore, its objective is to [...]
The European Brain Council and beLean.net are excited to announce 'Save the Date' for the upcoming Brain Innovation Days, to be held in Brussels on 13-14 October and virtually all over Europe. The Brain Innovation Days will take over from EBC's 2018 event on "Enhanced engagement in public-private partnerships" and provide an opportunity to not [...]
The Value of Treatment (VoT) project, a 2-year study initiated by the European Brain Council (EBC) in 2018, has been highlighted in the European Reference Network for Rare Diseases (ERN) Newsletter that is sent on a quarterly basis by the Directorate-General for Health & Food Safety of the European Commission. According to the European Reference Network on Rare Neurological Diseases (ERN-RND), there are 500,000 people living with rare [...]
