Case studies on Rare Neurological Disorders (RNDs): Ataxia, Dystonia, Phenylketonuria (2018-2021)
In the continuity of the VoT research activities, new case studies will be conducted on new therapeutic areas. On March 26th, May 23rd and September 24th 2018, EBC launched a second round of case studies “VoT 2” related to Rare Neurological Disorders (RNDs) focusing upon Ataxia, Dystonia and Phenylketonuria. These meetings aimed to provide working groups (WGs) with a full description of the VoT research methodology framework and expected project deliverables.
The study will look at value, early intervention and will explore the potential benefits and consequences of coordinated care through the examination of health services, patient outcomes and patterns of multidisciplinary care. Case studies are conducted in collaboration with experts and with the support of Academic Partners (University College London and University of Zagreb Medical School), applying empirical evidence from different European countries.
VOT2 Value Proposition – Early coordinated care for patients affected by RNDs study
Click on the image below to see full document.
Case studies on Mental Disorders (MDs): Autism Spectrum Disorder, Eating Disorders, Major Depressive Disorder (2019-2021)
A second round of case studies on mental disorders was launched on 18th January 2019, focusing on Eating Disorders (ED) and Major Depressive Disorder (MDD).
EBC and the European Psychiatric Association (EPA) will work on these case studies on unexplored therapeutic areas, “Major Depressive Disorder (MDD)” and “Eating Disorders”, including the new topic of “continuity of care across age groups and services” (inpatient psychiatric care and outpatient mental health care).
In addition, the kick-off meeting for a new case study on Autism Spectrum Disorder (ASD) took place on 15th May 2019.
Click here to download the VoT2 poster.
Toward earlier diagnosis and treatment of rare neurological disorders: the value of coordinated care and specialist centers
Back to project homepage