EBC Brainy Insights
EBC Brainy Insights, Week of 4 May 2020
EBC Brainy Insights, Week of 4 May 2020
The Value of Treatment (VoT) project, a 2-year study initiated by the European Brain Council (EBC) in 2018, has been highlighted in the European Reference Network for Rare Diseases (ERN) Newsletter that is sent on a quarterly basis by the Directorate-General for Health & Food Safety of the European Commission. According to the European Reference Network on Rare Neurological Diseases (ERN-RND), there are 500,000 people living with rare [...]
The EBC Newsletter for April 2020 can be accessed here.
EBC Brainy Insights, Week of 27 April 2020
The new decade started out as any other but rapidly unfolded into a scenario that the world will remember for decades to come. What many in Europe and the western world viewed as an isolated incidence of a novel coronavirus in China and dotted across neighbouring Asian countries – [...]
The public webcast “COVID on campus: Will R&D ecosystems survive?”, organized by Science|Business, was held on Wednesday 22nd April 2020. This online meeting assessed the disruption brought by the Covid-19 crisis on public and private organizations involved in research and innovation and explored solutions for addressing the impact on R&D systems. First to speak was [...]
During this time of COVID-19, organisations across Europe and the world are working hard to better understand the virus and how it impacts not only society as a whole but the more at-risk groups such as those living with chronic conditions. EBC invites everyone to please have a look through the various ongoing consultations [...]
EBC Brainy Insights, Week of 20 April 2020
EFNA has published a message from those living with neurological disorders who may be directly at increased risk from COVID-19, including through disruptions in their healthcare provision. In the statement, EFNA explores three challenges to face this situation without neglecting patients with brain disorders: ensuring equitable access to treatments, services and supports, reinvigorating neuroscience [...]
EBC has endorsed the Alzheimer Europe's calling for caution and sound ethical principles in the current triage guidelines, which would exclude people with dementia from life-saving access to ventilators during the COVID-19 pandemic. Alzheimer Europe emphasises its commitment to a human rights based approach to dementia and its firm belief that after diagnosis, people with [...]