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World Orphan Drug Congress 2025

27.10.2025 - 29.10.2025

27 – 29 October 2025

Amsterdam, The Netherlands

World Orphan Drug Congress 2025

Name: World Orphan Drug Congress 2025
Start: 2025-10-27T00:00:00+00:00
End: 2025-10-29T23:59:59+00:00
Location: Amsterdam, The Netherlands

Strategy, Advocacy & Partnering For The Global Orphan Drug Industry

The World’s Largest Rare Disease Event

The World Orphan Drug Congress is the largest and most established orphan drug & rare disease meeting of its kind across the globe. From cell and gene therapy, genetic testing, and market access, to real world evidence, this one meeting covers the whole orphan drugs value chain where science, government and manufacturers all come together to create ground-breaking progress.

The European Brain Council (EBC) will take part in the congress in the following session:

Rethinking Standards of Care: An Example of Myasthenia Gravis

28 October / 14:10

In this session sponsored by UCB, Vinciane Quoidbach, EBC Research Project Manager and Co-lead of the EBC Rethinking Myasthenia Gravis project, will discuss how Myasthenia Gravis, and brain health more broadly, are gaining greater recognition. Our project will make recommendations that align with several ongoing initiatives and institutions working to improve brain health in the rare disease space. Importantly, what the project produces will give clinicians and patient advocates the tools and evidence they need to drive change at a national and even local level.

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