The session — featuring EBC President, Prof. Suzanne Dickson; Vice President, Prof. Claudio Bassetti and Board Member, Dr Orla Galvin — analysed the current state of advocacy in the brain space at the European level and explore not only the importance of the work being done but the potentials for strengthened collaboration and the needs going forward, for the benefit of all within the brain space, particularly with a spotlight on neurology and neurological conditions (including the clinicians that treat them and the patients that live with them). The discussion covered the work being done by EBC and its key member organisations (in particular, EAN), the inclusion of the patient voice, advocacy and policy work being done at the global and European levels and the added value of speaking with one voice.
Furthermore, a Scientific Theatre session on “Rethinking the management of brain disorders: Alzheimer’s disease & migraine” took place on 1 July 2023. Speakers Dr. Kristian Steen Frederiksen, Co-chair, EAN Scientific Panel Dementia and Cognitive Disorders, European Academy of Neurology; Dr. Michela Tinelli, Assistant Professorial Research Fellow and NIHR SSCR Leadership Fellow, London School of Economics, London School of Economics; and Dr. Vinciane Quoidbach, Public Health & Policy Research Project Manager, European Brain Council presented how to rethink the way we manage Alzheimer’s disease and migraine in terms of their prevention, detection and diagnosis. Follow the presentations via the live Twitter thread.
EBC Public Health & Policy Research Project Manager, Dr. Vinciane Quoidbach, also gave a poster presentation on “The role of patient representatives in the optimization of Patient Care Pathways at European level: the PKU experience” on 4 July 2023, covering the PKU study within the Value of Treatment project.
Lastly, EBC was featured in the Neurohood of the Exhibition Hall, where we were able to speak with congress participants and answer questions on our ongoing work.
See you in Helsinki next year!