The International Congress for Ataxia Research (ICAR), to be held on 1-4 November 2022, will take place in Dallas, Texas (USA). This Congress will combine the best of our organizations’ popular research meetings, including NAF’s Ataxia Investigators Meeting (AIM) and the International Ataxia Research Conference (IARC), co-led by FARA, Ataxia UK, GoFAR, and other partner [...]
The Value of Treatment (VOT) research project, initiated and coordinated by EBC, aims to identify treatment gaps and causing factors along the care pathway and propose solutions to address them; assess health gains and socio-economic impacts resulting from best practice healthcare interventions, in comparison with current care or no treatment. Furthermore, its objective is to [...]
On 15 May 2019, a joint meeting was held in Brussels for the new case studies of the 2nd round of the EBC Value of Treatment project. Working groups in the fields of Mental Disorders: Eating Disorders (Anorexia Nervosa), Major Depressive Disorder and Autism Spectrum Disorder* and Rare Neurological Disorders: Ataxia, Dystonia and Phenylketonuria (PKU) have [...]
On 12 July 2017, the meeting of the MEP Interest Group on Brain, Mind and Pain, and the Interest Group on Mental Health, Well-being and Brain Disorders took place in the European Parliament (Brussels) in partnership with EBC. The event was hosted by MEPs Jana Žitňanská, Marian Harkin, Michał Boni and Marek Plura. The well-attended and [...]
