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The Essential Tremor Conference seeked to raise awareness about essential tremor, a prevalent brain disorder impacting over 60 million people worldwide. Given the European Commission’s prioritisation of health, understanding the specific societal costs of essential tremor on European patients is crucial, especially compared to more recognised brain disorders like Parkinson’s, which receives significant attention at the EU level. The summit aimed to shed light on the importance of giving essential tremor the attention it deserves by delving into patient experiences and their detrimental effects on their quality of life. Exploring avenues for achieving this heightened awareness, the summit will advocate for an overarching holistic approach to address the unique challenges essential tremor poses at the EU policy level.

At the event, a panel discussion featuring Frederic Destrebecq, the Executive Director of EBC took place.

Additionally, during the event, EBC signed a Joint Declaration. This declaration marks a significant step forward in collective efforts to prioritize Essential Tremor on the European agenda within the framework of the European Health Union for the upcoming mandate.

The event was organized and hosted by MEPs Radka Maxová (Czech Republic; S&D) and Alex Agius Saliba (Malta; S&D)  and took place on 20 March from 14.30 to 16.30 CET in the European Parliament.

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