Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases

The European Conference on Rare Diseases & Orphan Products (ECRD) stands as Europe’s leading patient-driven event for shaping rare disease policy.

EURORDIS draws upon the power of this distinctive community by convening patients, advocates, policymakers, industry leaders, clinicians, regulatory authorities, and government representatives from Member States. Through this collaboration, the organisation drives purposeful policies that enhance quality of life for rare disease patients and their families.

ECRD 2026 will gather more than 500 attendees in Prague, with over 300 additional participants taking part virtually. The conference’s hybrid approach creates an exceptional opportunity for engagement and partnership, allowing the broader rare disease community to share insights, learn from one another’s experiences, and forge meaningful collaborations.