With a new Rare Disease International Day coming up, Bamberg Health in collaboration with key actores of the industry, is organizing the Europe Rare Disease Summit in Madrid (Spain) and virtually.

The objective of the Summit was to discuss the key trends and topics relating to diagnostics and treatments for Rare Diseases, as well as the challenges to timely and equitable access to orphan drugs, and European initiatives for access, research and innovation programs to improve the lives of patients with rare diseases. The event wil be attended by governmental authorities and regulatory agancies from across the region, large public and private hospital groups, research centers, pharmaceutical and patient associations, scientifc societies and health professionals from all over the region.

EBC was delighted to be invited as a contributor this year, with EBC Research Project Manager, Vinciane Quoidbach, who took part in the 1st Panel ‘National Plans, Policies and Government Initiatives Against Rare Diseases’ from 09:15 to 10:00.

To access the program and whole agenda please click here