The objective of this survey is to gain an understanding of the biggest issues affecting participants in their daily lives and also to learn about their relationships with and opinion of patient groups.

Information gathered from this survey will be used in the development of EFNA’s future workplans, ensuring that they and their member organisations are working in the best interests of those they represent.

Please help disseminate the survey by sharing it with your network – via email, newsletters and social media – and encourage others to do the same!

Findings from the survey will be published on World Brain Day 2018 (July 22nd) and will be used to raise awareness among the public, health professionals and policy makers.

If you would like any additional information please do not hesitate to contact communications@efna.net

The survey will remain open until May 21.

Thank you for your support!

About the European Federation of Neurological Associations (EFNA):

The European Federation of Neurological Associations [EFNA] is an umbrella group representing pan-European neurology patient groups.

Our slogan ‘Empowering Patient Neurology Groups’ encapsulates our goals as an Association. We strive to add capacity to our members – allowing them to be the most effective advocates possible in their own disease specific areas.

EFNA’s aims are:

• To improve the quality of life of people with neurological disorders, their families and carers
• To promote rapid and accurate diagnosis, appropriate treatment, rehabilitation and care for people with neurological illnesses
• To promote better access to information which is accurate and easy to understand
• To promote public awareness and understanding of neurological conditions
• To eliminate prejudice and stigma associated with neurological disorders
• To increase priority given to neurology by policy and decision makers and by health care providers.

CONTACT:

Enquiries:
Elizabeth Cunningham – communications@efna.net

Website:
www.efna.net

Twitter:
@EU_Neurology

Facebook:
https://www.facebook.com/European-Federation-of-Neurological-Associations-173781099807815/

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The post EFNA launch ‘Survey of Young Europeans with Neurological Conditions’ appeared first on European Brain Council (EBC).

EBC Honorary Member Jerzy Buzek sent the message that ‘European countries cannot tackle brain disorders alone’ and once more supported our Call to Action around the idea of setting up an European, as well as national plans of managing brain disorders.

Find his article here.

MEP Marek Plura, himself a patient advocate, wrote in support of the Under the Umbrella campaign – launched in March by our members from the European Federation of Neurological Associations (EFNA) in order to build better understanding of neurological disorders.

Find his article here.

The post EBC featured in TPM: Tackling brain disorders in Europe appeared first on European Brain Council (EBC).