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DTSTART;VALUE=DATE:20261023
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UID:61315-1792713600-1792799999@www.braincouncil.eu
SUMMARY:Patient Community Day 2026
DESCRIPTION:Date: 23 October 2026 \nLocation: Toronto\, Canada & Online \nPatient Community Day is a free event organised by ECTRIMS and dedicated to people living with multiple sclerosis (MS)\, neuromyelitis optica spectrum disorder (NMOSD)\, myelin oligodendrocyte glycoprotein antibody-associated disease (MOGAD) and related neurological conditions\, as well as their families\, caregivers and the wider community. Held alongside the annual ECTRIMS Congress\, the event aims to make the latest scientific developments accessible through clear\, patient-friendly presentations delivered by leading experts. \nDesigned to be inclusive and accessible\, Patient Community Day is available both onsite and online with free registration. The programme will be delivered in English with AI-powered simultaneous translation in more than 50 languages\, while session recordings with subtitles will be made available one week after the event\, allowing participants worldwide to access the latest research and discussions. \nAs a Supporting Partner\, the European Brain Council (EBC) is pleased to promote this initiative\, which aligns with our commitment to improving access to reliable scientific information and empowering people living with neurological conditions through education\, collaboration and knowledge exchange. \nThe full programme for Patient Community Day 2026 is now available. Explore the sessions\, speakers and key topics by visiting the official programme page. \nRegister HereDiscover the full programme
URL:https://www.braincouncil.eu/event/patient-community-day-2026/
LOCATION:Toronto\, Canada
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UID:60710-1793001600-1793039400@www.braincouncil.eu
SUMMARY:Irish Presidency Event - Breaking Down Silos: A Value-Driven Future for Brain Health and Care
DESCRIPTION:Date: 26 October 2026\, 09:00 – 18:00 \nLocation: Irish National Stud & Gardens\, Kildare\, Ireland \nA Value-Driven Future for Brain Health & Care is an interactive Policy World Café that will bring people with lived experience and carers together with policymakers\, healthcare professionals\, researchers\, patient advocates\, funders\, innovators and industry representatives to shape practical recommendations for the future of brain health in Ireland and across Europe. \nTaking place in the context of the Irish Presidency of the Council of the European Union – and building on the momentum of key national and European gatherings – it will put diverse voices at the same table to move beyond discussion towards action. Through four facilitated\, participatory challenges on lived experience\, prevention\, research-to-impact and value-driven care\, participants will identify shared priorities\, develop concrete recommendations and bring them directly into a closing policy dialogue. \nThe event will demonstrate how a more connected\, people-centred approach to brain health can improve outcomes\, strengthen health-system resilience and support coordinated progress across Europe. \nUseful ResourcesJoin Us OnlineProgrammeJoint declaration  \n  \nCo-OrganizersThis event is supported by Catalight \nEarly Programme09:00 - 09:20 Welcome & Opening\n09:00 – 09:05 Welcome \nThis opening will set the ambition for the day: to explore how Ireland and Europe can build more connected\, people-centred and sustainable approaches to brain health and care. This World Café is designed as a shared working session\, inviting participants to contribute practical experience and ideas rather than simply listen. \n\nLisa Burke\, Master of Ceremony\nNina Carberry\, Member of the European Parliament\n\n  \n09:05 – 09:20 Fireside Chat \nThis conversation will bring the day’s themes to life through personal experience\, showing why brain health policy and care must start with the realities of people living with a condition and those close to them. \n\nHelen Rochford-Brennan\, Board member\, Alzheimer Society of Ireland\nNina Carberry\, Member of the European Parliament\n\n09:20 - 10:30 Challenge #1 - A Focus on Lived Experience: Understanding Unmet Needs and Improving Outcomes\n09:20 – 09:25 Introduction \nThis introduction will ground the discussion in the diverse realities of living with neurological and mental health conditions\, including the experience of families and carers\, by identifying the most persistent unmet needs across the care journey – from recognition and diagnosis to treatment\, support\, inclusion and long-term care – and prompt participants to consider where policy and services are falling short. \n\nEamon McPartlin\, Chair\, Neurological Alliance of Ireland\n\n09:25 – 10:05 Group Discussion \n10:05 – 10:30: Panel Discussion \nThe panel will react to the recommendations emerging from the tables\, testing how they could be implemented in Ireland and supported at European level. Panellists will discuss which actions are most urgent\, who should lead them\, and how people with lived experience can move from being consulted to being genuine partners in decision-making. \n\nKaran Jatlla\, Head of the Centre for Applied and Inclusive Health Research and Dementia Lead\, University of Wolverhampton\nOrla Galvin\, Executive Director\, European Federation of Neurological Associations\nCarmel Geoghegan\, Chair\, Dementia Ireland\n\n10:30 - 11:00 Coffee Break11:00 - 12:15 Challenge #2 - Prevention and Early Intervention Across the Life Course\n11:00 – 11:10 Introduction \nMoving on the second challenge of the day\, this introduction will explore how brain health can be protected and promoted from early life through older age\, recognising the role of education\, work\, social connection\, physical health\, environment and lifestyle. It will encourage participants to consider prevention and early intervention not as isolated health messages\, but as a shared responsibility across sectors and throughout the life course. \n\nIracema Leroi\, Professor in Geriatric Psychiatry and Site Director\, Global Brain Health Institute (GBHI)\, Trinity College Dublin\n\n11:10 – 11:55 Group Discussion \n11:55 – 12:15 Panel Discussion \nThe panel will then examine which prevention and early-intervention measures could realistically be scaled\, financed and embedded into existing systems. Speakers will exchange on to the tables’ priorities by identifying feasible policy levers\, partners and first steps\, while ensuring that prevention does not widen existing inequalities. \n\nIracema Leroi\, Professor in Geriatric Psychiatry and Site Director\, Global Brain Health Institute (GBHI)\, Trinity College Dublin\nJohn Francis Leader\, Vice-President\, European Federation of Psychologists’ Associations\nNorman Delanty\, Consultant Neurologist\, Beaumont Hospital\n\n12:15 - 12:30 Wrapping Up the Morning Discussion\n\nLisa Burke\, Master of Ceremony\n\n12:30 - 14:00 Lunch Break13:50 - 13:55 Welcome Back\nThe afternoon will shift from identifying needs and opportunities to examining the systems\, partnerships and investments required to deliver change. \n13:55 - 14:05 Keynote – Connecting European Policy with Community Needs\nDrawing on his work on regional development\, accessibility and disability inclusion\, MEP Ciaran Mullooly will reflect on the connections between timely care\, community support\, housing\, transport and participation – and the partnerships needed to turn research and political ambition into tangible improvements across Ireland and Europe. \n\nMEP Ciaran Mullooly\, Member of the European Parliament\, Independent\n\n14:05 - 14:15 Keynote – Brain Health: Cross-Party Leadership for Lasting Change\nDeputy Colm Burke will reflect on how cross-party leadership can make brain health a sustained political priority in Ireland\, connecting the brain community’s recommendations with national decision-making and European opportunities for action. \n\nDeputy Colm Burke\, Chair\, Oireachtas Cross Party Group on Neurological Health\n\n14:15 - 15:30 Challenge #3 - From Research to Impact: Innovation\, Equity and Communities\n14:15 – 14:25 Introduction \nThis introduction will examine how Ireland’s and Europe’s strengths in brain research\, innovation and digital health can translate more quickly and equitably into better prevention\, diagnosis\, treatment and care. It will highlight the importance of involving people with lived experience\, clinicians\, communities and policymakers throughout the research and innovation pathway – not only once results are available. \n\nGianpiero Cavalleri\, Deputy Director\, FutureNeuro Research Ireland Centre; Director\, Human Genetic Variation Research Group\nNorman Delanty\, Consultant Neurologist\, Beaumont Hospital\n\n14:25 – 15:10 Group Discussion \n15:10 – 15:30 Panel Discussion \nThe panel will explore how the recommendations can be converted into durable mechanisms for collaboration across researchers\, funders\, health services\, communities and policymakers. Speakers will focus on actionable ways to close the gap between discovery and implementation\, including the role of research funding\, data\, skills\, public involvement and policy readiness. \n\nGianpiero Cavalleri\, Deputy Director\, FutureNeuro Research Ireland Centre; Director\, Human Genetic Variation Research Group\nFinnian Hanrahan\, Scientific Programme Manager\, Research Ireland\nLynn McDonald\, Member\, FutureNeuro PPI on Parkinson’s Disease\n\n15:30 - 15:45 Tea Break15:45 - 17:00 Challenge #4 - Redefining Value in Care for Brain Disorders\n15:45 – 15:55 Introduction \nThis introduction will challenge participants to consider value beyond short-term cost or activity measures: better outcomes\, independence\, participation\, dignity\, support for carers and more resilient health and social-care systems. It will frame integrated\, person-centred care as an investment in wellbeing\, social inclusion and sustainable public services. \n\nIrene Hartigan\, Senior Researcher\, University of Cork; Nurse\n\n15:55 – 16:40 Group Discussion \n16:40 – 17:00 Panel Discussion \nThe panel will consider what a value-driven approach to brain care would mean in practice for service providers\, health-system leaders\, policymakers and funders. Speakers will respond to the recommendations by identifying where existing structures can be improved\, what new incentives may be needed and how progress should be measured from the perspective of people living with brain disorders. \n\nRichard Stables\, Information and Support Manager\, Headway Brain Injury Services and Support\nRichard Walsh\, Clinical Lead for the National Deep Brain Stimulation Service\, Mater Hospital; Co-Lead\, of the National Ataxia Clinic\, Tallaght University Hospital\nSusan Armiger\, President & CEO\, Catalight\nLorna Kerin\, Regional Lead for Patient & Service User Engagement\, HSE Dublin and South East\n\n17:00 - 17:50 Panel Discussion: From Momentum to Action\nAs the day draws to a close\, this panel brings together political leadership\, the voice of people living with neurological conditions and psychological expertise to ask how ambition can become meaningful change. Deputy Colm Burke\, Magdalen Rogers and Frédéric Destrebecq will reflect on the day’s recommendations and explore the practical policy\, care and community actions needed to make brain health a sustained priority in Ireland and across Europe. \n\nDeputy Colm Burke\, Chair\, Oireachtas Cross Party Group on Neurological Health\nMagdalen Rogers\, Executive Director\, Neurological Alliance of Ireland\nFrédéric Destrebecq\, Executive Director\, European Brain Council\n\n17:50 - 18:00 Conclusion\nThis conclusion will summarise the day’s shared direction and confirm how the recommendations will be taken forward after the event – reinforcing that evidence\, partnerships and solutions exist\, and the next required step is coordinated action. \n\nFrédéric Destrebecq\, Executive Director\, European Brain Council\nSusan Armiger\, President & CEO\, Catalight\n\n18:30 - 19:30 Reception\nThe reception will offer an informal space to continue the conversations begun during the World Café\, connect across sectors and identify potential partnerships. Participants are encouraged to use this time to test ideas\, meet collaborators and discuss how they can contribute to the next steps. \nImportant Information & ResourcesWhat to expectWhat is this event about?What is a Policy World Café?Do I need to be an expert?What is this event about?A Value-Driven Future for Brain Health & Care is an interactive Policy World Café taking place on 26 October 2026 at the Irish National Stud in Kildare. \nThe event brings people with lived experience\, carers\, patient advocates\, policymakers\, clinicians\, researchers\, funders\, innovators and industry representatives around the same table. Together\, participants will identify practical ways to improve brain health and care in Ireland and across Europe – helping translate shared ambition into concrete recommendations for action.What is a Policy World Café?A Policy World Café is a structured\, participatory discussion format. Rather than simply listening to presentations\, participants work in small\, mixed roundtables to exchange experiences\, identify challenges\, develop ideas and agree on recommendations. \nEach table will include a diverse mix of perspectives\, supported by a facilitator or table host. The aim is to ensure that every participant has an opportunity to contribute and that discussion leads to practical\, usable outputs – not just conversation.Do I need to be an expert?\nNo. This event is designed around the principle that meaningful policy and care solutions require many forms of expertise. \nWhether you bring lived experience of a brain condition\, experience as a carer\, clinical or research knowledge\, policy insight\, community expertise or an innovation perspective\, your contribution is valued. You do not need to prepare a formal presentation or have specialist knowledge of every topic. \nHow the day worksWhat will the format be?Will I stay with the same group all day?How will the discussions be facilitated?What will be asked of me?What will the format be?\nThe day combines short scene-setting contributions\, facilitated roundtable discussions and expert-panel reflections. \nFor each of the four challenges\, participants will: \n\nHear a brief introduction to frame the issue.\nJoin a facilitated roundtable discussion with a mixed group of participants.\nIdentify the most important barriers and opportunities.\nAgree on priorities and develop practical recommendations.\nShare key messages with an expert panel\, which will respond to common themes and consider how recommendations can be taken forward.\n\nThe day will conclude with a final panel discussion\, From Momentum to Action\, bringing together the key recommendations developed across the four challenges. \nWill I stay with the same group all day?\nParticipants will be assigned to roundtables to ensure that each table brings together a broad mix of experiences and expertise. Further details on table arrangements and the final flow of the day will be shared closer to the event. \nHow will the discussions be facilitated?\nEach roundtable will have a host or facilitator to keep the conversation focused\, inclusive and action-oriented. They will help the group move from sharing experiences to identifying a clear problem\, a concrete opportunity and recommendations that can realistically be implemented. \nThe discussions will follow a simple structure: \n\nStart: identify the issue that matters most.\nExplore: map the main barriers and opportunities.\nPrioritise: agree on the most urgent issue and most promising opportunity.\nRecommend: develop practical proposals\, including who needs to act.\nShare: prepare two to three key takeaways for the panel discussion.\n\nWhat will be asked of me?\nWe ask participants to come ready to share their perspective\, listen openly to others and help shape practical solutions. \nYou will not be asked to give a formal speech. Instead\, you may be invited to contribute to questions such as: \n\nWhat is the most important problem we need to address?\nWhat is already working\, and where is the strongest opportunity for progress?\nWhat should change in practice\, policy\, research or care?\nWho needs to lead action – and who needs to be involved?\nWhat would make the biggest difference for people affected by brain conditions?\n\nBy the end of each discussion\, each table will aim to produce: \n\nOne clear problem statement.\nOne concrete opportunity.\nTwo prioritised recommendations.\nA proposed lead actor and key partners.\nAn immediate first step towards implementation.\nOne key implementation risk and a possible way to address it.\n\nThe four challengesLived experience & Unmet NeedsPrevention and early interventionFrom research to impactRedefining value in careLived experience & Unmet Needs\nThis session will explore how people with lived experience and carers can be placed at the centre of policy and care. Discussions will consider unmet needs\, barriers to quality of life and what needs to change from diagnosis through to long-term support and care. \nGuiding Questions: \n\nHow can we place lived experience at the centre of policy and care?\nWhat are the most pressing unmet needs for people living with brain disorders today – from diagnosis to long-term care?\nWhat barriers most affect quality of life for people living with neurological or mental disorders?\n\nPrevention and early interventionThis challenge will focus on how prevention and early intervention can be strengthened at every stage of life. Participants will consider how citizens can be supported to take an active role in brain health\, and how education\, environment and lifestyle can contribute to better outcomes. \nGuiding Questions: \n\nHow can we improve prevention and early intervention across the life course?\nHow can we empower citizens to become active participants in brain health?\nHow can we better address education\, environment and lifestyle factors?\n\nFrom research to impact\nThis session will consider how to better connect research\, innovation\, communities and decision-makers so that advances reach people faster and more equitably. Discussions will address digital and innovation enablers\, engagement with local actors and communities\, and opportunities to improve health equity in Ireland and Europe. \nGuiding Questions: \n\nHow can we strengthen collaboration between researchers\, clinicians\, policymakers\, industry and communities to accelerate brain research and impact?\nHow can research be better shaped by local actors\, patient communities and lived experience to improve relevance and reach?\n\nRedefining value in care\nThe final challenge will explore what “value” in brain health and care should mean for people\, families\, clinicians\, health systems and society. Participants will consider how care pathways can be improved and how more integrated\, person-centred care can support wellbeing and quality of life. \nGuiding Questions: \n\nHow can we make sure that brain health is recognised as an important part of living well and maintaining a good quality of life?\nHow can we make it easier for people with brain conditions to get the right care\, at the right time\, from the right services?\n\nSupporting Organizations
URL:https://www.braincouncil.eu/event/breaking-down-silos-through-lived-experience-a-value-driven-future-for-brain-health/
LOCATION:Private: Irish National Stud\, Brallistown Little\, Tully\, co. Kildare\, R51 AP20\, Ireland
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ORGANIZER;CN="European Brain Council":MAILTO:advocacy@braincouncil.eu
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