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BEGIN:VEVENT
DTSTART;VALUE=DATE:20240606
DTEND;VALUE=DATE:20240610
DTSTAMP:20260422T235652
CREATED:20240313T092102Z
LAST-MODIFIED:20240409T134041Z
UID:53412-1717632000-1717977599@www.braincouncil.eu
SUMMARY:2024 European Elections
DESCRIPTION:While brain disorders cost the European Union an estimated €800 billion every year (a number widely considered to be outdated and much higher as of 2024)\, we have yet to have a full understanding of their underlying mechanisms and of the brain itself\, mainly due to how incredibly complex this organ is. Consequently\, a large number of brain conditions remain without a disease-modifying therapy or cure. \nInstead of divesting in a cost\, to meet this growing burden\, policymakers and society at large should view the prioritization and support of brain research as an investment into prevention\, wellness and optimization\, creating a better future for each and every one of their constituents. Concerted action to improve access to prevention\, effective and timely diagnosis\, treatment\, rehabilitative and supportive care is sorely needed to achieve potential savings and improve EU citizens’ quality of life. Brain conditions\, neurological and mental alike\, must be made an European priority\, through both policymaking and economic prioritisation. \nThe upcoming 2024 European Election is thus a crucial milestone for the entire brain community. By participating in the electoral process\, we can shape the future of brain health\, research\, and innovation in the EU\, ultimately leading to better outcomes for individuals and societies alike. On this page\, you will find relevant materials to help you engage in this process\, and making sure the voice of our community is heard. \n2024 Elections ManifestoGlobal Call to actionPledge for scienceBetween 6–9 June 2024\, millions of Europeans will participate in shaping the future of European democracy on the occasion of the European elections. \nIt is a unique moment when we can all collectively decide on the future of the European Union. Voting is always important\, be it at local\, national or European level. It is an excellent opportunity to have your say on topics you care about. \nIt can be easy to forget how many people are impacted by the outcome of the European elections. The European Parliament adopts laws that affect everyone: large countries and small communities\, powerful companies and young start-ups\, the global and the local. \nEU laws tackle most people’s priorities: the environment\, security\, migration\, social policies\, consumer rights\, economy\, rule of law and many more. Today\, every important national topic also has a European angle. \nYour vote will decide which Members of the European Parliament will represent you in preparing new laws and will influence the election of the European Commission. These decisions will shape your daily life and that of many others. \nUseful ResourcesFor privacy reasons YouTube needs your permission to be loaded. For more details\, please see our Privacy Policy.I AcceptGeneral InformationWhat europe does for meRemind me to voteCurrent Projects funded by the European UnionEuropean Partnership for Brain HealthTao2026-01-29T12:04:20+01:00\n				\n	\n\n				\n		\n								\n								\n		\n						\n	\n\n\nEuropean Partnership for Brain HealthEU fundedHEREDITARYDominika Suchonova2026-02-13T11:46:33+01:00\n				\n	\n\n				\n		\n								\n								\n		\n						\n	\n\n\nHEREDITARYEU fundedETERNITYDominika Suchonova2024-02-14T15:23:04+01:00\n				\n	\n\n				\n		\n								\n								\n		\n						\n	\n\n\nETERNITYEU fundedNanoplatforms for NeuroscienceHelena Kousi2025-06-25T13:53:00+01:00\n				\n	\n\n				\n		\n								\n								\n		\n						\n	\n\n\nNanoplatforms for NeuroscienceEU funded
URL:https://www.braincouncil.eu/event/2024-european-elections/
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BEGIN:VEVENT
DTSTART;TZID=UTC:20240624T100000
DTEND;TZID=UTC:20240624T120000
DTSTAMP:20260422T235652
CREATED:20240617T112719Z
LAST-MODIFIED:20240617T113332Z
UID:54610-1719223200-1719230400@www.braincouncil.eu
SUMMARY:2024 Thematic Networks: Pitch webinar - Meet the leaders\, learn about their proposals\, EUHPP Live Webinar
DESCRIPTION:The European Commission is organising the 2024 Thematic Networks Pitch webinar – Meet the leaders\, learn about their proposals on June 24\, 2024. The following four Thematic Networks will be presented: \n\n“Advancing Precision Medicine for Europe’s Cancer Patients with AIpowered Imaging”\n“Profiling Cancer Genomes using AI and Natural Language Processing – Methodologies for Hotspot Identification”\n“Beyond Boundaries: A Global Continuum for healthy generations”\n“Towards an EU Coordination Plan for the Brain”\n\nThis will be the opportunity for EBC to explain the goals and scope of its new Thematic Network\, Towards an EU Coordination Plan for the Brain. More details can be found on the European Commission website\, or by clicking on the button below. \nMore information & Agenda
URL:https://www.braincouncil.eu/event/2024-thematic-networks-pitch-webinar-meet-the-leaders-learn-about-their-proposals-euhpp-live-webinar/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20240625
DTEND;VALUE=DATE:20240630
DTSTAMP:20260422T235652
CREATED:20240103T133927Z
LAST-MODIFIED:20240605T082637Z
UID:51270-1719273600-1719705599@www.braincouncil.eu
SUMMARY:FENS Forum 2024
DESCRIPTION:The Federation of European Neuroscience Societies (FENS)\, the Austrian Neuroscience Association (ANA) and the Hungarian Neuroscience Society are delighted to welcome you to the FENS Forum 2024\, taking place in Vienna\, Austria\, from 25-29 June 2024. \nThe FENS Forum is Europe’s largest neuroscience congress\, covering all areas of neuroscience from basic to translational research. FENS Forum 2024 will feature an exciting programme of plenary and special lectures\, scientific symposia\, technical workshops\, special interest events\, career development and networking opportunities and so much more! \nEBC looks forward to being part of the exhibition area and holding the following sessions at the Forum: \n\nPrioritizing Brain Health in Youth: Bringing Neuroscience to Society and Informing Policy\, Mini Conference\, 25 June 2024\, 10:00-12:00\nDiscover the European Brain Council at the FENS Booth\, 26 June 2024\, 13:30-14:15\nEnhancing Global Partnerships in Brain Research\, Networking Reception\, 27 June\, 18:45-20:15\n\nFind out more
URL:https://www.braincouncil.eu/event/fens-forum-2024/
LOCATION:Messe Wien Exhibition & Congress\, Messepl. 1\, Wien\, 1020\, Austria
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BEGIN:VEVENT
DTSTART;TZID=UTC:20240625T100000
DTEND;TZID=UTC:20240625T120000
DTSTAMP:20260422T235652
CREATED:20240112T073030Z
LAST-MODIFIED:20240610T111734Z
UID:51516-1719309600-1719316800@www.braincouncil.eu
SUMMARY:Prioritizing Brain Health in Youth: Bringing Neuroscience to Society and Informing Policy | 2024 FENS Forum Mini Conference
DESCRIPTION:EBC is pleased to hold a Mini Conference ‘Prioritizing Brain Health in Youth: Bringing Neuroscience to Society and Informing Policy‘ at the upcoming FENS Forum. The event will take place on 25 June 2024 at 10:00-12:00. \nLocation: HALL B\, Messe Wien Exhibition & Congress Center\, Vienna Austria \nAccording to OECD half of the population will have to contend with mental health problems at some point in their life. Two-thirds of mental health disorders manifest before age 25. Good brain health plays a significant role in an individual’s well-being and profoundly impacts the collective economy and society. Today there is an urgent action needed on failing youth mental health. Neuroscience and brain development are key to address the situation. Understanding neural circuits is critical for gaining insights into the etiology of mental disorders. Brain development does not stop at birth and some aspects continue throughout infancy\, childhood\, and adolescence\, allowing the full development of cognitive functions. Different determinants related to physical health\, healthy environments\, safety and security\, life-long learning\, and social connection as well as access to quality services influence the way our brains develop\, adapt\, and respond to stress and adversity. Ongoing progress in neurobiology and cognitive neuroscience allow the design of better prevention and intervention strategies to help avoid brain deficits and/or limit their impact and maintain brain health.   \nAlthough effective early detection and interventions exist\, there are numerous unmet needs along the mental health care pathways. Navigating the mental health services system is often complex for patients and families due to fragmented services and discontinuity of care. Policies and programs to prevent and mitigate the negative impacts on schooling\, employment\, families\, and risky behaviors are also paramount. The European Commission’s communication on a comprehensive approach to mental health released in June 2023 is a step forward but requires more commitment to boost children and young adult’s mental health. The European Brain Council (EBC) and the Federation of European Neuroscience Societies (FENS) will convene a Mini Conference on 25 June at the upcoming FENS Forum 2024 in Vienna to address these challenges. The event will explore what the opportunities are of incorporating a transdiagnostic and biopsychosocial-informed perspective. The meeting will bring together neuroscientists\, clinicians\, researchers\, policymakers\, patients & caregivers to raise awareness on brain health\, bridging the gap between research\, policy\, and society.  \nFinal Programme and Speakers FENS\nDISCOVER THE PROGRAMME AND THE SPEAKERSAll FENS Forum participants can join the Mini Conference without extra registration. Registration for external participants has closed. Those that registered on time will have access to the FENS Forum 2024 for the whole day of 25 June 2024.
URL:https://www.braincouncil.eu/event/2024-fens-forum-mini-conference/
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240627
DTEND;VALUE=DATE:20240629
DTSTAMP:20260422T235652
CREATED:20240329T132819Z
LAST-MODIFIED:20240329T132819Z
UID:53773-1719446400-1719619199@www.braincouncil.eu
SUMMARY:10th European Alcohol Policy Conference
DESCRIPTION:About the event \nThe 10th European Alcohol Policy Conference (EAPC) is scheduled to take place in Ljubljana\, Slovenia\, on the 27th and 28th of June 2024. This conference is organized by Eurocare in collaboration with the Youth Health Organisation and will be hosted at the InterContinental Hotel (located at Slovenska cesta 59\, 1000 Ljubljana\, Slovenia). Additionally\, preceding the conference\, the Annual General Meeting of Eurocare members will convene in Ljubljana on the 26th of June. \nPolicymakers\, advocates\, researchers\, patients\, youth\, and health practitioners will gather in Ljubljana to address the challenges of reducing non-communicable diseases (NCDs) with a special focus on alcohol policies. \nEarly bird registration fees will commence at 250 EUR per participant. \nAim \nThe 10th European Alcohol Policy Conference serves as a vital platform for policymakers\, advocates\, researchers\, patients\, youth\, and health practitioners to collectively address the challenges of reducing non-communicable diseases (NCDs) by effectively managing their main risk factors\, with a special focus on alcohol policies. Through discussions on topics like the Commercial Determinants of Health\, interventions related to packaging and labelling regulations\, awareness campaigns\, and effective measures against corporate lobbying at EU and national level\, the conference aims to foster mutual learning and respect\, ultimately leading to comprehensive strategies to reduce NCDs. \nBackground \nBuilding upon the successes of its predecessors\, the 10th European Alcohol Policy Conference comes at a crucial time\, coinciding with significant developments such as the new EU mandate\, the continuation of the European Framework of Action on Alcohol 2022-2025\, the launch of the Member States Joint Action Prevent Non-communicable Diseases\, as well as international discussions on alcohol labelling within the Codex Alimentarius Commission. With mounting evidence showcasing the impact of commercial entities on health outcomes\, it’s imperative to address the complexities of alcohol policy within the broader context of NCD prevention. \nREAD MORE ABOUT THE EVENT
URL:https://www.braincouncil.eu/event/10th-european-alcohol-policy-conference/
LOCATION:Ljubljana\, Slovenia
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BEGIN:VEVENT
DTSTART;TZID=UTC:20240627T184500
DTEND;TZID=UTC:20240627T201500
DTSTAMP:20260422T235652
CREATED:20240305T072651Z
LAST-MODIFIED:20240717T063927Z
UID:53232-1719513900-1719519300@www.braincouncil.eu
SUMMARY:Enhancing Global Partnerships in Brain Research | 2024 FENS Forum Networking Reception
DESCRIPTION:Location: HALL E\, Messe Wien Exhibition & Congress Center\, Vienna Austria \nAcross the globe\, society is facing brain challenges like never before. Brain disorders – neurological and mental alike – are widespread\, highly disabling and often difficult to treat. In fact\, it is estimated that up to one billion people worldwide live with a neurological condition and 970 million people around the world were living with a mental health disorder as of 2019\, with anxiety and depressive disorders the most common. These conditions represent a high individual\, social and economic burden and contribute to the global disease burden and disability. \nImproving the health and well-being of citizens has become the top priority for many governments and brain health should not be left behind. Enhancing global brain research collaboration can spur innovation and quicken effective outcomes to the benefit of people living with brain conditions everywhere. \nOver the last few years\, EBC has served as a convener for experts in the brain community to share best practices\, exchange ongoing work and align priorities to forge a joint path forward to understand and address the brain rather than in silos across continents. \nTo move past discussion and work towards explicit and tangible next steps in solidifying global efforts in brain research\, EBC is actively involved in engaging the community in relevant areas for action\, including advocating for the recognition of brain health as an urgent priority in planning for Global Action Plans and national brain health plans/strategies and the development of policy recommendations to guide national\, regional and global policymakers towards better addressing brain health in the future. Part of this is through direct engagement within the Coordination and Support Action BrainHealth\, launched at the end of 2023 to prepare the future European Brain Health Partnership. \nThis event\, aimed to bring the global brain research community together on the occasion of the FENS Forum to network and build synergies in an informal setting\, will also feature a short panel discussion with key stakeholders working across continents to unite the brain research community globally. \nEBC Networking Event at the FENS Forum 2024 - Final\nDownload the ProgrammeSpeakersGeorge BarettoIBRO Latin America Regional Committee (LARC) Dr George Barreto earned his PhD in Neuroscience (2009) from the Universidad Complutense Madrid (Spain) studying the effects of neurosteroids on reactive glia with traumatic brain injury. His Post-doctoral training in Neuroscience at Stanford University School of Medicine (2009-2011) focused on addressing the role of astrocytes activation following stroke and enhance astrocytic functions targeting neuronal protection. Nowadays Dr George Barreto is a Senior Lecturer (Associate Professor) in Cell Biology/Immunology in the Department of Biological Sciences\, University of Limerick (UL\, Ireland) and a member of the Health Research Institute from the same University. He is also the ERASMUS contact point within the Dept and member of the EDF Steering Committee and Events and Media subgroup\, the Chair of Action Plan subgroup in the Equality\, Diversity and Inclusion Forum Committee\, and the Athena Swan Steering Committee at UL. Dr Barreto is also a member of the IBRO Latin America Regional Committee (LARC) and served as President of the Colombian Neuroscience Society (COLNE) in 2014-2018. He has served in numerous grants panels and editorial boards and is nowadays the Section Editor in Neuroendocrinology for Pharmacological Research.\nHis main research interests are to better understand how natural and synthetic androgens and estrogens affect brain functions\, particularly on how these hormones control the mitochondrial functions in the healthy and diseased brain during lifespan in a sex-dependent manner (UN SDGs 3 and 5). \nUlrike BußhoffCoordinator\, CSA BrainHealth Dr. Ulrike Busshoff is Head of the International Health Research Department at the DLR Project Management Agency (DLR-PT)\, Germany. She oversees national\, European and international research funding programmes in the area of brain health and global health. Besides conceptualizing and executing research funding programs on behalf of the German Federal Ministry of Education and Research she is also responsible for overarching topics like patient and public involvement\, quality assurance in biomedical research\, and ethical issues. Dr. Busshoff is the coordinator of the ERA-Net NEURON (Network of European Funding for Neuroscience Research) that comprises ministries and funding agencies from 27 countries in and beyond Europe. Members in this network collaborate along a common research agenda\, and with support by the European Commission to jointly fund research\, networking and training activities in the area of neurological and mental disorders. Since 2023\, Dr. Busshoff is also the coordinator of the CSA BrainHealth. This EU funded network conceptualizes and prepares a European Partnership for Brain Health. This large-scale endeavour will support brain health research and innovation with the ultimate goal to preserve and promote brain health. She serves also as member of the Advisory Board EU-Africa PerMed\, an EU funded coordination and support action fostering joint projects in personalised medicine research between Europe and Africa. Dr. Busshoff holds a PhD in neurobiology from the University of Heidelberg\, including research stays in the Netherlands as well as South Korea. \nStephanie KramerDeputy Executive Director EBC Stephanie Kramer joined EBC in March 2016 within the projects team\, eventually making the move to heading the Communications\, Advocacy & Policy team until 2023. Aside from the day to day\, Stephanie’s role as Deputy Director continues to oversee the Communications & Advocacy work\, with a more strategic role focused on EBC’s global partnerships portfolio\, external relations and larger-scale advocacy events. \nStephanie holds an LLM in International Law from the University of Edinburgh\, and a BA in International Relations & Diplomacy from Schiller International University Heidelberg & Madrid. An expat since childhood\, before starting her career in the Brussels bubble she had previous communications\, external relations and project management experience at the United Nations headquarters in Vienna and private sector companies in the Netherlands and Chile. \nMahmoud Bukar MainaSociety of Neuroscientists of Africa (SONA) Dr Mahmoud Bukar Maina is an Independent Research Fellow Research Fellow at Sussex Neuroscience (UK) and visiting scientist at Yobe State University (Nigeria). He obtained a BSc in Human Anatomy from the University of Maiduguri\, Nigeria and a PhD in Neuroscience from the University of Sussex\, UK. His research majorly focuses on understanding the basic mechanism of disease in Alzheimer’s disease\, with a special focus on the role of Tau\, amyloid beta and APOE. Concurrently\, his work partly focuses on generating human-induced pluripotent stem cell-derived brain models from indigenous African populations to understand Dementia mechanisms.\nDr Maina is also passionate about open science and inspiring/training the next generation of African scientists. He recently established the Biomedical Science Research and Training Centre in Nigeria (BioRTC – www.BioRTC.com) to facilitate neuroscience research in Africa. In addition\, he is the Outreach Coordinator for TReND in Africa\, the founder of Science Communication Hub Nigeria and the African Science Literacy Network to increase access to science role models and public understanding of science in Africa. His work and science engagement activities have been supported by the Wellcome Trust\, Chan Zuckerberg Initiative\, Alzheimer’s Research UK and the University of Sussex. He has received many awards\, including the Royal Society of Biology Science Communication Award in 2017\, the young African of the year nomination for the Future Awards Africa\, the New England Biolabs Passion for Science Humanitarian Duty Award in 2019 and the 2022 ALBA-FKNE Diversity Prize for promotion of basic neuroscience in Africa. In 2020\, he was endorsed by the Royal Society as a Global Talent. \nJohn J. NgaiDirector NIH BRAIN Initiative Dr John J. Ngai\, Ph.D.\, is the Director of the NIH’s Brain Research Through Advancing Innovative Neurotechnologies®(BRAIN) Initiative. Dr. Ngai earned his bachelor’s degree in chemistry and biology from Pomona College\, Claremont\, California\, and Ph.D. in biology from the California Institute of Technology (Caltech) in Pasadena. He was a postdoctoral researcher at Caltech and at the Columbia University College of Physicians and Surgeons before starting his faculty position at the University of California at Berkeley. During more than 25 years as a Berkeley faculty member\, Dr. Ngai has trained 20 undergraduate students\, 24 graduate students and 15 postdoctoral fellows in addition to teaching well over 1\,000 students in the classroom. His work has led to the publication of more than 70 scientific articles in some of the field’s most prestigious journals and 10 U.S. and international patents. Dr. Ngai has received many awards including from the Sloan Foundation\, Pew Charitable Trusts\, and McKnight Endowment Fund for Neuroscience. As a faculty member\, Dr. Ngai has served as the director of Berkeley’s Neuroscience Graduate Program and Helen Wills Neuroscience Institute. He has also provided extensive service on NIH study sections\, councils and steering groups\, including as previous co-chair of the NIH BRAIN Initiative Cell Census Consortium Steering Group. Dr. Ngai oversees the long-term strategy and day-to-day operations of the NIH BRAIN Initiative as it strives to revolutionize our understanding of the brain in both health and disease. \nSuzanne DicksonPresident EBC \n\n\n\n\n\n\n\nProfessor Suzanne L Dickson is a neurobiologist and Professor of Neuroendocrinology at the University of Gothenburg. She graduated with a Ph.D. in Neuroendocrinology from the University of Cambridge in 1993\, where she later became Senior Lecturer in Physiology. She is a leading figure in neuroendocrinology and works within many European Union and international organisations and societies to promote research\, facilitate grant funding and training of Early Career Scientists. Her research into the neurobiology of appetite aims to unravel neurobiological pathways that respond to orexigenic signals\, such as the hormone\, ghrelin\, and that drive feeding behaviours\, not only food intake but also food choice\, food anticipation\, food reward and food motivation. This work involves mostly preclinical studies and includes behavioural tasks\, viral vector mapping\, chemogenetics and RNAscope. She is Secretary and Executive Board member of the European College for Neuropsychopharmacology\, and also chairs ECNP’s Workshop for Early Career Scientists in Europe. She also is founder and co-chair of ECNP’s nutrition network and EBRA’s BRAINFOOD cluster.
URL:https://www.braincouncil.eu/event/enhancing-global-partnerships-in-brain-research-2024-fens-forum-networking-reception/
LOCATION:Messe Wien Exhibition & Congress\, Messepl. 1\, Wien\, 1020\, Austria
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20240629
DTEND;VALUE=DATE:20240703
DTSTAMP:20260422T235652
CREATED:20231128T143124Z
LAST-MODIFIED:20240531T095538Z
UID:50561-1719619200-1719964799@www.braincouncil.eu
SUMMARY:10th Congress of the European Academy of Neurology
DESCRIPTION:The 10th annual congress of the European Academy of Neurology will take place in Helsinki (Finland) and online on 29 June – 2 July\, 2024. \nThe Overarching Theme for EAN 2024 is ‘Neuromodulation: advances and opportunities in neurological diseases’\, with numerous sessions planned around this important and engaging topic. \nAs usual\, the congress programme will be bursting with Symposia\, Workshops\, Teaching Sessions\, and much more\, including some exciting Named Lectures from eminent invited speakers. \nEBC looks forward to being part of the exhibition area and holding the following sessions: \n\nMultiple Sclerosis (MS) and Amyotrophic Lateral Sclerosis (ALS): advancing clinical decision making through wearables\, poster presentation\nAssessing the Digital Care Pathways Unmet Needs for Rare Brain Diseases. The Case of Phenylketonuria\, poster presentation\, 2 July\, 12:52\nToward a European Brain Health Plan\, EAN TV Studio Session\, 29 June 2024\, 11:30-12:30\nDigital Care Pathways for Rare Brain Diseases. The Case of Phenylketonuria\, Scientific Theatre\, 30 June 2024\, 12:15-12:45\nEBC: Towards the European Partnership on Brain Health\, Scientific Theatre\, 30 June 2024\, 15:45-16:15\nUniting Multiple Sclerosis and Amyotrophic Lateral Sclerosis Research Innovations through Collaborative Endeavours\, Scientific Theatre\, 1 July 2024\, 14:05-14:35\n\nFor more information about EAN 2024 – including programme – please explore the congress website! \nFind out more!
URL:https://www.braincouncil.eu/event/10th-congress-of-the-european-academy-of-neurology/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20240629
DTEND;VALUE=DATE:20240703
DTSTAMP:20260422T235652
CREATED:20240318T140010Z
LAST-MODIFIED:20240611T111818Z
UID:53646-1719619200-1719964799@www.braincouncil.eu
SUMMARY:Multiple Sclerosis (MS) and Amyotrophic Lateral Sclerosis (ALS): advancing clinical decision making through wearables | 10th Congress of the EAN
DESCRIPTION:EBC is pleased to hold a poster presentation "Multiple Sclerosis (MS) and Amyotrophic Lateral Sclerosis (ALS): advancing clinical decision making through wearables" at the upcoming 10th Congress of the European Academy of Neurology. The Conference will take place from 29 June until 2 July April 2024 in Helsinki (Finland). \nPoster will represent the BRAINTEASER project. \nBRAINTEASER is a Horizon 2020-funded project harnessing the value of big data to develop AI-based solutions for people with MS and ALS. As a project partner\, the European Brain Council currently leads liaison activities with relevant European (EU) and global projects and initiatives with the aim of identifying key priorities in the field and speaking with one voice to foster evidence-based policymaking and improve EU healthcare systems. \nAuthors: D. Faye\, K. Aarts\, S. Kramer\, F. Destrebecq  \nLEARN MORE ABOUT BRAINTEASER PROJECTLEARN MORE ABOUT EBC AT EAN CONGRESS
URL:https://www.braincouncil.eu/event/multiple-sclerosis-ms-and-amyotrophic-lateral-sclerosis-als-advancing-clinical-decision-making-through-wearables-10th-congress-of-the-ean/
LOCATION:Helsinki\, Finland
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BEGIN:VEVENT
DTSTART;TZID=UTC:20240629T113000
DTEND;TZID=UTC:20240629T123000
DTSTAMP:20260422T235652
CREATED:20240517T112237Z
LAST-MODIFIED:20240627T085725Z
UID:54141-1719660600-1719664200@www.braincouncil.eu
SUMMARY:Towards a European Brain Health Plan | 10th Congress of the European Academy of Neurology
DESCRIPTION:Date and time: Monday\, 29.06.2024\, 11:30-12:30 \nLocation: EAN TV \n2024 is a pivotal year for brain health\, research\, and innovation\, particularly at the policy level. 64 countries across the globe will exercise the right to vote across this year\, EU Elections included. As we enter new governmental mandates across the continent\, it is more important than ever to push the brain health agenda to the top of policy priority lists and reach the key decision makers to showcase just how important addressing and attending to the brain really is.  \nBrain disorders – encompassing neurological diseases and disorders and mental illnesses – are widespread\, disabling\, and difficult to treat. In fact\, it is estimated that up to three billion people worldwide live with a neurological condition and 970 million people around the world were living with a mental health disorder as of 2019. These conditions represent a high individual\, social and economic burden and contribute immensely to the global burden of disease – in fact\, as of 2024\, neurological conditions alone are now the leading cause of ill health and disability worldwide.  \nWith this growing burden in mind\, we need to not only find ways to address the ongoing issues but to work towards a society fully recognizing the potential of supporting citizens' brain health. At its best\, optimal brain health allows people to thrive: to live in health and in happiness\, to power our labour markets and economies\, and to build for future generations. Instead of divesting in a cost\, policymakers and society at large should view the prioritization and support of brain health\, research\, and innovation as an investment into prevention\, wellness\, and optimization\, creating a better future for every citizen.  \nThis session will bring together key voices from the brain community – clinicians\, patients and political scientists – to discuss the work being done at the national and regional levels to advocate for brain health\, exploring the challenges and sharing the achievements thus far.   \nSpeakersStephanie KramerAstri ArnesenProf. Claudio BassettiLecture Title: Establishing a National Brain Health Plan: Lessons Learned From Switzerland \nLecture Title: Patient-centred brain health strategies \nLecture Title: Establishing a National Brain Health Plan: Lessons Learned From Switzerland \nStephanie Kramer joined EBC in March 2016 within the projects team\, eventually making the move to heading the Communications\, Advocacy & Policy team until 2023. Aside from the day to day\, Stephanie’s role as Deputy Director continues to oversee the Communications & Advocacy work\, with a more strategic role focused on EBC’s global partnerships portfolio\, external relations and larger-scale advocacy events. \nStephanie holds an LLM in International Law from the University of Edinburgh\, and a BA in International Relations & Diplomacy from Schiller International University Heidelberg & Madrid. An expat since childhood\, before starting her career in the Brussels bubble she had previous communications\, external relations and project management experience at the United Nations headquarters in Vienna and private sector companies in the Netherlands and Chile. \nAstri has been a patient representative and advocate since the mid-1980s. She served as President of the Norwegian Huntington Association from 2004-2014\, joined the board of the European Huntington Association (EHA) in 2010\, and was elected President in 2016. Currently\, she works full time for EHA. Previously\, she was head of a department providing expertise in special educational needs. Astri is a trained teacher in learning disabilities with additional degrees in developmental psychology\, management\, and innovative processes. She has a broad network within the HD community globally and is active in the rare disease field through Eurordis and the European Reference Networks (ERN)\, also serving on the steering committee for ePAGs (patient reps in ERNs). \nProfessor Claudio Bassetti has been full professor and chair of neurology at the University Hospital in Bern since 2012. He received his medical degree in Basel and trained in neurology in Bern and Lausanne. In 2000\, he became professor and vice-chair of neurology in Zurich. In 2009 he founded the Neurocenter of Southern Switzerland. He completed his research fellowships in basic neurophysiology in Basel and sleep in Ann Arbor\, Boston and Madison. His major scientific interests are the relationship between sleep and neurological disorders\, narcolepsy\, and the teaching of general neurology. He uses clinical and experimental approaches and has published more than 500 articles and eight books. Prof. Bassetti has previously served as president of the European Neurological Society\, European Sleep Research Society and Swiss Neurological Society\, and founded the Swiss Federation of Clinical Neurosocieties. He is an elected member of the Swiss Academy of Medical Sciences\, which he served as board member for eight years. He has been president of the European Academy of Neurology since 2020 and was appointed Dean of the Medical Faculty in Bern that same year. \nLEARN MORE ABOUT EBC AT EAN CONGRESS
URL:https://www.braincouncil.eu/event/towards-a-european-brain-health-plan-10th-congress-of-the-european-academy-of-neurology/
LOCATION:Helsinki\, Finland
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DTSTART;TZID=UTC:20240630T121500
DTEND;TZID=UTC:20240630T124500
DTSTAMP:20260422T235652
CREATED:20240517T101446Z
LAST-MODIFIED:20240627T090641Z
UID:54136-1719749700-1719751500@www.braincouncil.eu
SUMMARY:Digital Care Pathways for Rare Brain Diseases\, The Case of Phenylketonuria | 10th Congress of the European Academy of Neurology
DESCRIPTION:Date and time: Sunday\, 30.06.2024\, 12:15-12:45 \nLocation: Scientific Theatre \nThe session will introduce the audience to the European Brain Council (EBC) and its activities on health services research and the value of education\, digital care pathways for rare brain diseases. \nThe opportunities offered by data and digital health are multiplying. While barriers remain to unlocking their full potential\, we are at an unprecedented moment of change. The European Health Data Space and the AI Act hold the promise of shaping a digital ecosystem that can accelerate the shift towards patient-centred\, outcomes-focused\, and sustainable healthcare in Europe\, and improve patient safety and reduce avoidable harm. Patient care is undergoing a significant transformation\, and three key factors – data\, patient education and inclusivity – are at the forefront of this change. To gain a deeper understanding of these trends\, we examined both patient and provider views. These insights offer a glimpse into the future of patient care. Digital Care Pathways for Rare Brain Diseases research project (2023-2024) – The Case of Phenylketonuria is coordinated by the European Brain Council. The Covid-19 pandemic accelerated the healthcare sector’s digital transformation agenda. The delivery of telemedicine services instead of many face-to-face procedures has been expanded and many healthcare services shifted online remotely. The study is looking at the unmet needs of patients related to information\, education and communication in the management and monitoring of Phenylketonuria (PKU) along the digital care pathways. We collected data from patients and caregivers in Ireland\, Germany and Spain using a patient survey that was co-designed with PKU patient associations\, to gather information about where and how can digital tools support PKU diagnosis\, treatment and follow-up. While looking at the patient perspective\, the clinician perspective is equally important. This project examines further what is the current state of digital transformation within healthcare systems and how to address the fundamental challenges that hinder the acceleration of the data-driven revolution. \nSpeakersVinciane QuoidbachLecture Title: European Brain Council: Value of education\, digital care pathways for rare brain diseases. \nVinciane Quoidbach is Research Project Manager – Public Health and Policy for the Value of Treatment for Brain Disorders Study at the European Brain Council. Vinciane holds a Master Degree in Hospital and Healthcare Management from Solvay Brussels School of Economics and Management and a Postgraduate Diploma in Public Health Management from Manchester Business School. She also holds a Master Degree in Political Sciences and European Studies from University of Antwerp. Prior to this position\, Vinciane worked in both public and private sector\, at national and international level. She served the Belgian Federal Public Service Health\, and the Federal Minister of Health Cabinet as Advisor in charge of public health policy and regulations development in the area of Cancer\, Chronic Diseases and Rare Diseases as well as the Biopharmaceutical Company AbbVie as Health Initiatives Manager. \nBernadette Sheehan Gilroy Lecture Title: Can digital tools support care pathways for rare brain diseases? The case of Phenylketonuria \nBernadette Sheehan Gilroy is a Lecturer at Munster Technological University (MTU) Ireland\, a PKU Researcher\, Advocate and a graduate of the IPPOSI Patient Education Programme. Bernadette recently delivered a TEDx Talk on “The Empowering Role of Advocacy – A Parent’s Perspective” to broaden understanding and compassion around PKU. She is a MTU representative on the All Ireland Rare Disease Interdisciplinary Research Network. She has spoken at Irish and European Parliamentary events\, co-led the development of a care pathway for PKU\, and has been a PKU patient representative in the Health Technology Assessment process for access to medicines with the National Centre for Pharmacoeconomics. She has been involved in many campaigns to raise awareness of the unmet needs and significant challenges of the PKU and Rare Disease communities to improve patient and family experience. PKU\, is a rare neurometabolic disorder that affects a person’s ability to metabolise protein and if left untreated can lead to devastating neurological complications. \nLEARN MORE ABOUT THE VALUE OF TREATMENTLEARN MORE ABOUT EBC AT EAN CONGRESS
URL:https://www.braincouncil.eu/event/digital-care-pathways-for-rare-brain-diseases-the-case-of-phenylketonuria-10th-congress-of-the-european-academy-of-neurology/
LOCATION:Helsinki\, Finland
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DTSTART;TZID=Europe/Moscow:20240630T154500
DTEND;TZID=Europe/Moscow:20240630T161500
DTSTAMP:20260422T235652
CREATED:20240523T102806Z
LAST-MODIFIED:20240611T112556Z
UID:54167-1719762300-1719764100@www.braincouncil.eu
SUMMARY:EBC: Towards the European Partnership on Brain Health
DESCRIPTION:Neurological and mental health disorders are a leading cause of mortality and disability putting a great burden on people living with these disorders as well as on healthcare systems and economies. Considering the costs of brain diseases for the European society\, the EU and its Member States have made investments in brain research leading to an increase of initiatives. Those initiatives have generated considerable amounts of knowledge but the translation into new health interventions is hindered by the complexity of the challenge and by excessive fragmentation of the efforts. \nEffective and efficient collaboration and cooperation among the various initiatives are often identified as a key success factor to achieve brain research full impact. There is a constant need for strengthening the information flow and accelerating the exchange of experience on the on-going and future projects as well as maintaining continuous dialogue between all the stakeholder groups and initiatives to allow that objectives are aligned\, and needs are met. \nThe European Partnership on Brain Health will fully respond to these needs by bringing together the various stakeholders and major brain research initiatives. With the aim to further coordinate and structure the area of brain health research in Europe\, the partners in the Coordination and Support Action (CSA) Brain Health developed an ambitious Strategic Research and Innovation Agenda\, outlining the strategic priorities\, actions\, and initiatives\, while encouraging maximum engagement of member states and relevant players in the brain field – including psychiatrists and people living with brain disorders. \nDuring this scientific theatre\, an introduction to the European Brain Council and the CSA Brain Health will be given and we will focus deeper on the development process and content of the Strategic Research and Innovation Agenda. \nSpeakerKristien AartsKristien has been part of the European Brain Council since 2019 where she currently leads the research team. In the Chief Research & Innovation Officer strategic role\, Kristien plays a pivotal role in ensuring that the organization’s work is grounded in scientific evidence\, research\, and innovation. \nHer responsibilities include monitoring research funding\, project applications\, overseeing EU-funded projects\, and developing a rare brain disease ecosystem. She also manages the Brain Innovation Days program and is actively creating an evidence-based brain health toolbox for the team. \nKristien has a PhD in Psychology from Ghent University (Belgium). With diverse experience at Lyon Neuroscience Research Center\, the European Health Management Association and the University of Utrecht\, Kristien brings expertise in brain research\, neuropsychology\, emotion\, cognition\, multisensory processing\, mindfulness\, clinical research management\, and EU-project management. \nLEARN MORE ABOUT Coordination and Support Action BrainHealthLEARN MORE ABOUT EBC AT EAN CONGRESS
URL:https://www.braincouncil.eu/event/ebc-towards-the-european-partnership-on-brain-health/
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