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DTSTART;TZID=Europe/Helsinki:20231102T090000
DTEND;TZID=Europe/Helsinki:20231102T163000
DTSTAMP:20260415T153027
CREATED:20231030T114650Z
LAST-MODIFIED:20231030T123044Z
UID:49754-1698915600-1698942600@www.braincouncil.eu
SUMMARY:Meeting on quality of child and adolescent mental health care across the WHO European Region
DESCRIPTION:On November 2\, World Health Organization’s Regional Office for Europe will hold a ‘Meeting on Quality of Child and Adolescent Mental Health Care across the WHO European Region’ in Athens. \nEBC is a member of the Pan-European Mental Health Coalition\, a partnership dedicated to improving mental health across the WHO European Region. It will target gaps in mental health services by gathering national leaders\, professionals\, members of civil society\, representatives of international organizations and experts to collaborate on bringing mental health out of the shadows and into the mainstream. \nKey priorities for the Coalition will be to transform mental health services and integrate mental health into emergency response and recovery efforts\, as well as promoting mental health and preventing mental ill health across the life course. \nMore details and the draft programme can be accessed by clicking on the following button. \nAccess the programme
URL:https://www.braincouncil.eu/event/meeting-on-quality-of-child-and-adolescent-mental-health-care-across-the-who-european-region/
LOCATION:WHO Regional Office for Europe\, Athens\, Greece
ATTACH;FMTTYPE=image/png:https://www.braincouncil.eu/wp-content/uploads/2023/10/Slide-1-copy-1.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20231107T083000
DTEND;TZID=UTC:20231107T093000
DTSTAMP:20260415T153027
CREATED:20231106T104648Z
LAST-MODIFIED:20231115T071506Z
UID:50019-1699345800-1699349400@www.braincouncil.eu
SUMMARY:Migraine: What can Europe do to avoid neglecting unmet medical need
DESCRIPTION:The Parliament Magazine\, in partnership with Abbvie\, organised an event ‘Migraine: What can Europe do to avoid neglecting unmet medical need‘\, which took place on 7 November 2023 at 08:30-09:30 in the European Parliament. \nMigraine carries an annual economic burden of €27 billion and is one of the leading causes of disability. Despite the tangible unmet need\, it is not consistently recognised as a medical burden\, especially when it comes to preventative treatment. Migraine might not be deadly but it is debilitating. \nCurrent policy proposals may offer an opportunity to address the challenges\, but a risk remains in the newly proposed unmet medical need definition. As it stands\, the definition may see migraine get deprioritised as recognition of the existing unmet need is brought into question. \nHow do we ensure that these approaches are well-defined and open the door to medical advances that leave no patient behind? \nDuring the event part of the discussion centred around the following points: \n\nHow does the inconsistent recognition of migraine as a medical burden affect preventative treatment options and patient care?\nWhat should be considered in the definition of unmet medical need to ensure patients suffering from migraine do not miss out following the revision of pharmaceutical legislation?\nWhile Brussels’ renewed commitment to mental health is welcome\, what more can the European Union do on a policy level to drive forward the commitments specific to brain health?\n\nDuring the event\, the outcomes and the policy recommendations of the Rethinking migraine project were highlighted. The aim of the project is to challenge the status quo and refreshes the European policy debate on people living with migraine\, recognises the consequences of the burdens during the COVID-19 pandemic and encourages multi-stakeholder-driven policy. The project falls under #MigraineMyBrain campaign. \nLearn more about the Rethinking migraine project
URL:https://www.braincouncil.eu/event/migraine-what-can-europe-do-to-avoid-neglecting-unmet-medical-need/
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DTSTART;TZID=Europe/Paris:20231114T080000
DTEND;TZID=Europe/Paris:20231114T093000
DTSTAMP:20260415T153027
CREATED:20231107T081616Z
LAST-MODIFIED:20231107T082327Z
UID:50066-1699948800-1699954200@www.braincouncil.eu
SUMMARY:Good Off-Label Use Practices (GOLUP): Where are we? What next?
DESCRIPTION:The European Brain Council (EBC) with support from the European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) will organise a breakfast meeting with the topic: ”Good off-label use practices: Where are we? What next?” in the European Parliament on November 14th from 08:00-09:30 CET . The event is hosted by MEP Stelios Kympouropoulos (EPP\, Greece). \nGood off-label use practices are often a necessity in areas of unmet medical need. The prevalence of off-label use in the EU in both the paediatric and adult population is high in a broad range of therapeutic areas such as rare diseases\, oncology\, psychiatry\, neurology\, in both hospitals and outpatient settings. Off-label practice poses a range of quite different challenges such as ethical and legal issues for healthcare professionals\, increased risk for patients\, patient information and consent. While not optimal but essential to address unmet medical needs\, the manner in which countries deal with the off-label use of medicines is not harmonised across the EU. \nIn 2016\, the Good Off-Label Use Practice (GOLUP) Declaration was launched\, supported by a coalition of European organisations dedicated to ensuring that high standards of patient care are upheld and that progress in medical research and innovation is achieved. The Declaration put forward the basis for a harmonised approach on when and how off-label prescription should take place across Europe. \nThe Declaration put forward the basis for a harmonised approach on when and how off-label prescription should take place across Europe: \n\nPresence of a medical therapeutic need based on a current examination of the patient by a suitably qualified health care professional;\nAbsence of authorised treatment and licensed alternatives tolerated by the patient or repeated treatment failure;\nA documented review and critical appraisal of available scientific evidence favours off-label use to respond to the unmet medical need of the individual patient;\nPatients (or their legal representative) must be given sufficient information about the medicines that are prescribed to allow them to make an informed decision;\nPresence of established reporting routes for outcomes and adverse events linked to off-label use.\n\nThis event is timely\, as the topic of repurposing has gathered attention with : \n\nthe European Medicines Agency (EMA) and the Heads of Medicines Agencies Repurposing of authorised medicines pilot launched in 2021 to support not-for-profit organisations and academia to support the repurposing of medicines as a follow-up to the European Commission’s Expert Group on Safe and Timely Access to Medicines for Patients (STAMP) discussions on a proposal for a medicines repurposing framework\,\nthe Spanish EU presidency event on the topic of ‘Repurposing and better use of clinical data’ on 27 September\, in Madrid\,\nthe revision of the pharmaceutical legislation with the Directive on medicinal products for human use looking inter alia at adverse reactions reporting in the case of off-label use products (Article 105) and unmet medical needs that are one reason and objective of the proposal (Exploratory memorandum and article 83) as well as the Regulation for the authorisation and supervision of medicinal products for human use and the expected European Commission proposal on rare diseases.\n\nThe purpose of this event is to reconnect with the GOLUP Declaration promoters\, exchange ideas and experiences to secure EU and national recognition of the Declaration with the ultimate goal to promote a common European approach for off-label use\, call for and propose EU guidelines for the good use of off-label medicinal products. \nDue to the limited number of available seats\, invitation will be done on a first come – first served basis. \nShould you be interested to attend\, please click below to secure your place. \nLearn more about the GOLUP initiative
URL:https://www.braincouncil.eu/event/good-off-label-use-practices-golup/
LOCATION:European Parliament\, Rue Wiertz 60\, Brussels\, 1047\, Belgium
ATTACH;FMTTYPE=image/jpeg:https://www.braincouncil.eu/wp-content/uploads/2023/11/GOLUP-Save-the-date-News-2023-2.jpg
ORGANIZER;CN="European Brain Council":MAILTO:advocacy@braincouncil.eu
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DTSTART;TZID=UTC:20231122T130000
DTEND;TZID=UTC:20231122T180000
DTSTAMP:20260415T153027
CREATED:20231102T100033Z
LAST-MODIFIED:20231102T100233Z
UID:49868-1700658000-1700676000@www.braincouncil.eu
SUMMARY:SFCNS Swiss Brain Health Plan Kick-Off Meeting
DESCRIPTION:The SFCNS Swiss Brain Health Plan Kick-Off Meeting will take place on November 22\, 2023 from 13:00-18:00 at the Kunsthaus Zurich. \nThis Swiss Brain Health Plan implements the Swiss Brain Health Strategy in accordance with the EAN Brain Health Strategy\, launched by the WHO and the European Academy of Neurology EAN in 2022. \nThe joint goal is awareness creation about brain health as a whole and to initiate prevention programs. The strategic task force of the Swiss Brain Health Plan consists of the about 50 authors of the publication «The Swiss Brain Health Plan 2023-2033». \nThe Swiss Brain Health Plan will be developed further by SFCNS as it involves many specialties of the neuro field. The goal of the Kick-Off Meeting is information and awareness creation among all stakeholders i.e. politics\, hospitals\, patient organizations\, researchers\, insurances\, companies and finally the public. \nFind out more about the eventDiscover the programme
URL:https://www.braincouncil.eu/event/sfcns-swiss-brain-health-plan-kick-off-meeting/
LOCATION:Zurich\, Switzerland
ATTACH;FMTTYPE=image/png:https://www.braincouncil.eu/wp-content/uploads/2023/11/IMNFST2315_Homepage_Banner_04.png
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DTSTART;TZID=UTC:20231128T083000
DTEND;TZID=UTC:20231128T133000
DTSTAMP:20260415T153027
CREATED:20231030T150030Z
LAST-MODIFIED:20231127T072557Z
UID:49764-1701160200-1701178200@www.braincouncil.eu
SUMMARY:EBC-Spanish Presidency of the Council of the EU Event: Our Brains\, Our Future
DESCRIPTION:Our Brains\, Our FutureDate: 28 November 2023 \nTime: 08:30 – 13:30 \nLocation: Spanish Senate\, Madrid (Spain) \nProgramme (EN)Programme (ES)RegistrationSpeakersIn the framework of the Spanish presidency of the Council of the European Union\, the European Brain Council (EBC) will organize an event in the Senate of Spain this coming November 2023.  \nAmong its list of priorities\, the healthcare agenda of the Spanish Presidency places a strong emphasis on improving health outcomes and addressing pressing challenges within the European Union\, including building towards the creation of a European Health Data Space (EHDS) to improve healthcare policies and research\, disease prevention\, health promotion\, and tackling prevalent health issues\, including mental illness.  \nAcross the European Union and beyond\, society is facing health-related challenges like never before. This is particularly true for brain disorders\, neurological and mental alike\, which are widespread\, disabling\, and difficult to treat. Improving the health and well-being of citizens has become the top priority for many governments and brain health should not be left behind. In fact\, it is estimated that up to one billion people worldwide live with a neurological condition and 970 million people around the world were living with a mental health disorder as of 2019\, with anxiety and depressive disorders the most common1. In Europe alone\, approximately 60% of the population lives with a neurological condition2 and one in six citizens is affected by mental ill-health.  \nHowever\, although in the last half century\, the field of neuroscience and our knowledge of the brain has advanced considerably\, many important aspects remain extremely elusive. Clearly\, without a substantial increase in efforts and resources to promote fundamental understanding of the mechanisms that generate proper brain function\, it will be impossible to design treatments that address the real pandemic of brain health\, currently affecting a substantial part of world’s population.  Moreover\, Europe cannot ignore that this field of research holds immense appeal for a growing number of young minds\, as the brain is one of the last unexplored frontiers.  \nThe time to act is now and the Spanish Presidency priorities are a first concrete step towards increased awareness and action. Europe must take a central position in the global effort to unravel the mysteries of the brain\, both through promoting fundamental scientific research and the practical and clinically beneficial application of the knowledge that basic research generates. Enhancing collaboration in the space can fast track us towards better understanding the brain through basic research\, innovation in clinical research and treatment methods and effective outcomes to the benefit of people living with and affected by brain conditions.  \nThe European Brain Council and its wide community of members and partners has served as a convener for experts in the brain research area and health space to raise awareness\, share best practices\, exchange ongoing work\, align priorities and advocate for a real change: recognizing and prioritizing urgent intervention on the burden of brain disorders and building towards a brain healthy future for Europe and beyond.  \nThis event will demonstrate just how important this prioritization is. Crucial elements in the complex chain from basic neuroscience to patient improved outcomes will be broken down and explored. Research into the space remains crucial yet underfunded and often misunderstood and neglected\, which has a massive impact on the lives of patients. With greater prioritization and overhaul of brain research in Europe\, we have the opportunity to foster a personalized approach when developing innovative therapeutic options and better address patient relevant outcomes.  \nThis event will be bilingual. Sessions will take place in both English and Spanish – interpreters will be available for translation. \nOrganisersHis Excellency Francisco Manuel Fajardo\n \nSenate of Spain \nProf. Carlos Closa\n  \n \n  \nSpanish National Research Council \nProf. Suzanne Dickson\n \nEuropean Brain Council \nProf. Juan Lerma\n \nEuropean Brain Council \nProf. Richard Morris\n  \n \n  \nEdinburgh Futures Institute \nRosa Montero\n  \nNovelist \nProf. Rodrigo Quian Quiroga\n  \n \n  \nHospital del Mar \nProf. Giancarlo Comi\n  \n \n  \nEuropean Charchot Foundation \nDr. Usman Khan\n  \n \n  \nMotor Neurone Disease Association \nTineke Mollema\n  \n \n  \nGAMIAN-Europe \nDr. Mara Parellada\n  \n \n  \nAMITEA Programme \nDr. Paola Zaratin\n  \n \n  \nPROMS Initiative \nStephanie Hoffmann-Gendebien\n  \n \n  \nAmylyx Pharmaceuticals \nProf. José Obeso\n  \n \n  \nCentro Integral de Neurociencias AC \nDr. Mara Dierssen\n  \n \n  \nSpanish Brain Council \nDr. José Luis Lanciego\n  \n \n  \nPERC-IBRO \nCristina Maragall\n  \n \n  \nPasqual Maragall Foundation \nDr. Francisco Colomer Sanmartín\n  \n \n  \nSpanish Ministry of Science and Innovation \nFrédéric Destrebecq\n \nEuropean Brain Council \nVideo MessageFor privacy reasons YouTube needs your permission to be loaded. For more details\, please see our Privacy Policy.I AcceptWith thanks to the Pasqual Maragall Foundation\, Amylyx Pharmaceuticals\, Insightec and Roche  for supporting this event. \nEvent Booklet (EN)Event Booklet (ES)Registration
URL:https://www.braincouncil.eu/event/our-brains-our-future/
LOCATION:Private: Spanish Senate\, 3 Calle de Bailén\, Madrid\, 28013\, Spain
ATTACH;FMTTYPE=image/png:https://www.braincouncil.eu/wp-content/uploads/2023/10/Value-of-Treatment-Collection-in-European-Psychiatry-1-1.png
ORGANIZER;CN="European Brain Council":MAILTO:advocacy@braincouncil.eu
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