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X-WR-CALNAME:European Brain Council (EBC)
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X-WR-CALDESC:Events for European Brain Council (EBC)
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DTSTART:20220101T000000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230701
DTEND;VALUE=DATE:20230705
DTSTAMP:20260415T071028
CREATED:20220803T133222Z
LAST-MODIFIED:20230629T130134Z
UID:39319-1688169600-1688515199@www.braincouncil.eu
SUMMARY:9th Congress of the European Academy of Neurology
DESCRIPTION:The 9th Annual Congress of the European Academy of Neurology (EAN) will take place on 1-4 July 2023 in Budapest (Hungary). The overarching theme of the congress is “Neurology beyond the Big Data”. \nThe EAN Congress will provide an unrivalled chance for our community to share a rewarding clinical and scientific experience. With the rich cultural tapestry of Budapest as our backdrop\, we also have the ideal environment for establishing new contacts and friendships\, and of course renewing old ones. \nEBC looks forward to being part of the exhibition area and holding the following sessions: \n\n1 July 2023\, 11:00-11:30: Rethinking the management of brain disorders: Alzheimer’s disease and migraine (Scientific Theatre)\n3 July 2023\, 16:15-17:15: EAN-EBC TV Studio Special Session: European Advocacy in the Brain Space \n4 July 2023\, 13:13-13:16: The role of patient representatives in the optimization of Patient Care Pathways at European level: the PKU experience (ePoster)\n\nFind out more on the official official website of the congress!
URL:https://www.braincouncil.eu/event/9th-congress-of-the-european-academy-of-neurology/
LOCATION:Budapest\, Hungary
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BEGIN:VEVENT
DTSTART;TZID=UTC:20230701T110000
DTEND;TZID=UTC:20230701T113000
DTSTAMP:20260415T071028
CREATED:20230403T093136Z
LAST-MODIFIED:20230403T124116Z
UID:46432-1688209200-1688211000@www.braincouncil.eu
SUMMARY:EAN Congress: Rethinking the management of brain disorders: Alzheimer's disease & migraine
DESCRIPTION:The European Brain Council (EBC) is pleased to hold a Scientific Theatre on “Rethinking the management of brain disorders: Alzheimer’s disease & migraine” on 1 July 20223 at 11:00 – 11:30 during the 9th Annual Congress of the European Academy of Neurology in Budapest (Hungary). \nDespite improvements and innovation in recent years\, people living with brain conditions\, neurological and mental alike\, face variations in access to optimal treatment and care. There is a lot about brain disorders that is not fully understood and the high-quality care and support needed by people living with these conditions is often unavailable. \nThe aim of the RETHINKING Projects is to develop policy priorities around challenges in brain disorders and present a consensus on what needs to be achieved to resolve the most pressing challenges in brain conditions\, today and in the future. There is a clear need to rethink the management of the brain disorders and redesign the care pathways to ensure optimal treatment and care for all people living with brain disorders in Europe. \nThe speakers of the session will present how to rethink the way we manage Alzheimer’s disease and migraine in terms of their prevention\, detection and diagnosis. \nFind out more about the sessionSpeakersDr. Kristian Steen Frederiksen\, Co-chair\, EAN Scientific Panel Dementia and Cognitive Disorders\, European Academy of Neurology \nDr. Michela Tinelli\, Assistant Professorial Research Fellow and NIHR SSCR Leadership Fellow\, London School of Economics\, London School of Economics
URL:https://www.braincouncil.eu/event/ean-congress-rethinking-the-management-of-brain-disorders-alzheimers-disease-migraine/
LOCATION:Budapest\, Hungary
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BEGIN:VEVENT
DTSTART;TZID=UTC:20230703T161500
DTEND;TZID=UTC:20230703T171500
DTSTAMP:20260415T071028
CREATED:20230403T122229Z
LAST-MODIFIED:20230629T141448Z
UID:46440-1688400900-1688404500@www.braincouncil.eu
SUMMARY:EAN-EBC TV Studio Special Session: European Advocacy in the Brain Space
DESCRIPTION:EBC looks forward to being part of the 9th European Academy of Neurology congress\, to be held on 1-4 July\, 2023 in Budapest\, Hungary with a TV studio special session centred around its advocacy work for the brain. This session\, taking place on 3 July 2023 at 16:15-17:15 CET and led by members of the Executive Committee of the European Brain Council\, will analyse the current state of advocacy in the brain space at the European level and explore not only the importance of the work being done but the potentials for strengthened collaboration and the needs going forward\, for the benefit of all within the brain space\, particularly with a spotlight on neurology and neurological conditions (including the clinicians that treat them and the patients that live with them). The discussion will cover the work being done by EBC and its key member organisations (in particular\, EAN)\, the inclusion of the patient voice\, advocacy and policy work being done at the global and European levels and the added value of speaking with one voice. \nSpeakers:\nAdvocacy in the Brain Space: Introduction of the European Brain Council – Prof. Suzanne Dickson (EBC President)\nAdvancing the neurology agenda at the European level – Prof. Claudio Bassetti (EBC Vice President)\nThe importance of the patient voice and a cross-disciplinary approach – Dr Orla Galvin (EBC Treasurer) \nThe livestream can be watched through the link below: \nLivestream
URL:https://www.braincouncil.eu/event/ean-ebc-tv-studio-special-session/
ATTACH;FMTTYPE=image/png:https://www.braincouncil.eu/wp-content/uploads/2023/02/1400-x-400.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20230704T131300
DTEND;TZID=UTC:20230704T131600
DTSTAMP:20260415T071028
CREATED:20230403T125705Z
LAST-MODIFIED:20230510T085312Z
UID:46443-1688476380-1688476560@www.braincouncil.eu
SUMMARY:EAN Congress: The role of patient representatives in the optimization of Patient Care Pathways at European level: the PKU experience
DESCRIPTION:EBC looks forward to presenting an ePoster on 'The role of patient representatives in the optimization of Patient Care Pathways at European level: the PKU experience' on 4 July 2023 at 13:13 – 13:16 at screen A2 in the Poster Area in the Exhibition Hall. \nAuthors  \nCannizzo S\, Quoidbach V\, Treacy EP\, Lange E\, Sheehan-Gilroy B\, Hagedorn T\, Turchetti G  \nIntroduction   \nIn defining and optimising patient care pathways (PCPs) the role of patient representatives (PRs) is very important; it is crucial in the contest of rare diseases where the complexity of the disorders is higher\, co-morbidity and multi-organ involvement are present\, multidisciplinary care is needed\, and patients may experience inequality in the access to specialised diagnostic/treatment procedures. In this work we have analysed the role of PRs in the design and optimization of Phenylketonuria's (PKU) PCP.       \nMethods  \nWe applied RarERN PathÓ methodology to PKU PCP within the Value of Treatment (VOT) for Rare Brain Disorders project\, coordinated by the European Brain Council. PRs of PKU Associations of Ireland and Germany were involved. The PCPs in place in centers of excellence (COE) were analysed\, and patients provided input through a semi-structured questions survey exploring organization of care and perception of criticalities when receiving healthcare services. A first draft of the optimized PCP for PKU was discussed in a plenary meeting attended by neurologists and PRs. Finally\, PRs were requested to provide additional suggestions through a second ad-hoc survey.  \nResults  \nPRs contributed to the design of an optimized PCP\, providing unique information on the main organizational challenges in COEs and on the coordination of care between COE and non-hospital care at European level.   \nConclusion  \nTo formally involve PRs in the co-design of the PCP is necessary because it allows to complement clinicians' perspective about "ranking" and "weight" of what really matters throughout the PCP. PKU case is particularly interesting in this respect.  \nAuthor details  \n\n Cannizzo Sara\, Institute of Management\, Scuola Superiore Sant'Anna\, Pisa\, Italy\n Quoidbach Vinciane\, European brain Council\, Brussels\, Belgium\n Treacy Eileen P\, National Centre for inherited Metabolic Disorders\, Mater Misericordiae University Hospital\, Dublin\, Ireland\n Eric Lange\, The European Society for Phenylketonuria and allied disorders\n5. Sheehan-Gilroy Bernadette\, PKU Association of Ireland and Munster Technological University Kerry Campus\, Tralee\, Ireland.\n6. Hagedorn Tobias\, German PKU and Allied Disorders Patients Association DIG PKU\, European Society for Phenylketonuria & Allied Disorders\n7. Turchetti Giuseppe\, Institute of Management\, Scuola Superiore Sant'Anna\, Pisa\, Italy\n\nFind out more
URL:https://www.braincouncil.eu/event/ean-congress-the-role-of-patient-representatives-in-the-optimization-of-patient-care-pathways-at-european-level-the-pku-experience/
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