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X-WR-CALDESC:Events for European Brain Council (EBC)
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DTSTART;TZID=UTC:20210304T110000
DTEND;TZID=UTC:20210304T180000
DTSTAMP:20260415T215144
CREATED:20210121T094947Z
LAST-MODIFIED:20210121T095222Z
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SUMMARY:Value Based Healthcare Conference
DESCRIPTION:The event will be held online on the 4th of March 2021 from 10.00 to 17:00 (UTC+2hours).\nHealth systems in Europe and around the world are evolving to adapt to the societal and technological changes and the changing health needs as more people live longer with chronic or degenerative conditions. This requires changes in the health systems’ design and new ways of delivering healthcare. Next to reduced mortality\, improving general health outcomes and quality of life is gaining importance as the main objective of healthcare. \nAll stakeholders acknowledge that a shift of emphasis is required from a siloed budget focused approach towards a more holistic health and social care system approach. Future healthcare will be more personalized in all stages of healthcare where an evidence-based integrated approach will be applied with an increased role of patients in managing their own health and care. \nThe conference aims at raising awareness and knowledge among the healthcare community on the value of patient-centered healthcare. \nAt the conference\, good practices and practical examples will be presented by speakers from Estonia and other countries. These ideas will be focused on developing and implementing patient-centered healthcare approaches. \nParticipation in the conference is free of charge. Information e-mail will be sent to registered delegates with the link enabling to access the internet environment of the event before the beginning of the conference. \nThe conference is co-organised by the Estonian Ministry of Social Affairs\, Estonian Health Insurance Fund\, Estonian Cancer Society\, The North Estonia Medical Centre Foundation\, Tartu University Hospital\, European Federation of Pharmaceutical Industries and Associations (EFPIA) and the Association of Pharmaceutical Manufacturers in Estonia. \n  \nInfo and registration here.
URL:https://www.braincouncil.eu/event/value-based-healthcare-conference/
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DTSTART;TZID=UTC:20210316T123000
DTEND;TZID=UTC:20210316T140000
DTSTAMP:20260415T215144
CREATED:20210224T091149Z
LAST-MODIFIED:20210312T144645Z
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SUMMARY:Patient Engagement in EU-Funded Brain Research Projects (EBC-EFNA-GAMIAN-Europe Brain Awareness Week Event)
DESCRIPTION:  \nBrain Awareness Week 2021 \nEBC in partnership with EFNA & GAMIAN-Europe \nPatient Engagement in EU-Funded Brain Research Projects \nDigital Event – 16 March\, 12:30-14:00 \nPatient engagement in research is an approach that involves meaningful and active collaboration with patients in the governance\, priority setting\, conducting and knowledge translation of research. While patient engagement is becoming increasingly popular and vital prerequisite in research projects\, many researchers are still unsure or hesitant in the involvement of patients in their work and why such engagement is of value. The process is unclear to many and how to fully involve patients can be unclear. However\, many patients are keen to be part of research – “nothing about us without us” –arguing that no research can be fully done without direct insight from the people actually living with these conditions every day. \nFor some time now\, the European Commission\, through its research programmes and related initiatives\, has been increasing its encouragement of involving patients in research\, particularly within the projects it funds. The Responsible Research and Innovation (RRI) approach has been highlighted throughout the objectives of the EU Horizon 2020 Programme. In health research this means to put the expectations of patients and society at the heart of research programs. European initiatives such as the Innovative Medicines Initiative (IMI) have spearheaded the growth of involving patients in European research\, encouraging patient involvement in their activities and project\, and involving patients as speakers and panellists in their events and consultations. Furthermore\, H2020-funded projects such as MULTI-ACT were launched with the aim to increase the impact of health research on people with brain diseases and to create and implement a new model allowing for the effective cooperation of all relevant stakeholders. \nHowever\, most patients and patient representatives still feel like not enough support is given to have their voices fully heard in research—requests and demand for involving patients is growing but a pool of “patient experts” is still lacking. The discussion needs to shift from “we need to show that patients are on board” to “how can we best involve patients and why/how are we involving them to the full benefit for the research conducted”. “What can be done concretely in EU funded health research projects to enforce patient engagement”? This needs to be more than a “box ticking exercise”. \nThis Brain Awareness Week looks to explore the current state of patient engagement in EU-funded Brain Research projects\, looking at IMI and MULTI-ACT as concrete examples and solutions and analysing in discussion with key officials what has been done and what can still be done in order to guarantee change. \nSee programme and concept note included below. Registration is now open HERE. \nBrain Awareness Week-Programme \nDownload the programme HERE.
URL:https://www.braincouncil.eu/event/patient-engagement-in-eu-funded-brain-research-projects-ebc-efna-gamian-europe-brain-awareness-week-event/
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BEGIN:VEVENT
DTSTART;TZID=UTC:20210319T180000
DTEND;TZID=UTC:20210319T190000
DTSTAMP:20260415T215144
CREATED:20210105T073815Z
LAST-MODIFIED:20210105T074413Z
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SUMMARY:Global Webinar Series 2020-2021: Part 5 - Complications and how to handle them
DESCRIPTION:The Hydrocephalus Society is delighted to announce the Hydrocephalus Society Global Webinar Series on iNPH 2020-2021! A series of 6 monthly webinars will take place\, beginning from November 2020 until April 2021. In these challenging times\, our duty is to support our community in all ways possible. For this reason\, the Hydrocephalus Society board of directors has decided to provide the webinars completely free of charge. They have structured the webinars to favor the European\, Asian and American time zones by turns. \nGlobal Webinar Series 2020-2021: Part 5 – Complications and how to handle them\nChairs\nLawrence Watkins\nMats Tullberg \nLectures\n1. Infections. Antibiotics impregnated catheters: Mark Hamilton\n2. Shunt failure/Shunt obstruction: Giorgio Palandri\n3. Overdrainage: Uwe Kehler \n  \nHYDROCEPHALUS_WEBINARS-CalendarOutline-2
URL:https://www.braincouncil.eu/event/global-webinar-series-2020-2021-part-5-complications-and-how-to-handle-them/
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DTSTART;TZID=UTC:20210323T140000
DTEND;TZID=UTC:20210323T170000
DTSTAMP:20260415T215144
CREATED:20210223T112715Z
LAST-MODIFIED:20210224T105426Z
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SUMMARY:MULTI-ACT Final Conference: “The MULTI-ACT Model: The Path Forward for Participatory Governance in Health Research and Innovation”
DESCRIPTION:  \nMULTI-ACT Final Conference\n“The MULTI-ACT model: the path forward for participatory governance in health research and innovation”\n23 March 2021\, 14:00 – 17:00 CET\n  \nAfter years of work\, the outcomes of the MULTI-ACT project will be presented at the Final Conference\, “The MULTI-ACT model: the path forward for participatory governance in health research and innovation”\, to be held virtually on 23 March 2021. \nThe EU-funded MULTI-ACT project aims to increase the impact of health research on people with brain diseases. It has worked to create and implement a new model allowing for the effective cooperation of all relevant stakeholders\, which will be applicable in defining the scope of health research as well as new metrics for the evaluation of its results. The MULTI-ACT project has worked with patients and patient organizations\, academics\, private and public stakeholders to develop brand new tools to assess the value of research. \nAmong these tools\, the consortium has produced a governance model\, a roadmap for patient engagement and impact indicators along five dimensions to foster stakeholder engagement in health research and innovation\, which will be presented during the conference. Furthermore\, the MULTI-ACT online toolbox will be presented and available for organisations to conduct health research with a multi-stakeholder and co-accountable approach. \nEBC has been involved in a number of work packages within the MULTI-ACT project and is pleased to be leading the organisation of the Final Conference. Stay tuned for more details: registration will open at the beginning of March. For programme details\, please visit the dedicated Event Page. \nLearn more about the MULTI-ACT project by visiting: https://www.multiact.eu/\, where a number of project brochures\, videos\, factsheets and full deliverables are shared!
URL:https://www.braincouncil.eu/event/multi-act-final-conference-the-multi-act-model-the-path-forward-for-participatory-governance-in-health-research-and-innovation/
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