BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//European Brain Council (EBC) - ECPv6.15.19//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:European Brain Council (EBC)
X-ORIGINAL-URL:https://www.braincouncil.eu
X-WR-CALDESC:Events for European Brain Council (EBC)
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20200101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Europe/Paris
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20200329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20201025T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20210328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20211031T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20220327T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20221030T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20230326T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20231029T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Europe/Helsinki
BEGIN:DAYLIGHT
TZOFFSETFROM:+0200
TZOFFSETTO:+0300
TZNAME:EEST
DTSTART:20200329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0300
TZOFFSETTO:+0200
TZNAME:EET
DTSTART:20201025T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0200
TZOFFSETTO:+0300
TZNAME:EEST
DTSTART:20210328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0300
TZOFFSETTO:+0200
TZNAME:EET
DTSTART:20211031T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0200
TZOFFSETTO:+0300
TZNAME:EEST
DTSTART:20220327T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0300
TZOFFSETTO:+0200
TZNAME:EET
DTSTART:20221030T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Europe/Brussels
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20200329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20201025T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20210328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20211031T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20220327T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20221030T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=UTC:20220501T102000
DTEND;TZID=UTC:20220501T104000
DTSTAMP:20260415T003216
CREATED:20220330T114515Z
LAST-MODIFIED:20220330T114515Z
UID:35253-1651400400-1651401600@www.braincouncil.eu
SUMMARY:Value of Treatment (VOT) case study on phenylketonuria (PKU) | EPNS Congress 2022
DESCRIPTION:  \nThe Value of Treatment for Brain Disorders (VOT) is a health economics and outcomes research project coordinated by the European Brain Council (EBC). According to the World Health Organization\, disorders of the brain affect up to one in three people worldwide.  \nA second round (VOT2) on new therapeutic areas was launched in 2019\, focusing on The Value of Early Diagnosis and Coordinated Care for Rare Diseases (Ataxia\, Dystonia and Phenylketonuria); and The Value of Early Intervention and Continuity of Care for Mental Disorders (Anorexia Nervosa\, Autism Spectrum Disorder and Major Depressive Disorder). \nProf. Anita MacDonald will present a case study on phenylketonuria (PKU) at the 14th European Paediatric Neurology Society Congress in Glasgow\, on 1 May (10:20 – 10:40).
URL:https://www.braincouncil.eu/event/value-of-treatment-vot-case-study-on-phenylketonuria-pku-epns-congress-2022/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220430T102000
DTEND;TZID=UTC:20220430T104000
DTSTAMP:20260415T003216
CREATED:20220330T113927Z
LAST-MODIFIED:20220330T113943Z
UID:35246-1651314000-1651315200@www.braincouncil.eu
SUMMARY:Value of Treatment (VOT) case study on ataxia | EPNS Congress 2022
DESCRIPTION:  \nThe Value of Treatment for Brain Disorders (VOT) is a health economics and outcomes research project coordinated by the European Brain Council (EBC). According to the World Health Organization\, disorders of the brain affect up to one in three people worldwide.  \nA second round (VOT2) on new therapeutic areas was launched in 2019\, focusing on The Value of Early Diagnosis and Coordinated Care for Rare Diseases (Ataxia\, Dystonia and Phenylketonuria); and The Value of Early Intervention and Continuity of Care for Mental Disorders (Anorexia Nervosa\, Autism Spectrum Disorder and Major Depressive Disorder). \nProf. Paola Giunti will present a case study on ataxia at the 14th European Paediatric Neurology Society Congress in Glasgow\, on 30 April (10:20 – 10:40).
URL:https://www.braincouncil.eu/event/value-of-treatment-vot-case-study-on-ataxia-epns-congress-2022/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220429T140500
DTEND;TZID=UTC:20220429T155000
DTSTAMP:20260415T003216
CREATED:20220114T110915Z
LAST-MODIFIED:20220330T115028Z
UID:33648-1651241100-1651247400@www.braincouncil.eu
SUMMARY:Promoting Child Neurology in Europe | EPNS Congress 2022
DESCRIPTION:  \nOn 29 April 2022\, Joke Jaarsma\, Treasurer of the European Brain Council\, will hold a presentation on “Promoting child neurology in Europe” in the context of the 14th Congress of the European Paediatric Neurology Society (EPNS) in Glasgow. \nThe EPNS Congress provides an opportunity to learn about the latest developments in the rapidly evolving field of child neurology\, including basic science\, diagnostic methods\, and novel treatments. You can network with colleagues and industry partners all focused on delivering the best possible care for children with neurological disorders. \nFor more information\, please visit: https://epns-congress.com/
URL:https://www.braincouncil.eu/event/how-ebc-can-promote-child-neurology-in-europe/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220429
DTEND;VALUE=DATE:20220501
DTSTAMP:20260415T003216
CREATED:20220317T092031Z
LAST-MODIFIED:20220427T123503Z
UID:34862-1651190400-1651363199@www.braincouncil.eu
SUMMARY:EMSP Annual Conference 2022: ‘’A Holistic Approach for Personalised MS Care’’
DESCRIPTION:The EMSP Annual Conference 2022 will take place on 29-30 April 2022 in hybrid format\, virtually and in person in Madrid\, Spain. \nThe theme of this year’s conference is ”A Holistic Approach for Personalised MS Care”. The personalised care model seeks to deliver whole-population approaches to support people of all ages and their carers to manage their physical and mental health and well-being\, build community resilience\, and make informed decisions and choices when their health changes. \nBy bringing the MS societies\, the patient communities\, healthcare professionals\, researchers\, and policy decision makers together on a European level\, the conference will aim at improving the understanding of the latest development in the field of personalised healthcare for people with MS\, sharing knowledge and expertise\, identifying good practices across Europe and cross-sectors. \nThe programme is built around 3 pillars: \n\nEmpowering people affected by MS to make informed choices by learning about latest research developments and the latest digital support tools\nSocial inclusion\, the Impact of the social environment and participation in society on physical and mental health\nBuilding community resilience\n\nEBC is delighted to be invited as a contributor this year\, with EBC Executive Director\, Frédéric Destrebecq\, to take part in the session “MS in Europe: the value of integrated and personalized health and social care approaches” on the 29th of April\, from 12:00 to 12:30. \nGet your free virtual ticket here!
URL:https://www.braincouncil.eu/event/emsp-annual-conference-2022-a-holistic-approach-for-personalised-ms-care/
LOCATION:Madrid
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220428
DTEND;VALUE=DATE:20220503
DTSTAMP:20260415T003216
CREATED:20200605T134018Z
LAST-MODIFIED:20220330T114835Z
UID:21910-1651104000-1651535999@www.braincouncil.eu
SUMMARY:14th European Paediatric Neurology Society Congress
DESCRIPTION:The 14th European Paediatric Neurology Society Congress\, to be held under the overarching theme “Precision in Child Neurology” from 28 April – 2 May 2022 in Glasgow (UK) and virtually\, provides an opportunity to learn about the latest developments in the rapidly evolving field of child neurology including basic science\, diagnostic methods and novel treatments. The congress theme explores how networks\, systems and technology can help deliver precision care and better outcomes. \nYou will have the chance to learn about the EBC activities and projects in a virtual booth. In addition\, EBC is pleased to hold several sessions at the congress: \n\nPromoting Child Neurology in Europe: 29 April 2022\, 14:05 – 15:50\nValue of Treatment (VOT) case study on ataxia: 30 April\, 10:20 – 10:40\nValue of Treatment (VOT) case study on phenylketonuria (PKU): 1 May 2022\, 10:20 – 10:40\n\nRegister now for the 14th European Paediatric Neurology Society Congress! \nFor privacy reasons YouTube needs your permission to be loaded. For more details\, please see our Privacy Policy.I Accept
URL:https://www.braincouncil.eu/event/14th-european-paediatric-neurology-society-congress/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220311T100000
DTEND;TZID=UTC:20220311T163000
DTSTAMP:20260415T003216
CREATED:20220128T101043Z
LAST-MODIFIED:20220128T101043Z
UID:33863-1646992800-1647016200@www.braincouncil.eu
SUMMARY:Shining a Spotlight on Life After Stroke
DESCRIPTION:Welcome to the European Life After Stroke Series 2022: Shining a Spotlight on Life After Stroke\nWe look forward to you joining us for a day of building education and awareness around topics that impact the stroke community.\nPlenary 1\, 10.00 – 11.30 CET: Be inspired and share control: the added value of self-management support \nThis webinar will share new ways of thinking about and building the evidence base on self-management. Drawing on examples from research and clinical practice\, the session will inspire and challenge delegates to consider the potential of self-management support to deliver outcomes that matter most to stroke survivors. It will include suggestions for expanding the evidence base and accelerating the route to impact to enable more people post stroke feel supported\, engaged and confident to self-manage.\nPlenary 2\, 15.00 – 16.30 CET: Communication in everyday life \nCommunication is the cement that makes partnerships successful on personal\, professional\, societal\, and political levels. Clearly communicating thoughts\, ideas and expectations is a challenge in the lives of stroke survivors. Stroke survivors will share their experiences as they relate to communication dilemmas and successes. We will show that even without aphasia\, communication failures are common and can result in confusion and distress. This session will address ways to overcome communication barriers.\n\nTo view our full event programme including presentations and speakers\, please click here.\nRegistration for this event is free of charge.\nIf you have any questions about this event\, please get in touch with us at ELASF@mci-group.com.\nRegistration here.
URL:https://www.braincouncil.eu/event/shining-a-spotlight-on-life-after-stroke/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220127T083000
DTEND;TZID=Europe/Paris:20220127T140000
DTSTAMP:20260415T003216
CREATED:20211215T130501Z
LAST-MODIFIED:20211215T130501Z
UID:33224-1643272200-1643292000@www.braincouncil.eu
SUMMARY:PFUE Brain Health
DESCRIPTION:
URL:https://www.braincouncil.eu/event/pfue-brain-health/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20211210T120000
DTEND;TZID=Europe/Paris:20211210T124500
DTSTAMP:20260415T003216
CREATED:20211118T120853Z
LAST-MODIFIED:20220322T080225Z
UID:32651-1639137600-1639140300@www.braincouncil.eu
SUMMARY:The European Brain Research area: Building a Brain Health Partnership
DESCRIPTION:The European Brain Research Area project — EBRA — was created as a catalysing initiative for brain research stakeholders (researchers\, clinicians\, patients\, governments\, funders and public institutions) to streamline and better co-ordinate brain research across Europe while fostering global initiatives. The Consortium consists of the EBC membership\, the Network of European funding for Neuroscience research (NEURON)\, Joint Programme – Neurodegenerative Disease Research (JPND) and the Human Brain Project (HBP). During the last 3 years\, the EBRA partners worked to facilitate efficient collaboration\, communication and operational synergies\, including transparent procedures and setting up of governance mechanisms; foster alignment and better co-ordination of research strategies across European and global brain initiatives; facilitate the emergence of research projects in specific areas in active clusters\, and provide them with support for effective collaboration; and increase the visibility of the brain research portfolio as a whole and promote the uptake of EBRA results to key stakeholders. \nDuring this webinar\, we will focus on the importance of such coordination and collaboration in the brain space highlighting the Shared European Brain Research Agenda (SEBRA). In addition\, 2 EBRA clusters\, the  Predictive Models Systems (PREMOS) cluster and the European Cluster for Imaging Biomarkers (ECIB)\, will be showcased as examples of how coordination and collaboration can increase the impact of their community. They will shortly share the objectives and activities with the audience. These talks will be followed by a panel discussion with all the speakers on collaboration and coordination in brain research. FENS president\, Prof Jean-Antoine Girault\, will moderate the discussion. \nRegister here \nFENS Friday webinar – December 10th – mini programme \n  \n12:00:                                The importance of coordination and collaboration in brain research: The European Brain Council and the European Brain Research Area \nM. Di Luca \nTwo examples of coordination and collaboration in brain research: \n  \n12:10:                                Introduction to the Predictive Models Systems (PREMOS) cluster \nS. Holter-Koech \n12:20:                                Introduction to the European Cluster for Imaging Biomarkers (ECIB) \nThilo Van Eimeren \n12:30:                                Panel discussion on collaboration and coordination in brain research \nModerator: FENS representative: Jean-Antoine Girault\, FENS President. \n  \n12:45:                                    END
URL:https://www.braincouncil.eu/event/the-importance-of-coordination-and-collaboration-in-brain-research/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20211130T143000
DTEND;TZID=Europe/Paris:20211130T160000
DTSTAMP:20260415T003216
CREATED:20211025T081341Z
LAST-MODIFIED:20211123T092727Z
UID:32002-1638282600-1638288000@www.braincouncil.eu
SUMMARY:Best practices for patient safety: An EU-wide view on the use of medicines off-label
DESCRIPTION:Save the date: 30 November (14:30 – 16:00 CET)\nREGISTER HERE\nIn 2016\, the Declaration for Good Off-Label Use Practice was launched\, supported by a coalition of European organisations dedicated to ensuring that high standards of patient care are upheld and that progress in medical research and innovation is achieved. The GOLUP Declaration recommends that off-label use of medicinal products should only occur if certain criteria\, drawn together by independent experts\, are met. \nNow it becomes necessary also to take action at national level. On the one hand to actively involve national organisations and stakeholders working at local level\, allowing for a wider dissemination of the declaration. On the other hand\, to allow an exchange of ideas and experience among local actors\, to understand which paths to take in individual member states and to allow a continuous exchange of ideas and information. \nThis event follows the workshop on Patient safety and informed consent: The importance of good off-label use practices held on 17 June 2021. The purpose of this new digital event is to bring together patients\, clinicians and policy makers to ensure greater awareness of the use of medicines off-label through the exchange of ideas and best practices from different European countries. \nREGISTER HERE\n  \n 
URL:https://www.braincouncil.eu/event/best-practices-for-patient-safety-an-eu-wide-view-on-the-use-of-medicines-off-label/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211012T150000
DTEND;TZID=UTC:20211012T173000
DTSTAMP:20260415T003216
CREATED:20210920T094611Z
LAST-MODIFIED:20210920T095157Z
UID:31395-1634050800-1634059800@www.braincouncil.eu
SUMMARY:International Brain Initiative: Shaping the future of globally coordinated neuroscience
DESCRIPTION:The European Parliament Panel for the Future of Science and Technology (STOA) will hold a workshop with the International Brain Initiative on Shaping the future of globally coordinated neuroscience\, to take place virtually on 12 October at 15:00-17:30 CET. \nUnderstanding the human brain is one of the most significant challenges of our time. Despite considerable research\, neuroscientist still lack an integrative\, comprehensive understanding of the human brain. Neuroscience initiatives\, such as those funded by the EU and other countries\, are undertaking large-scale efforts to tackle this moonshot challenge. \nThe International Brain Initiative (IBI) has been established to coordinate efforts across existing and emerging national and regional brain initiatives. In this STOA workshop\, IBI representatives will describe the approach to shaping the future of international neuroscience collaborations through efforts in neuroethics\, data policy\, and the dissemination of scientific resources. The initiatives involved in the IBI aim to provide a robust forum for global information sharing and resources for collaborations. The event will be introduced with a talk by the 2014 Nobel Prize in Physiology or Medicine\, Professor Edvard MOSER and moderated by EBC President\, Prof. Monica Di Luca. \nThis STOA workshop will be livestreamed as part of the programme of the European Brain Summit\, which takes place on the afternoon of Day 1 of the Brain Innovation Days. \nFull programme details available here
URL:https://www.braincouncil.eu/event/international-brain-initiative-shaping-the-future-of-globally-coordinated-neuroscience/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20211012T133000
DTEND;TZID=Europe/Paris:20211012T180000
DTSTAMP:20260415T003216
CREATED:20210729T112345Z
LAST-MODIFIED:20210923T131106Z
UID:30367-1634045400-1634061600@www.braincouncil.eu
SUMMARY:European Brain Summit
DESCRIPTION:The European Brain Council and the EBRAINS Research Infrastructure are pleased to invite you to the first European Brain Summit\, a joint event that will take place on 12th October 2021 in Brussels from 13:30 to 18:00\, in conjunction with the Brain Innovation Days and Human Brain Project Summit. \nThis will be a unique opportunity to explore the challenge of understanding the brain and the role that Europe should continue to play in this endeavour. High-level speakers and experts will present their vision of the future of European brain health research in the context of the European Health Union. New innovative solutions and technological advancements will be highlighted. \nOur objective is to create a genuine momentum for scientific breakthroughs and policy advancement to the benefit of European citizens. \nMark your agenda now for this unique meeting to discuss ways of advancing brain research through scientific collaborations\, digital innovation\, data management and patient centricity. Registration will open soon. \nDISCOVER MORE
URL:https://www.braincouncil.eu/event/european-brain-summit/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211012
DTEND;VALUE=DATE:20211014
DTSTAMP:20260415T003216
CREATED:20210621T132558Z
LAST-MODIFIED:20210928T130816Z
UID:29713-1633996800-1634169599@www.braincouncil.eu
SUMMARY:Brain Innovation Days: United for Brain Innovation
DESCRIPTION:  \nWe are excited to announce that after one year of digital sessions\, the Brain Innovation Days will take place in person on 12-13 October 2021 in Brussels\, Belgium! \nUnder the overarching theme\, United for Brain Innovation\, the Brain Innovation Days will bring together key opinion leaders and stakeholders from the ever-growing brain innovation ecosystem to create synergies and showcase the importance of brain innovation. \nThis will take place over two days filled with policy-driven sessions\, application-led breakout sessions and Agoras\, an exhibition and showcase space\, matchmaking/networking activities and inspiring Brain Talks. \nFor more info and registration\, please visit braininnovationdays.eu
URL:https://www.braincouncil.eu/event/brain-innovation-days-united-for-brain-innovation/
LOCATION:Brussels\, Belgium
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211006T143000
DTEND;TZID=UTC:20211006T170000
DTSTAMP:20260415T003216
CREATED:20210920T085715Z
LAST-MODIFIED:20210920T085815Z
UID:31392-1633530600-1633539600@www.braincouncil.eu
SUMMARY:Third European Patient Advocacy Summit – Inclusion of the Patient Voice in HTA
DESCRIPTION:EBC will be present at the upcoming third European Patient Advocacy Summit\, organised by Pfizer. The 2021 capability strengthening programme will focus on patient participation in Health Technology Assessment (HTA)\, with an emphasis on involvement in early stages of the process and the future impact of an EU-wide HTA. The summit will be organised in three sessions via Webex\, to be held on October 6\, 13 and 20 from 2.30pm to 5.00pm C.E.T.  \nHTAs assess whether a new pharmaceutical innovation works better\, equally well\, or worse than existing alternatives\, while also considering its cost implications for the patient and impact on healthcare systems. As patients know what it is like to live with a disease and have the needed experiential knowledge on existing treatments and the desirability of innovations\, patient involvement is crucial at an early stage to ensure the full integration of patient perspective into HTA outcomes. This includes involvement in early dialogues\, working to identify technologies\, up to the development of the assessment by helping to set the scope and formulate research questions. However\, the type and level of patient involvement in early dialogue and assessments is varied across Europe\, reflecting the different rationale\, motivation and approach applied in each country. \nSuch differences aim to be tackled within the soon-to be adopted regulation for an EU-wide HTA\, as Member States will be called out to better cooperate\, work towards joint clinical assessments and identify emerging health technologies together. It’s important that patient organisations understand the implications of this new legislative framework on their engagement activities\, to best approach and integrate themselves within this complex\, yet vital HTA process. \nWith this in mind\, this Summit aims to empower your voice as a patient organisation in your national and pan-EU HTA processes\, by helping you to strengthen the advocacy skills needed to participate. Practical workshop sessions will recap the importance of patient participation\, provide an overview of the significance of the upcoming EU-wide HTA legislation\, explain where early dialogues and assessments fit into the overall HTA process and approaches to achieving effective patient input and practical examples of best practice. \nEBC will be represented by its Executive Director\, Frédéric Destrebecq\, presenting “The patient voice is at the core of Europe’s rapidly evolving health policy landscape”.
URL:https://www.braincouncil.eu/event/third-european-patient-advocacy-summit-inclusion-of-the-patient-voice-in-hta/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211003
DTEND;VALUE=DATE:20211008
DTSTAMP:20260415T003216
CREATED:20201209T093048Z
LAST-MODIFIED:20201209T093048Z
UID:26465-1633219200-1633651199@www.braincouncil.eu
SUMMARY:21st European Congress of Neurosurgery
DESCRIPTION:The European Association of Neurosurgical Societies (EANS) is both an independent federation of European national neurosurgical societies and a fast-developing association of individual neurosurgeons from around the world. \nWe are a professional community whose aim is to enhance the quality of neurosurgical patient care through training\, education and research. A key way in which we fulfil this objective is by facilitating the exchange of scientific information at the highest level through the organisation of meetings\, symposia and educational courses – with the annual Congress as our flagship event.\n\n\n\nWebsite: http://www.eans.org/events/
URL:https://www.braincouncil.eu/event/21st-european-congress-of-neurosurgery/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211002
DTEND;VALUE=DATE:20211006
DTSTAMP:20260415T003216
CREATED:20201209T091217Z
LAST-MODIFIED:20201209T091217Z
UID:26461-1633132800-1633478399@www.braincouncil.eu
SUMMARY:34th ECNP Congress
DESCRIPTION:The annual ECNP Congress is Europe’s premier scientific meeting for disease-oriented brain research\, annually attracting between 4\,000 and 6\,000 neuroscientists\, psychiatrists and neurologists from around the world. \nECNP is an independent scientific association dedicated to the science and treatment of disorders of the brain. It is the largest non-institutional supporter of applied and translational neuroscience research and education in Europe. \nVisit the website.
URL:https://www.braincouncil.eu/event/34th-ecnp-congress/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210901
DTEND;VALUE=DATE:20210904
DTSTAMP:20260415T003216
CREATED:20210202T110527Z
LAST-MODIFIED:20210406T080739Z
UID:27659-1630454400-1630713599@www.braincouncil.eu
SUMMARY:7th European Stroke Organisation Conference
DESCRIPTION:  \nThe 7th European Stroke Conference will take place online\, from 1 – 3 September 2021. Once again we’ll come together to learn about the latest trial results\, new technologies\, hear innovative ideas and begin to understand how our future is being shaped by them. \nMore info here.
URL:https://www.braincouncil.eu/event/7th-european-stroke-conference/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20210827T150000
DTEND;TZID=Europe/Helsinki:20210827T160000
DTSTAMP:20260415T003216
CREATED:20210723T124731Z
LAST-MODIFIED:20210723T125648Z
UID:30251-1630076400-1630080000@www.braincouncil.eu
SUMMARY:EBRA at FENS Regional Meeting
DESCRIPTION:This Special Event will introduce you to the Shared Brain Research Agenda (SEBRA)\, which aims to identify research opportunities and research and innovation gaps to be addressed in the field and to provide recommendations on future areas for brain research in Europe. SEBRA is framed within the European Brain Research Area project\, coordinated by the European Brain Council. \nThe FRM 2021 is organized jointly by the Polish Neuroscience Society (PNS) and the Lithuanian Neuroscience Association (LNA) under the auspices and with support from the Federation of the European Neuroscience Societies (FENS)\, and also with support from the International Brain Research Organization Pan-Europe Regional Committee (IBRO PERC). The FRM 2021 original city venue was Krakow\, however\, due to the COVID-19 pandemic\, the Organizing Committee decided to hold the event on-line to ensure all attendees may meet safely. \nThe conference will present the latest developments in neuroscience research and host panel discussions on topics ranging from directions for future development to diversity issues in the academia. Traditionally\, the Regional Meetings foster interactions among the researchers in the region. This year\, we want to take the on-line format as an opportunity\, and showcase neuroscience research in our region to the global community \nFor more info\, please visit fensfrm2021.pl
URL:https://www.braincouncil.eu/event/ebra-at-fens-regional-meeting/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210825T080000
DTEND;TZID=UTC:20210827T170000
DTSTAMP:20260415T003216
CREATED:20201209T084115Z
LAST-MODIFIED:20201209T084115Z
UID:26459-1629878400-1630083600@www.braincouncil.eu
SUMMARY:FENS Regional Meeting
DESCRIPTION:The FENS Regional Meeting (FRM) set to take place on 25-27 August 2021\, and jointly organised by the Polish Neuroscience Society and the Lithuanian Neuroscience Association\, will take place as an online meeting. \nIn light of the challenges presented by the pandemic across Europe and the continuing uncertainty of the global health situation\, the Organising Committee has decided to hold the FRM as a virtual conference. Read the announcement on the FRM website. \nFENS supports this decision which will allow the Organising Committee to design an event that will offer attendees an enhanced online experience. The virtual FRM will be an excellent platform for strengthening neuroscience regionally in all European countries\, promoting scientific exchange within and across European regions\, and securing representation and access to the FRM programme for all scientists. As such\, it also reflects FENS’ and its member societies’ active commitment towards the values of inclusiveness\, diversity and equality in neuroscience. \nFENS is looking forward to supporting the Polish Neuroscience Society and the Lithuanian Neuroscience Association in the organisation of the FRM.
URL:https://www.braincouncil.eu/event/fens-regional-meeting/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210629T083000
DTEND;TZID=UTC:20210629T110000
DTSTAMP:20260415T003216
CREATED:20210526T113226Z
LAST-MODIFIED:20210526T113303Z
UID:29343-1624955400-1624964400@www.braincouncil.eu
SUMMARY:OneNeurology Global Advocacy Workshop
DESCRIPTION:EBC recently joined the OneNeurology Partnership. The focus of this Partnership in 2021 will be in influencing the development of the World Health Organisation’s new Global Action Plan on epilepsy and other neurological disorders [GAP]. \nThe GAP represents a unique opportunity to build an integrated response to neurology across the life course and within healthcare systems – to improve lives of people living with neurological disorders worldwide. However\, to be successful\, we need to mobilise the community to ensure that the plan serves the needs of all those living with neurological disorders across the globe. \nWe are now searching for effective advocates at national and regional levels to get involved\, in working with us to develop our response to the first draft of the GAP\, and to advocate at all levels for a plan that addresses the real burden of neurological disorders. \nIf you are interested in learning more and getting actively involved\, the OneNeurology Partnership will host\, on June 29th 2021\, a virtual Global Advocacy Workshop where we will: \n\nPresent the first draft of the GAP to advocates worldwide\nPresent the views of the OneNeurology Partnership on the first draft of the GAP\nBring together neurology advocates from across the world (regional and national)\, to gather their perspectives on the GAP – based on their region/disease area/stakeholder group.\nEmpower global advocates with the information\, tools and resources needed to ensure a coordinated response to the GAP consultation via submissions\, regional hearings and outreach to national policy makers.\n\nThe event is open to individual health care professionals\, researchers\, people living with neurological disorders\, their carers or anyone else who is interested in engaging in neurology advocacy. Advocates may also come from the organisations who represent these various stakeholder groups. \nTo cater for all timezones\, there will be two sessions during the day. \nSession 1: 8.30-11am CET or Session 2: 4.30-7pm CET \nSign up before June 20th at this link: https://forms.gle/TReR19f1oCtznGVK9 \nOr find out more at: www.oneneurology.net \n 
URL:https://www.braincouncil.eu/event/oneneurology-global-advocacy-workshop/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210622T130000
DTEND;TZID=UTC:20210622T143000
DTSTAMP:20260415T003216
CREATED:20210406T064730Z
LAST-MODIFIED:20210601T135909Z
UID:28570-1624366800-1624372200@www.braincouncil.eu
SUMMARY:EBRA at EAN: Special Session 14: The European Brain Research Area
DESCRIPTION:During the 7th EAN Congress in June 2021\, EBRA will hold a roundtable in Room Seville addressing the importance of cooperation and collaboration in the European brain space and presenting more about the project. \nEBRA clusters\, partners\, policymakers\, clinicians and patient representatives will participate discussing among other topics:\n\nThe priorities\, gaps and enabling actions in brain research in Europe\nHow to promote European brain research in the world?\nUnderstanding the importance of operational coordination of brain research in Europe\nUnderstanding the value of coordination in brain research communities\nActivities to enhance coordination in brain research\n\nTo have more information on the Congress and register for the event\, please visit the official website.
URL:https://www.braincouncil.eu/event/ebra-at-ean-special-session-14-the-european-brain-research-area/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210621T113000
DTEND;TZID=UTC:20210621T115000
DTSTAMP:20260415T003216
CREATED:20210601T113726Z
LAST-MODIFIED:20210601T113919Z
UID:29439-1624275000-1624276200@www.braincouncil.eu
SUMMARY:EAN2021 Scientific Theatre - The Value of Treatment Project: The Value of Early Coordinated Care for Patients Affected by Rare Neurological Diseases
DESCRIPTION:The 2nd round of the EBC Value of Treatment project will be presented at the Scientific Theatre at the upcoming EAN Congress 2021. EBC Vice President\, Prof. Wolfgang Oertel\, will present The Value of Treatment Project: The Value of Early Coordinated Care for Patients Affected by Rare Neurological Diseases on 21 June 2021\, from 11:30 to 11:50. \nMotivated by addressing the existing gaps in the care pathways\, the EBC Study on Ataxia\, Dystonia and Phenylketonuria (PKU) aims to assess the benefits of early coordinated care and treatment\, multidisciplinary care patterns (also addressing comorbidity) and health care providers education on outcomes to patients and costs.
URL:https://www.braincouncil.eu/event/ean2021-scientific-theatre-the-value-of-treatment-project-the-value-of-early-coordinated-care-for-patients-affected-by-rare-neurological-diseases/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210619
DTEND;VALUE=DATE:20210623
DTSTAMP:20260415T003216
CREATED:20201209T083625Z
LAST-MODIFIED:20201209T083625Z
UID:26457-1624060800-1624406399@www.braincouncil.eu
SUMMARY:7th Congress of the European Academy of Neurology - Virtual 2021
DESCRIPTION:The European Academy of Neurology has decided to go virtual again for the 7th EAN Congress on June 19-22\, 2021\, originally to be held in Vienna. \nOnce again\, we look forward to offering you the opportunity to learn from experts in your field\, grow your professional network\, and discover the latest best practices in neurology\, all in the comfort of your home. Building on our experience from the EAN Virtual Congress 2020\, we will utilise the very best technical solutions to provide you with a virtual experience as comfortable and rewarding as the real thing. \nMore info on the website.
URL:https://www.braincouncil.eu/event/7th-congress-of-the-european-academy-of-neurology-virtual-2021/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20210617T143000
DTEND;TZID=Europe/Paris:20210617T160000
DTSTAMP:20260415T003216
CREATED:20210428T132357Z
LAST-MODIFIED:20210615T070646Z
UID:28876-1623940200-1623945600@www.braincouncil.eu
SUMMARY:Patient safety and informed consent: The importance of good off-label use practices
DESCRIPTION:In 2016\, the Declaration for Good Off-Label Use Practice was launched\, supported by a coalition of European organisations dedicated to ensuring that high standards of patient care are upheld and that progress in medical research and innovation is achieved. The GOLUP Declaration recommends that off-label use of medicinal products should only occur if certain criteria\, drawn together by independent experts\, are met. \nFive years later\, the time has come to take a step forward\, to look back at what has been achieved and to prepare for future developments. It becomes necessary not only to take an EU-wide view of the use of off-label medicines but also to take action at the national level. \nThe purpose of this event is to allow an exchange of ideas and experience among stakeholders and local actors\, to understand which paths to take in individual Member States and to allow a continuous exchange of ideas and information on the off-label use of medicines. \nRegister here\nDiscover the declaration\nSpeakers\nCyrus Engerer\nMember of the European Parliament\nGraduated in European Union Politics and Law\, Cyrus Engerer became a Member of European Parliament in 2020 whereby he sits as a full member on the Committee for Environment\, Public Health and Food Safety (ENVI) and on the Special Committee Beating Cancer. He is also substitute member on the Committee on Civil Liberties\, Justice and Home Affairs (LIBE) and on the Committee on Industry\, Research and Energy (ITRE). During the first six months of his role as a Maltese Member of European Parliament\, Engerer became the co-chair of the Mental Health Coalition. \nOther notable successes in the last 6 months include becoming the lead negotiator for the Socialists and Democrats regarding the historic declaration of the EU as an LGBTI Freedom Zone following his appointment to the Committee on Civil Liberties and became one of the\nmost vocal MEPs on healthcare issues relating to the Covid-19 Pandemic following his appointment to the Committee on Environment and Health. He has also been appointed as the shadow rapporteur for the Socialists and Democrats on the ENVI Opinion concerning the protection of workers from asbestos. \nFollowing a lengthy career in politics\, which included posts such as the Personal Representative of the Maltese Prime Minister to the European Institutions responsible for the European Parliament. During the Maltese Presidency of the European Union\, Engerer was the President of the General Affairs Committee and negotiator for the Council of Ministers with the European Parliament. Most recently before he got elected to the European Parliament he worked as an advisor to the Maltese Minister for the Environment\, Climate Change and Planning. Earlier in his career\, Engerer worked in numerous Ministries\, political entities and in EU funding. \nCyrus is a leading activist for Civil Liberties in Malta. He was the spokesperson for the Stand UP! Campaign which led to the introduction of divorce in Malta and he chaired LGBTIQ Labour. After 2013\, the Government appointed Engerer as the first Chairperson of the LGBTIQ\nConsultative Committee which was tasked with the introduction of a number of equality laws in Malta. \nHe is 39 years old and is the partner of Randolph De Battista. \nCoriene Catsman-Berrevoets\nEuropean Paediatric Neurology Society (EPNS)\nCoriene Catsman-Berrevoets has been a Paediatric Neurologist for over 30 years.  She was associate professor and head of the department of Paediatric Neurology at the ErasmusMC / Sophia Children’s Hospital in Rotterdam\, the Netherlands until December 2019 when she retired from management functions to be able to concentrate again on care for paediatric neurology patients and research. \nShe has a wide interest in paediatric neurological topics but acquired brain injury and its neurocognitive sequelae\,  be it through mechanisms as traumatic brain injury\, immune-mediated diseases\, paediatric stroke or brain tumour has always been her main topic of research.  On these topics\, she published more than 200 papers. \nShe served in the board of the Dutch Society of Paediatric Neurology from 1995 and from 2004-2010 as President. She was board member of the Posterior Fossa Society from  2014 and Chair of this Society from 2016-2018.  She has been an elected board member of the European Paediatric Neurology Society 2004 and Chair of the EPNS Education and Training Committee since 2014. Since 2014 she is Chair of the Committee of National advisors to EPNS and the Training Advisory Board. In this role\, she took the lead in the revision of the European training syllabus for paediatric neurologists and evaluated national training programmes in Spain and Georgia. Also\, she was responsible for the organization of multiple EPNS international training events in Budapest\, Alicante\,  Cambridge\, Tblisi\, Astana and Tashkent. More recently during the COVID pandemics\, she was responsible for organizing several virtual  EPNS training courses and monthly webinars. She was member of the organizing Committee of the International Child Neurology Congress in Amsterdam in 2016\, She is member of the advisory boards of the Dutch Neurofibromatosis Society and the Society of patients with Sturge Weber Syndrome and member of various Dutch multidisciplinary professional networks that support organizations of patients with Acquired Brain Injury. \nMarc Dooms\nUniversity Hospitals Leuven\nMr. Dooms (Pharm D) is Senior Orphan Drug Pharmacist at the University Hospitals Leuven. He is compounding/dispensing pharmacist in First in Men Randomized Clinical Trials. He has been a member of the Belgian Order of Pharmaceutical Sciences and the Flemish Society of Hospital Pharmacists (VZA) since 1975 and the Belgian representative to the European Union of Experts in Rare Diseases with frequent collaboration with Orphanet\, the European Society of Clinical Pharmacy\, and the American Society of Health Care Pharmacists\, among others\, since 2000. \nMarc Dooms received his pharmacist diploma at the Catholic University of Leuven\, where he graduated in 1973. In 1974\, he was pharmacy teaching studies certificated at the Catholic University of Leuven\, and in 1975 pursued an internship in Clinical Pharmacy at St John’s University and Columbia University\, New York\, with a special interest in orphan drugs\, compounding of topical therapy and First in Men randomized clinical trials. \nMr. Dooms is founding member of the Belgian National Board on Orphan Drugs within the King Baudouin Foundation and is a graduate-level teacher in dermatological compounding\, drug adherence\, and orphan drugs\, since 2010. He is also teaching pharmaceutical technicians at Leuven Syntra School. He has co-authored a number of publications on orphan drugs. \nFrédéric Destrebecq\nEuropean Brain Council\nFrédéric Destrebecq is the Executive Director of the European Brain Council since October 2014. In this capacity\, he is responsible for providing strategic direction and leadership while managing the day to day operations of EBC and its ongoing relationships with its member associations and other stakeholders\, as well as representing the organisation in various European and national forums. \nPrior to this position\, Fred served the European Union of Medical Specialists (UEMS) as Chief Executive Officer\, and previously as Director for European Affairs. Fred holds a Master Degree in Political Science and International Relations from the Université Catholique de Louvain (Belgium). He also studied at the Institut d’Etudes Politiques (Paris) and University of Wales College (Cardiff)\, in the framework of the former EU Socrates exchange programme. \nAdela Maghear\nEuropean Cancer Patient Coalition\nAdela is a graduate in pharmacy studies and holds two PhD degrees; one in Medical Sciences (Field of Pharmacy) and another in Chemistry awarded by the University of Medicine and Pharmacy Cluj-Napoca (Romania) and University of Lorraine (France)\, respectively. \nWith a strong focus on environmental safety\, her research work and scientific publications have dealt with a wide range of subjects. In 2015\, she changed career paths when she received the Robert Schuman scholarship at the European Parliament Research Service in Brussels. Her career within the field of health policies continued as she became a member of the European Health Parliament\, Antimicrobial Resistance Committee\, that same year. \nIn 2016\, she ushered her skills and expertise in the fields of health and environment to ‘Health Care Without Harm Europe’ where she spearheaded the organisation’s policy work related to pharmaceuticals in the environment and antimicrobial resistance. She developed and led the Safer Pharma Campaign\, aimed to ensure legislation in place\, in order to minimise pharmaceutical pollution as the end goal. \nHer work has been cited in international journals such as The Telegraph\, ChemicalWatch UK\, Pharmaceutical Technology\, Market Business News etc. In 2019\, she worked as an independent Science Advisor leading projects on antimicrobial resistance. \nIn 2020\, she has joined ECPC as Senior EU Affairs Officer leading the policy work of the organisation and coordinating the activities of the Challenge Cancer Parliamentary Intergroup. \nJana Hlaváčová\nEuropean Multiple Sclerosis Platform’s \nJana Hlavacova is herself MS patient for almost 10 years\, all this time she has been active as patient advocate in the Czech Republic and on the European level as well thanks to European Multiple Sclerosis Platform (EMSP). Since 2015 she has been a member of EMSP’s young people’s network\, now she serves as a member of the Executive Committee.\n\nShe was also active in the Czech Civic Association SMS – an association of and for young people with MS in the Czech Republic\, which she led between 2014 and 2016. \nShe currently works for the Ministry of Health of the Czech Republic\, where she coordinates a new agenda of support of and cooperation with patients and patient organisations and patient involvement in decision-making. She is especially interested in real-world data\, patient-reported outcomes and patient involvement in HTA.
URL:https://www.braincouncil.eu/event/golup-off-label-use-event/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20210615T173000
DTEND;TZID=Europe/Paris:20210615T183000
DTSTAMP:20260415T003216
CREATED:20210608T080616Z
LAST-MODIFIED:20210608T080644Z
UID:29543-1623778200-1623781800@www.braincouncil.eu
SUMMARY:EBC at the Africa - Europe Science and Innovation Platform
DESCRIPTION:AERAP is a response to the call of the European Parliament\, through the adoption of its Written Declaration 45 “on Science Capacity Building in Africa: promoting European-African radio astronomy partnerships”. This call was repeated by the Heads of State of the African Union\, through their decision “Assembly/AU/Dec.407 CXVIII”\, for radio astronomy to be a priority focus area for Africa—EU cooperation. The European Parliament and African Union recognise radio astronomy as a driver of technological development in a wide range of research and industry sectors. Africa-EU collaboration in radio astronomy can open new innovation opportunities in these sectors for companies and research institutes across both continents. Stakeholders from these communities have set up the African-European Radio Astronomy Platform (AERAP). \nAERAP will organise the “Africa-Europe Science and Innovation Summit” on the 15th to 17th of June 2021. \nMonica Di Luca\, EBC President\, will participate in a panel on 15 June at 17:30 – 16:30 opened by Maria Cristina Messa\, Italian Minister for Universities and Research. \nMore information on the panel here.
URL:https://www.braincouncil.eu/event/ebc-at-the-africa-europe-science-and-innovation-platform/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20210609T130000
DTEND;TZID=Europe/Paris:20210609T160000
DTSTAMP:20260415T003216
CREATED:20210517T074403Z
LAST-MODIFIED:20210531T133005Z
UID:29116-1623243600-1623254400@www.braincouncil.eu
SUMMARY:Myalgic Encephalomyelitis in Europe: Roundtable of European Stakeholders and Policymakers
DESCRIPTION:Following joint planning sessions\, EMEA and EFNA (European Federation of Neurological Associations) are arranging a multi-stakeholder\, roundtable meeting on Myalgic Encephalomyelitis (ME/CFS) in Europe. \nThe meeting will bring together a variety of initial stakeholders in Europe\, including clinicians\, researchers\, policymakers\, industry and patient representatives from EMEA’s members\, in order to create a better understanding of the many unmet needs and the devastating impact of ME/CFS on patients and families across generations. \nThe meeting will also include discussions on the implications of Long COVID – including similarities to ME/CFS. \nFor more information\, click here.
URL:https://www.braincouncil.eu/event/a-roundtable-of-european-stakeholders-and-policymakers/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210609
DTEND;VALUE=DATE:20210612
DTSTAMP:20260415T003216
CREATED:20210506T140352Z
LAST-MODIFIED:20210506T141258Z
UID:29007-1623196800-1623455999@www.braincouncil.eu
SUMMARY:EMSP 2021 Virtual Conference
DESCRIPTION:The EMSP 2021 Annual Conference will be held virtually and will be taking place online on the 9th\, 10th and 11th June. \nThe theme of this year’s conference is “MS Care in a Changing World”\, with special focus on the healthcare professionals and non-professional caregivers for MS patients\, and how everyone has had to adapt to the worldwide upheaval since 2020. \nThe #EMSPVirtual2021 Conference aims at gathering the Multiple Sclerosis (MS) community and providing learning and networking opportunities for the MS societies\, healthcare professionals\, individual patients\, and other important stakeholders from the MS field across Europe. \nBuilding on its success in bringing together over 800 key delegates from Europe\, EMSP will relaunch virtually this unique conference experience on the 9th\, 10th and 11th June 2021. \nFor more info\, please visit: https://emspconference.org/
URL:https://www.braincouncil.eu/event/emsp-2021-virtual-conference/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210608T130000
DTEND;TZID=UTC:20210608T173000
DTSTAMP:20260415T003216
CREATED:20210318T192745Z
LAST-MODIFIED:20211026T090546Z
UID:28316-1623157200-1623173400@www.braincouncil.eu
SUMMARY:Value of Treatment 2 Synthesis Meeting
DESCRIPTION:  \nThe European Brain Council (EBC) is pleased to invite you for the Value of Treatment 2 (VOT 2) Synthesis Meeting\, to be held virtually on 8 June 2021 (13:00-17:00 CET). Experts participating in the research will present a synthesis of the results so far and examine the most critical issues in brain diseases in Europe from different perspectives including policymakers\, innovators\, academia and industry\, medical professionals and patient organisations. \n  \nStudy background\nValue of Treatment (VOT) for brain disorders\nThe Value of Treatment (VOT) for brain disorders is a health economics and outcomes research project addressing all brain disorders and coordinated by EBC. Brain disorders – both neurological and mental alike – constitute a major factor\, alongside cancers and cardiovascular diseases\, driving the overall burden of diseases in Europe. Neurological and psychiatric disorders across all lifespans are the leading cause of poor health and disability in Europe. The conclusions of the VOT research project first round released in 2017 (which included case studies on disorders ranging from schizophrenia to Alzheimer’s disease\, epilepsy\, headache\, normal pressure hydrocephalus\, Parkinson’s disease\, multiple sclerosis\, restless legs syndrome and stroke) highlighted the need for more research\, early\, if possible prodromal\, diagnosis and intervention\, integrated seamless care underpinning timely care pathways as a solution to address value-based health care in Europe and access to the best treatments available.   \nValue of Treatment (VOT 2): a second round of case studies\nIn the continuity of these conclusions and in the framework of the VOT research\, a second round of case studies (VOT2) have been developed on new therapeutic areas focusing on rare diseases (Ataxia\, Dystonia and Phenylketonuria) and mental disorders (Anorexia Nervosa\, Autism Spectrum Disorder\, Major Depressive Disorder). The study to be finalised in 2021 is focusing on “early intervention\, bridging the gaps and achieving seamless\, coordinated care”\, and the objective is to examine health gains resulting from optimized healthcare interventions in comparison with current care or no treatment\, and converge data evidence to policy recommendations on how to improve the care pathway(s). Previous joint working sessions aimed to exchange and build synergy between the research-work and DG Sante Rare diseases European Reference Networks (ERNs) programme and research as well as the PECUNIA project from the EU Framework on mental health and well-being. Beyond the research design and considering current context\, the impact of COVID-19 on treatment and healthcare transformation is also explored.  \n  \nClick here to view the programme \nDownload the event report \n  \nPlease see below the final agenda: \nAGENDA VOT2 SYNTHESIS MEETING 8 June 2021 - FINAL
URL:https://www.braincouncil.eu/event/value-of-treatment-2-synthesis-meeting/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20210603T103000
DTEND;TZID=Europe/Brussels:20210603T130000
DTSTAMP:20260415T003216
CREATED:20210525T145216Z
LAST-MODIFIED:20210531T133305Z
UID:29317-1622716200-1622725200@www.braincouncil.eu
SUMMARY:Open co-design workshop on next generation tools to manage Amyotrophic Lateral Sclerosis and Multiple Sclerosis
DESCRIPTION:Started on January 2021\, the 4 years Horizon 2020 BRAINTEASER project seeks to exploit the value of artificial intelligence\, big data—including those related to health\, lifestyle habits and environment—\, low-cost sensors and smart apps to support patients living with amyotrophic lateral sclerosis (ALS) and multiple sclerosis (MS) and their caregivers. Its goal is to develop patient stratification and disease progression models to detect\, alleviate and manage the negative impact induced by factors that contribute to the diseases cause\, progression and survival. The BRAINTEASER multidisciplinary approach\, guided by a strong focus on co-design methodologies\, will pave the path for patients toward a healthier and more fulfilling life and will support the enhancement of public health systems’ capacities to adopt a more predictive and personalised approach to health. \nThe initial BRAINTEASER technical solution will be presented during the “Open co-design workshop on next generation tools to manage ALS and MS” workshop. External experts and the audience will be involved in a collaborative and participative discussion on clinical unmet needs\, disease course\, clinical practice and new emerging research on ALS and MS to assess the BRAINTEASER solution and propose possible refinements. \nClick here to view workshop details\, registration link and agenda. \nBRAINTEASER_open co-design workshop agenda_FINAL_3rd June 2021
URL:https://www.braincouncil.eu/event/open-co-design-workshop-on-next-generation-tools-to-manage-amyotrophic-lateral-sclerosis-and-multiple-sclerosis/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210527T110000
DTEND;TZID=UTC:20210527T121500
DTSTAMP:20260415T003216
CREATED:20210427T132800Z
LAST-MODIFIED:20210427T133038Z
UID:28858-1622113200-1622117700@www.braincouncil.eu
SUMMARY:“Brain and machine: Improving MS care in a digital age”
DESCRIPTION:  \nThe rapid development of COVID-19 vaccines is perhaps the clearest example of cumulative medical innovationㅡand its undisputed power to transform lives. But scientific innovation has not been limited to the race for immunity. From telemedicine and portable diagnostics to digital therapeutics and blockchain\, digital technologies are reshaping health-care delivery―and could play a transformative role in the future. \nThis is nowhere truer than with multiple sclerosis (MS)\, a neurological condition for which there is currently no cure. From disease-modifying treatments to improved tools for monitoring disease activity\, significant progress has been made in improving the quality of life of people affected by MS. Yet there is still a long way to go to better understand and respond to the disease. Digital products such as remote-monitoring tools and wearable devices and sensors offer the potential to deliver personalised and improved care to those affected by MS. But accelerating the pace of innovation requires effective policies and sufficient investment for research. Above all\, the needs of patients must be at the forefront\, with open dialogue between policymakers\, industry leaders and health professionals. \nThis digital event\, supported by Biogen\, EBC and EU40\, will convene biotechnology leaders\, policymakers\, medical professionals\, advocacy groups and patient advocates to examine how the digital revolution is transforming health-care delivery. In the approach to World MS Day\, recognized on 30 May 2021\, the event will take a focused look at the progress that has been made in treating MS\, and will examine how to accelerate further advances. \nRead more here and register now!
URL:https://www.braincouncil.eu/event/brain-and-machine-improving-ms-care-in-a-digital-age/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210427T123000
DTEND;TZID=UTC:20210427T140000
DTSTAMP:20260415T003216
CREATED:20210331T104636Z
LAST-MODIFIED:20210413T123739Z
UID:28488-1619526600-1619532000@www.braincouncil.eu
SUMMARY:Brain Innovation Days: Fast-tracking brain innovation in times of COVID-19
DESCRIPTION:  \nThe last 14 months have been a most testing time for the world in general and for global health in particular. COVID-19 took the world by surprise as weaknesses were exposed in public health systems’ preparedness to face pandemics and we continue to face the consequences over a year on. However\, the emergence of COVID-19 has also succeeded in accelerating innovation in science\, treatments\, healthcare and health management. \nPositive results have been observed where a stronger emphasis on collaboration among different players was placed. From researchers to clinicians to community to biotech\, public-private partnerships were strengthened\, and\, thanks to increased responsiveness from authoritative bodies\, more agile ways of fast-tracking innovation were set in motion. \nThe purpose of this Brain Innovation Days digital session\, the 3rd in the series\, is to explore the positive direct and indirect results of COVID-19 pandemic response and research on the brain innovation ecosystem. The session will feature key opinions leaders\, patient testimonials\, clinicians\, representatives from the EU and WHO level and the industries that were forced to adapt to this rapid change of pace in innovation. \nRegister now!
URL:https://www.braincouncil.eu/event/brain-innovation-days-fast-tracking-brain-innovation-in-times-of-covid-19/
END:VEVENT
END:VCALENDAR