BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//European Brain Council (EBC) - ECPv6.15.19//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:European Brain Council (EBC)
X-ORIGINAL-URL:https://www.braincouncil.eu
X-WR-CALDESC:Events for European Brain Council (EBC)
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20200101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Europe/Helsinki
BEGIN:DAYLIGHT
TZOFFSETFROM:+0200
TZOFFSETTO:+0300
TZNAME:EEST
DTSTART:20200329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0300
TZOFFSETTO:+0200
TZNAME:EET
DTSTART:20201025T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0200
TZOFFSETTO:+0300
TZNAME:EEST
DTSTART:20210328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0300
TZOFFSETTO:+0200
TZNAME:EET
DTSTART:20211031T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0200
TZOFFSETTO:+0300
TZNAME:EEST
DTSTART:20220327T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0300
TZOFFSETTO:+0200
TZNAME:EET
DTSTART:20221030T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Europe/Paris
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20200329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20201025T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20210328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20211031T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20220327T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20221030T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Europe/Brussels
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20200329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20201025T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20210328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20211031T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20220327T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20221030T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211003
DTEND;VALUE=DATE:20211008
DTSTAMP:20260415T094539
CREATED:20201209T093048Z
LAST-MODIFIED:20201209T093048Z
UID:26465-1633219200-1633651199@www.braincouncil.eu
SUMMARY:21st European Congress of Neurosurgery
DESCRIPTION:The European Association of Neurosurgical Societies (EANS) is both an independent federation of European national neurosurgical societies and a fast-developing association of individual neurosurgeons from around the world. \nWe are a professional community whose aim is to enhance the quality of neurosurgical patient care through training\, education and research. A key way in which we fulfil this objective is by facilitating the exchange of scientific information at the highest level through the organisation of meetings\, symposia and educational courses – with the annual Congress as our flagship event.\n\n\n\nWebsite: http://www.eans.org/events/
URL:https://www.braincouncil.eu/event/21st-european-congress-of-neurosurgery/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211002
DTEND;VALUE=DATE:20211006
DTSTAMP:20260415T094539
CREATED:20201209T091217Z
LAST-MODIFIED:20201209T091217Z
UID:26461-1633132800-1633478399@www.braincouncil.eu
SUMMARY:34th ECNP Congress
DESCRIPTION:The annual ECNP Congress is Europe’s premier scientific meeting for disease-oriented brain research\, annually attracting between 4\,000 and 6\,000 neuroscientists\, psychiatrists and neurologists from around the world. \nECNP is an independent scientific association dedicated to the science and treatment of disorders of the brain. It is the largest non-institutional supporter of applied and translational neuroscience research and education in Europe. \nVisit the website.
URL:https://www.braincouncil.eu/event/34th-ecnp-congress/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210901
DTEND;VALUE=DATE:20210904
DTSTAMP:20260415T094539
CREATED:20210202T110527Z
LAST-MODIFIED:20210406T080739Z
UID:27659-1630454400-1630713599@www.braincouncil.eu
SUMMARY:7th European Stroke Organisation Conference
DESCRIPTION:  \nThe 7th European Stroke Conference will take place online\, from 1 – 3 September 2021. Once again we’ll come together to learn about the latest trial results\, new technologies\, hear innovative ideas and begin to understand how our future is being shaped by them. \nMore info here.
URL:https://www.braincouncil.eu/event/7th-european-stroke-conference/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20210827T150000
DTEND;TZID=Europe/Helsinki:20210827T160000
DTSTAMP:20260415T094539
CREATED:20210723T124731Z
LAST-MODIFIED:20210723T125648Z
UID:30251-1630076400-1630080000@www.braincouncil.eu
SUMMARY:EBRA at FENS Regional Meeting
DESCRIPTION:This Special Event will introduce you to the Shared Brain Research Agenda (SEBRA)\, which aims to identify research opportunities and research and innovation gaps to be addressed in the field and to provide recommendations on future areas for brain research in Europe. SEBRA is framed within the European Brain Research Area project\, coordinated by the European Brain Council. \nThe FRM 2021 is organized jointly by the Polish Neuroscience Society (PNS) and the Lithuanian Neuroscience Association (LNA) under the auspices and with support from the Federation of the European Neuroscience Societies (FENS)\, and also with support from the International Brain Research Organization Pan-Europe Regional Committee (IBRO PERC). The FRM 2021 original city venue was Krakow\, however\, due to the COVID-19 pandemic\, the Organizing Committee decided to hold the event on-line to ensure all attendees may meet safely. \nThe conference will present the latest developments in neuroscience research and host panel discussions on topics ranging from directions for future development to diversity issues in the academia. Traditionally\, the Regional Meetings foster interactions among the researchers in the region. This year\, we want to take the on-line format as an opportunity\, and showcase neuroscience research in our region to the global community \nFor more info\, please visit fensfrm2021.pl
URL:https://www.braincouncil.eu/event/ebra-at-fens-regional-meeting/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210825T080000
DTEND;TZID=UTC:20210827T170000
DTSTAMP:20260415T094539
CREATED:20201209T084115Z
LAST-MODIFIED:20201209T084115Z
UID:26459-1629878400-1630083600@www.braincouncil.eu
SUMMARY:FENS Regional Meeting
DESCRIPTION:The FENS Regional Meeting (FRM) set to take place on 25-27 August 2021\, and jointly organised by the Polish Neuroscience Society and the Lithuanian Neuroscience Association\, will take place as an online meeting. \nIn light of the challenges presented by the pandemic across Europe and the continuing uncertainty of the global health situation\, the Organising Committee has decided to hold the FRM as a virtual conference. Read the announcement on the FRM website. \nFENS supports this decision which will allow the Organising Committee to design an event that will offer attendees an enhanced online experience. The virtual FRM will be an excellent platform for strengthening neuroscience regionally in all European countries\, promoting scientific exchange within and across European regions\, and securing representation and access to the FRM programme for all scientists. As such\, it also reflects FENS’ and its member societies’ active commitment towards the values of inclusiveness\, diversity and equality in neuroscience. \nFENS is looking forward to supporting the Polish Neuroscience Society and the Lithuanian Neuroscience Association in the organisation of the FRM.
URL:https://www.braincouncil.eu/event/fens-regional-meeting/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210629T083000
DTEND;TZID=UTC:20210629T110000
DTSTAMP:20260415T094539
CREATED:20210526T113226Z
LAST-MODIFIED:20210526T113303Z
UID:29343-1624955400-1624964400@www.braincouncil.eu
SUMMARY:OneNeurology Global Advocacy Workshop
DESCRIPTION:EBC recently joined the OneNeurology Partnership. The focus of this Partnership in 2021 will be in influencing the development of the World Health Organisation’s new Global Action Plan on epilepsy and other neurological disorders [GAP]. \nThe GAP represents a unique opportunity to build an integrated response to neurology across the life course and within healthcare systems – to improve lives of people living with neurological disorders worldwide. However\, to be successful\, we need to mobilise the community to ensure that the plan serves the needs of all those living with neurological disorders across the globe. \nWe are now searching for effective advocates at national and regional levels to get involved\, in working with us to develop our response to the first draft of the GAP\, and to advocate at all levels for a plan that addresses the real burden of neurological disorders. \nIf you are interested in learning more and getting actively involved\, the OneNeurology Partnership will host\, on June 29th 2021\, a virtual Global Advocacy Workshop where we will: \n\nPresent the first draft of the GAP to advocates worldwide\nPresent the views of the OneNeurology Partnership on the first draft of the GAP\nBring together neurology advocates from across the world (regional and national)\, to gather their perspectives on the GAP – based on their region/disease area/stakeholder group.\nEmpower global advocates with the information\, tools and resources needed to ensure a coordinated response to the GAP consultation via submissions\, regional hearings and outreach to national policy makers.\n\nThe event is open to individual health care professionals\, researchers\, people living with neurological disorders\, their carers or anyone else who is interested in engaging in neurology advocacy. Advocates may also come from the organisations who represent these various stakeholder groups. \nTo cater for all timezones\, there will be two sessions during the day. \nSession 1: 8.30-11am CET or Session 2: 4.30-7pm CET \nSign up before June 20th at this link: https://forms.gle/TReR19f1oCtznGVK9 \nOr find out more at: www.oneneurology.net \n 
URL:https://www.braincouncil.eu/event/oneneurology-global-advocacy-workshop/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210622T130000
DTEND;TZID=UTC:20210622T143000
DTSTAMP:20260415T094539
CREATED:20210406T064730Z
LAST-MODIFIED:20210601T135909Z
UID:28570-1624366800-1624372200@www.braincouncil.eu
SUMMARY:EBRA at EAN: Special Session 14: The European Brain Research Area
DESCRIPTION:During the 7th EAN Congress in June 2021\, EBRA will hold a roundtable in Room Seville addressing the importance of cooperation and collaboration in the European brain space and presenting more about the project. \nEBRA clusters\, partners\, policymakers\, clinicians and patient representatives will participate discussing among other topics:\n\nThe priorities\, gaps and enabling actions in brain research in Europe\nHow to promote European brain research in the world?\nUnderstanding the importance of operational coordination of brain research in Europe\nUnderstanding the value of coordination in brain research communities\nActivities to enhance coordination in brain research\n\nTo have more information on the Congress and register for the event\, please visit the official website.
URL:https://www.braincouncil.eu/event/ebra-at-ean-special-session-14-the-european-brain-research-area/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210621T113000
DTEND;TZID=UTC:20210621T115000
DTSTAMP:20260415T094539
CREATED:20210601T113726Z
LAST-MODIFIED:20210601T113919Z
UID:29439-1624275000-1624276200@www.braincouncil.eu
SUMMARY:EAN2021 Scientific Theatre - The Value of Treatment Project: The Value of Early Coordinated Care for Patients Affected by Rare Neurological Diseases
DESCRIPTION:The 2nd round of the EBC Value of Treatment project will be presented at the Scientific Theatre at the upcoming EAN Congress 2021. EBC Vice President\, Prof. Wolfgang Oertel\, will present The Value of Treatment Project: The Value of Early Coordinated Care for Patients Affected by Rare Neurological Diseases on 21 June 2021\, from 11:30 to 11:50. \nMotivated by addressing the existing gaps in the care pathways\, the EBC Study on Ataxia\, Dystonia and Phenylketonuria (PKU) aims to assess the benefits of early coordinated care and treatment\, multidisciplinary care patterns (also addressing comorbidity) and health care providers education on outcomes to patients and costs.
URL:https://www.braincouncil.eu/event/ean2021-scientific-theatre-the-value-of-treatment-project-the-value-of-early-coordinated-care-for-patients-affected-by-rare-neurological-diseases/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210619
DTEND;VALUE=DATE:20210623
DTSTAMP:20260415T094539
CREATED:20201209T083625Z
LAST-MODIFIED:20201209T083625Z
UID:26457-1624060800-1624406399@www.braincouncil.eu
SUMMARY:7th Congress of the European Academy of Neurology - Virtual 2021
DESCRIPTION:The European Academy of Neurology has decided to go virtual again for the 7th EAN Congress on June 19-22\, 2021\, originally to be held in Vienna. \nOnce again\, we look forward to offering you the opportunity to learn from experts in your field\, grow your professional network\, and discover the latest best practices in neurology\, all in the comfort of your home. Building on our experience from the EAN Virtual Congress 2020\, we will utilise the very best technical solutions to provide you with a virtual experience as comfortable and rewarding as the real thing. \nMore info on the website.
URL:https://www.braincouncil.eu/event/7th-congress-of-the-european-academy-of-neurology-virtual-2021/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20210617T143000
DTEND;TZID=Europe/Paris:20210617T160000
DTSTAMP:20260415T094539
CREATED:20210428T132357Z
LAST-MODIFIED:20210615T070646Z
UID:28876-1623940200-1623945600@www.braincouncil.eu
SUMMARY:Patient safety and informed consent: The importance of good off-label use practices
DESCRIPTION:In 2016\, the Declaration for Good Off-Label Use Practice was launched\, supported by a coalition of European organisations dedicated to ensuring that high standards of patient care are upheld and that progress in medical research and innovation is achieved. The GOLUP Declaration recommends that off-label use of medicinal products should only occur if certain criteria\, drawn together by independent experts\, are met. \nFive years later\, the time has come to take a step forward\, to look back at what has been achieved and to prepare for future developments. It becomes necessary not only to take an EU-wide view of the use of off-label medicines but also to take action at the national level. \nThe purpose of this event is to allow an exchange of ideas and experience among stakeholders and local actors\, to understand which paths to take in individual Member States and to allow a continuous exchange of ideas and information on the off-label use of medicines. \nRegister here\nDiscover the declaration\nSpeakers\nCyrus Engerer\nMember of the European Parliament\nGraduated in European Union Politics and Law\, Cyrus Engerer became a Member of European Parliament in 2020 whereby he sits as a full member on the Committee for Environment\, Public Health and Food Safety (ENVI) and on the Special Committee Beating Cancer. He is also substitute member on the Committee on Civil Liberties\, Justice and Home Affairs (LIBE) and on the Committee on Industry\, Research and Energy (ITRE). During the first six months of his role as a Maltese Member of European Parliament\, Engerer became the co-chair of the Mental Health Coalition. \nOther notable successes in the last 6 months include becoming the lead negotiator for the Socialists and Democrats regarding the historic declaration of the EU as an LGBTI Freedom Zone following his appointment to the Committee on Civil Liberties and became one of the\nmost vocal MEPs on healthcare issues relating to the Covid-19 Pandemic following his appointment to the Committee on Environment and Health. He has also been appointed as the shadow rapporteur for the Socialists and Democrats on the ENVI Opinion concerning the protection of workers from asbestos. \nFollowing a lengthy career in politics\, which included posts such as the Personal Representative of the Maltese Prime Minister to the European Institutions responsible for the European Parliament. During the Maltese Presidency of the European Union\, Engerer was the President of the General Affairs Committee and negotiator for the Council of Ministers with the European Parliament. Most recently before he got elected to the European Parliament he worked as an advisor to the Maltese Minister for the Environment\, Climate Change and Planning. Earlier in his career\, Engerer worked in numerous Ministries\, political entities and in EU funding. \nCyrus is a leading activist for Civil Liberties in Malta. He was the spokesperson for the Stand UP! Campaign which led to the introduction of divorce in Malta and he chaired LGBTIQ Labour. After 2013\, the Government appointed Engerer as the first Chairperson of the LGBTIQ\nConsultative Committee which was tasked with the introduction of a number of equality laws in Malta. \nHe is 39 years old and is the partner of Randolph De Battista. \nCoriene Catsman-Berrevoets\nEuropean Paediatric Neurology Society (EPNS)\nCoriene Catsman-Berrevoets has been a Paediatric Neurologist for over 30 years.  She was associate professor and head of the department of Paediatric Neurology at the ErasmusMC / Sophia Children’s Hospital in Rotterdam\, the Netherlands until December 2019 when she retired from management functions to be able to concentrate again on care for paediatric neurology patients and research. \nShe has a wide interest in paediatric neurological topics but acquired brain injury and its neurocognitive sequelae\,  be it through mechanisms as traumatic brain injury\, immune-mediated diseases\, paediatric stroke or brain tumour has always been her main topic of research.  On these topics\, she published more than 200 papers. \nShe served in the board of the Dutch Society of Paediatric Neurology from 1995 and from 2004-2010 as President. She was board member of the Posterior Fossa Society from  2014 and Chair of this Society from 2016-2018.  She has been an elected board member of the European Paediatric Neurology Society 2004 and Chair of the EPNS Education and Training Committee since 2014. Since 2014 she is Chair of the Committee of National advisors to EPNS and the Training Advisory Board. In this role\, she took the lead in the revision of the European training syllabus for paediatric neurologists and evaluated national training programmes in Spain and Georgia. Also\, she was responsible for the organization of multiple EPNS international training events in Budapest\, Alicante\,  Cambridge\, Tblisi\, Astana and Tashkent. More recently during the COVID pandemics\, she was responsible for organizing several virtual  EPNS training courses and monthly webinars. She was member of the organizing Committee of the International Child Neurology Congress in Amsterdam in 2016\, She is member of the advisory boards of the Dutch Neurofibromatosis Society and the Society of patients with Sturge Weber Syndrome and member of various Dutch multidisciplinary professional networks that support organizations of patients with Acquired Brain Injury. \nMarc Dooms\nUniversity Hospitals Leuven\nMr. Dooms (Pharm D) is Senior Orphan Drug Pharmacist at the University Hospitals Leuven. He is compounding/dispensing pharmacist in First in Men Randomized Clinical Trials. He has been a member of the Belgian Order of Pharmaceutical Sciences and the Flemish Society of Hospital Pharmacists (VZA) since 1975 and the Belgian representative to the European Union of Experts in Rare Diseases with frequent collaboration with Orphanet\, the European Society of Clinical Pharmacy\, and the American Society of Health Care Pharmacists\, among others\, since 2000. \nMarc Dooms received his pharmacist diploma at the Catholic University of Leuven\, where he graduated in 1973. In 1974\, he was pharmacy teaching studies certificated at the Catholic University of Leuven\, and in 1975 pursued an internship in Clinical Pharmacy at St John’s University and Columbia University\, New York\, with a special interest in orphan drugs\, compounding of topical therapy and First in Men randomized clinical trials. \nMr. Dooms is founding member of the Belgian National Board on Orphan Drugs within the King Baudouin Foundation and is a graduate-level teacher in dermatological compounding\, drug adherence\, and orphan drugs\, since 2010. He is also teaching pharmaceutical technicians at Leuven Syntra School. He has co-authored a number of publications on orphan drugs. \nFrédéric Destrebecq\nEuropean Brain Council\nFrédéric Destrebecq is the Executive Director of the European Brain Council since October 2014. In this capacity\, he is responsible for providing strategic direction and leadership while managing the day to day operations of EBC and its ongoing relationships with its member associations and other stakeholders\, as well as representing the organisation in various European and national forums. \nPrior to this position\, Fred served the European Union of Medical Specialists (UEMS) as Chief Executive Officer\, and previously as Director for European Affairs. Fred holds a Master Degree in Political Science and International Relations from the Université Catholique de Louvain (Belgium). He also studied at the Institut d’Etudes Politiques (Paris) and University of Wales College (Cardiff)\, in the framework of the former EU Socrates exchange programme. \nAdela Maghear\nEuropean Cancer Patient Coalition\nAdela is a graduate in pharmacy studies and holds two PhD degrees; one in Medical Sciences (Field of Pharmacy) and another in Chemistry awarded by the University of Medicine and Pharmacy Cluj-Napoca (Romania) and University of Lorraine (France)\, respectively. \nWith a strong focus on environmental safety\, her research work and scientific publications have dealt with a wide range of subjects. In 2015\, she changed career paths when she received the Robert Schuman scholarship at the European Parliament Research Service in Brussels. Her career within the field of health policies continued as she became a member of the European Health Parliament\, Antimicrobial Resistance Committee\, that same year. \nIn 2016\, she ushered her skills and expertise in the fields of health and environment to ‘Health Care Without Harm Europe’ where she spearheaded the organisation’s policy work related to pharmaceuticals in the environment and antimicrobial resistance. She developed and led the Safer Pharma Campaign\, aimed to ensure legislation in place\, in order to minimise pharmaceutical pollution as the end goal. \nHer work has been cited in international journals such as The Telegraph\, ChemicalWatch UK\, Pharmaceutical Technology\, Market Business News etc. In 2019\, she worked as an independent Science Advisor leading projects on antimicrobial resistance. \nIn 2020\, she has joined ECPC as Senior EU Affairs Officer leading the policy work of the organisation and coordinating the activities of the Challenge Cancer Parliamentary Intergroup. \nJana Hlaváčová\nEuropean Multiple Sclerosis Platform’s \nJana Hlavacova is herself MS patient for almost 10 years\, all this time she has been active as patient advocate in the Czech Republic and on the European level as well thanks to European Multiple Sclerosis Platform (EMSP). Since 2015 she has been a member of EMSP’s young people’s network\, now she serves as a member of the Executive Committee.\n\nShe was also active in the Czech Civic Association SMS – an association of and for young people with MS in the Czech Republic\, which she led between 2014 and 2016. \nShe currently works for the Ministry of Health of the Czech Republic\, where she coordinates a new agenda of support of and cooperation with patients and patient organisations and patient involvement in decision-making. She is especially interested in real-world data\, patient-reported outcomes and patient involvement in HTA.
URL:https://www.braincouncil.eu/event/golup-off-label-use-event/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20210615T173000
DTEND;TZID=Europe/Paris:20210615T183000
DTSTAMP:20260415T094539
CREATED:20210608T080616Z
LAST-MODIFIED:20210608T080644Z
UID:29543-1623778200-1623781800@www.braincouncil.eu
SUMMARY:EBC at the Africa - Europe Science and Innovation Platform
DESCRIPTION:AERAP is a response to the call of the European Parliament\, through the adoption of its Written Declaration 45 “on Science Capacity Building in Africa: promoting European-African radio astronomy partnerships”. This call was repeated by the Heads of State of the African Union\, through their decision “Assembly/AU/Dec.407 CXVIII”\, for radio astronomy to be a priority focus area for Africa—EU cooperation. The European Parliament and African Union recognise radio astronomy as a driver of technological development in a wide range of research and industry sectors. Africa-EU collaboration in radio astronomy can open new innovation opportunities in these sectors for companies and research institutes across both continents. Stakeholders from these communities have set up the African-European Radio Astronomy Platform (AERAP). \nAERAP will organise the “Africa-Europe Science and Innovation Summit” on the 15th to 17th of June 2021. \nMonica Di Luca\, EBC President\, will participate in a panel on 15 June at 17:30 – 16:30 opened by Maria Cristina Messa\, Italian Minister for Universities and Research. \nMore information on the panel here.
URL:https://www.braincouncil.eu/event/ebc-at-the-africa-europe-science-and-innovation-platform/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20210609T130000
DTEND;TZID=Europe/Paris:20210609T160000
DTSTAMP:20260415T094539
CREATED:20210517T074403Z
LAST-MODIFIED:20210531T133005Z
UID:29116-1623243600-1623254400@www.braincouncil.eu
SUMMARY:Myalgic Encephalomyelitis in Europe: Roundtable of European Stakeholders and Policymakers
DESCRIPTION:Following joint planning sessions\, EMEA and EFNA (European Federation of Neurological Associations) are arranging a multi-stakeholder\, roundtable meeting on Myalgic Encephalomyelitis (ME/CFS) in Europe. \nThe meeting will bring together a variety of initial stakeholders in Europe\, including clinicians\, researchers\, policymakers\, industry and patient representatives from EMEA’s members\, in order to create a better understanding of the many unmet needs and the devastating impact of ME/CFS on patients and families across generations. \nThe meeting will also include discussions on the implications of Long COVID – including similarities to ME/CFS. \nFor more information\, click here.
URL:https://www.braincouncil.eu/event/a-roundtable-of-european-stakeholders-and-policymakers/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210609
DTEND;VALUE=DATE:20210612
DTSTAMP:20260415T094539
CREATED:20210506T140352Z
LAST-MODIFIED:20210506T141258Z
UID:29007-1623196800-1623455999@www.braincouncil.eu
SUMMARY:EMSP 2021 Virtual Conference
DESCRIPTION:The EMSP 2021 Annual Conference will be held virtually and will be taking place online on the 9th\, 10th and 11th June. \nThe theme of this year’s conference is “MS Care in a Changing World”\, with special focus on the healthcare professionals and non-professional caregivers for MS patients\, and how everyone has had to adapt to the worldwide upheaval since 2020. \nThe #EMSPVirtual2021 Conference aims at gathering the Multiple Sclerosis (MS) community and providing learning and networking opportunities for the MS societies\, healthcare professionals\, individual patients\, and other important stakeholders from the MS field across Europe. \nBuilding on its success in bringing together over 800 key delegates from Europe\, EMSP will relaunch virtually this unique conference experience on the 9th\, 10th and 11th June 2021. \nFor more info\, please visit: https://emspconference.org/
URL:https://www.braincouncil.eu/event/emsp-2021-virtual-conference/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210608T130000
DTEND;TZID=UTC:20210608T173000
DTSTAMP:20260415T094539
CREATED:20210318T192745Z
LAST-MODIFIED:20211026T090546Z
UID:28316-1623157200-1623173400@www.braincouncil.eu
SUMMARY:Value of Treatment 2 Synthesis Meeting
DESCRIPTION:  \nThe European Brain Council (EBC) is pleased to invite you for the Value of Treatment 2 (VOT 2) Synthesis Meeting\, to be held virtually on 8 June 2021 (13:00-17:00 CET). Experts participating in the research will present a synthesis of the results so far and examine the most critical issues in brain diseases in Europe from different perspectives including policymakers\, innovators\, academia and industry\, medical professionals and patient organisations. \n  \nStudy background\nValue of Treatment (VOT) for brain disorders\nThe Value of Treatment (VOT) for brain disorders is a health economics and outcomes research project addressing all brain disorders and coordinated by EBC. Brain disorders – both neurological and mental alike – constitute a major factor\, alongside cancers and cardiovascular diseases\, driving the overall burden of diseases in Europe. Neurological and psychiatric disorders across all lifespans are the leading cause of poor health and disability in Europe. The conclusions of the VOT research project first round released in 2017 (which included case studies on disorders ranging from schizophrenia to Alzheimer’s disease\, epilepsy\, headache\, normal pressure hydrocephalus\, Parkinson’s disease\, multiple sclerosis\, restless legs syndrome and stroke) highlighted the need for more research\, early\, if possible prodromal\, diagnosis and intervention\, integrated seamless care underpinning timely care pathways as a solution to address value-based health care in Europe and access to the best treatments available.   \nValue of Treatment (VOT 2): a second round of case studies\nIn the continuity of these conclusions and in the framework of the VOT research\, a second round of case studies (VOT2) have been developed on new therapeutic areas focusing on rare diseases (Ataxia\, Dystonia and Phenylketonuria) and mental disorders (Anorexia Nervosa\, Autism Spectrum Disorder\, Major Depressive Disorder). The study to be finalised in 2021 is focusing on “early intervention\, bridging the gaps and achieving seamless\, coordinated care”\, and the objective is to examine health gains resulting from optimized healthcare interventions in comparison with current care or no treatment\, and converge data evidence to policy recommendations on how to improve the care pathway(s). Previous joint working sessions aimed to exchange and build synergy between the research-work and DG Sante Rare diseases European Reference Networks (ERNs) programme and research as well as the PECUNIA project from the EU Framework on mental health and well-being. Beyond the research design and considering current context\, the impact of COVID-19 on treatment and healthcare transformation is also explored.  \n  \nClick here to view the programme \nDownload the event report \n  \nPlease see below the final agenda: \nAGENDA VOT2 SYNTHESIS MEETING 8 June 2021 - FINAL
URL:https://www.braincouncil.eu/event/value-of-treatment-2-synthesis-meeting/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20210603T103000
DTEND;TZID=Europe/Brussels:20210603T130000
DTSTAMP:20260415T094539
CREATED:20210525T145216Z
LAST-MODIFIED:20210531T133305Z
UID:29317-1622716200-1622725200@www.braincouncil.eu
SUMMARY:Open co-design workshop on next generation tools to manage Amyotrophic Lateral Sclerosis and Multiple Sclerosis
DESCRIPTION:Started on January 2021\, the 4 years Horizon 2020 BRAINTEASER project seeks to exploit the value of artificial intelligence\, big data—including those related to health\, lifestyle habits and environment—\, low-cost sensors and smart apps to support patients living with amyotrophic lateral sclerosis (ALS) and multiple sclerosis (MS) and their caregivers. Its goal is to develop patient stratification and disease progression models to detect\, alleviate and manage the negative impact induced by factors that contribute to the diseases cause\, progression and survival. The BRAINTEASER multidisciplinary approach\, guided by a strong focus on co-design methodologies\, will pave the path for patients toward a healthier and more fulfilling life and will support the enhancement of public health systems’ capacities to adopt a more predictive and personalised approach to health. \nThe initial BRAINTEASER technical solution will be presented during the “Open co-design workshop on next generation tools to manage ALS and MS” workshop. External experts and the audience will be involved in a collaborative and participative discussion on clinical unmet needs\, disease course\, clinical practice and new emerging research on ALS and MS to assess the BRAINTEASER solution and propose possible refinements. \nClick here to view workshop details\, registration link and agenda. \nBRAINTEASER_open co-design workshop agenda_FINAL_3rd June 2021
URL:https://www.braincouncil.eu/event/open-co-design-workshop-on-next-generation-tools-to-manage-amyotrophic-lateral-sclerosis-and-multiple-sclerosis/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210527T110000
DTEND;TZID=UTC:20210527T121500
DTSTAMP:20260415T094539
CREATED:20210427T132800Z
LAST-MODIFIED:20210427T133038Z
UID:28858-1622113200-1622117700@www.braincouncil.eu
SUMMARY:“Brain and machine: Improving MS care in a digital age”
DESCRIPTION:  \nThe rapid development of COVID-19 vaccines is perhaps the clearest example of cumulative medical innovationㅡand its undisputed power to transform lives. But scientific innovation has not been limited to the race for immunity. From telemedicine and portable diagnostics to digital therapeutics and blockchain\, digital technologies are reshaping health-care delivery―and could play a transformative role in the future. \nThis is nowhere truer than with multiple sclerosis (MS)\, a neurological condition for which there is currently no cure. From disease-modifying treatments to improved tools for monitoring disease activity\, significant progress has been made in improving the quality of life of people affected by MS. Yet there is still a long way to go to better understand and respond to the disease. Digital products such as remote-monitoring tools and wearable devices and sensors offer the potential to deliver personalised and improved care to those affected by MS. But accelerating the pace of innovation requires effective policies and sufficient investment for research. Above all\, the needs of patients must be at the forefront\, with open dialogue between policymakers\, industry leaders and health professionals. \nThis digital event\, supported by Biogen\, EBC and EU40\, will convene biotechnology leaders\, policymakers\, medical professionals\, advocacy groups and patient advocates to examine how the digital revolution is transforming health-care delivery. In the approach to World MS Day\, recognized on 30 May 2021\, the event will take a focused look at the progress that has been made in treating MS\, and will examine how to accelerate further advances. \nRead more here and register now!
URL:https://www.braincouncil.eu/event/brain-and-machine-improving-ms-care-in-a-digital-age/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210427T123000
DTEND;TZID=UTC:20210427T140000
DTSTAMP:20260415T094539
CREATED:20210331T104636Z
LAST-MODIFIED:20210413T123739Z
UID:28488-1619526600-1619532000@www.braincouncil.eu
SUMMARY:Brain Innovation Days: Fast-tracking brain innovation in times of COVID-19
DESCRIPTION:  \nThe last 14 months have been a most testing time for the world in general and for global health in particular. COVID-19 took the world by surprise as weaknesses were exposed in public health systems’ preparedness to face pandemics and we continue to face the consequences over a year on. However\, the emergence of COVID-19 has also succeeded in accelerating innovation in science\, treatments\, healthcare and health management. \nPositive results have been observed where a stronger emphasis on collaboration among different players was placed. From researchers to clinicians to community to biotech\, public-private partnerships were strengthened\, and\, thanks to increased responsiveness from authoritative bodies\, more agile ways of fast-tracking innovation were set in motion. \nThe purpose of this Brain Innovation Days digital session\, the 3rd in the series\, is to explore the positive direct and indirect results of COVID-19 pandemic response and research on the brain innovation ecosystem. The session will feature key opinions leaders\, patient testimonials\, clinicians\, representatives from the EU and WHO level and the industries that were forced to adapt to this rapid change of pace in innovation. \nRegister now!
URL:https://www.braincouncil.eu/event/brain-innovation-days-fast-tracking-brain-innovation-in-times-of-covid-19/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210424T110000
DTEND;TZID=UTC:20210424T120000
DTSTAMP:20260415T094539
CREATED:20210105T074212Z
LAST-MODIFIED:20210105T074355Z
UID:27105-1619262000-1619265600@www.braincouncil.eu
SUMMARY:Global Webinar Series 2020-2021: Part 6 - Outcome
DESCRIPTION:The Hydrocephalus Society is delighted to announce the Hydrocephalus Society Global Webinar Series on iNPH 2020-2021! A series of 6 monthly webinars will take place\, beginning from November 2020 until April 2021. In these challenging times\, our duty is to support our community in all ways possible. For this reason\, the Hydrocephalus Society board of directors has decided to provide the webinars completely free of charge. They have structured the webinars to favor the European\, Asian and American time zones by turns. \nGlobal Webinar Series 2020-2021: Part 6 – Outcome\nChairs\nMark Hamilton\nMats Tullberg \nLectures\n1. Clinical symtoms\, short- and long-term: Kerstin Andren\n2. HRQoL\, mortality\, cost-effectiveness: Mats Tullberg\n3. When is reprogramming of an adjustable valve indicated?: Laurence Watkins \n  \nHYDROCEPHALUS_WEBINARS-CalendarOutline-2
URL:https://www.braincouncil.eu/event/global-webinar-series-2020-2021-part-6-outcome/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210420T093000
DTEND;TZID=UTC:20210420T113000
DTSTAMP:20260415T094539
CREATED:20210504T101221Z
LAST-MODIFIED:20210504T101221Z
UID:28978-1618911000-1618918200@www.braincouncil.eu
SUMMARY:EBC trains early-stage researchers to become a voice for neuroscience research throughout their careers
DESCRIPTION:In the context of the Marie Skłodowska-Curie actions on Innovative Training Networks funded by the Horizon 2020 programme\, EBC organised a workshop on the role of science in the European policy-making process. The workshop addressed to a group of early-stage researchers aimed to empower them with ways to become a voice for neuroscience research throughout their careers.  Participants were introduced to the European policy-making environment and EU funding mechanisms. They took part in mock-up sessions engaging with policy makers on different scenarios and could also interact in a panel discussion on career opportunities in science policy and advocacy. \nMore information about the ASCTN Training can be found on their website. \n 
URL:https://www.braincouncil.eu/event/ebc-trains-early-stage-researchers-to-become-a-voice-for-neuroscience-research-throughout-their-careers/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210419
DTEND;VALUE=DATE:20210430
DTSTAMP:20260415T094539
CREATED:20210311T094202Z
LAST-MODIFIED:20210311T094202Z
UID:28185-1618790400-1619740799@www.braincouncil.eu
SUMMARY:Neuroinformatics Assembly
DESCRIPTION:The INCF Assembly 2021 aims to provide the neuroscience community-at -large with approaches that can be used today to implement the FAIR principles in their research. It also aims to provide tool developers and infrastructure providers with an opportunity to interact with the user community and to interact with other practitioners to advance the field of neuroinformatics. \nThe 2021 INCF Assembly will address topics around FAIR neuroscience such as: \n\nFAIR approaches for neuroscience in general\, neuroimaging\, electrophysiology\, and computational neuroscience\nElectrophysiology\, and computational neuroscience\nOpen innovation and intellectual property\nData science\nShowcase of tools\, infrastructures\nInformation about ongoing work in INCF councils and committees\nFunders and publishers roundtable\nWorkshops on developing standards and a roadmap for FAIR neuroscience\n\nThe INCF Assembly is the only international meeting that focuses on providing researchers with hands-on training experiences and enabling interaction with software developers and infrastructure providers through training workshops\, special interest group meetings\, and the INCF Congress on Neuroinformatics. \nFor info and registration\, please visit the website.
URL:https://www.braincouncil.eu/event/neuroinformatics-assembly/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210415T150000
DTEND;TZID=UTC:20210415T160000
DTSTAMP:20260415T094539
CREATED:20210315T112756Z
LAST-MODIFIED:20210408T123249Z
UID:28230-1618498800-1618502400@www.braincouncil.eu
SUMMARY:7th National Brain Councils Academia
DESCRIPTION:HERA and NBCs roles in strengthening the European Health Union \nThis year this 7th NBCs Academia\, under EBC guidance\, will express its support to the creation of the European Health Emergency Preparedness and Response Authority (HERA)\, a central element for strengthening the European Health Union.   \nDuring this one hour webinar\, highlights will also be made on brain damage caused by COVID-long and its public health burden. The webinar will host speakers from the DG Health of the European Commission\, members of the European Parliament and national policymakers. \nRegister here. \n 
URL:https://www.braincouncil.eu/event/7th-national-brain-councils-academia/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20210412T153000
DTEND;TZID=Europe/Paris:20210412T170000
DTSTAMP:20260415T094539
CREATED:20210203T141609Z
LAST-MODIFIED:20210203T141609Z
UID:27680-1618241400-1618246800@www.braincouncil.eu
SUMMARY:EBRA at EPA Virtual Congress
DESCRIPTION:The European Brain Research Area (EBRA) will hold the workshop “A Catalysing Initiative for Brain Research Stakeholders to Streamline Brain Research across Europe” in the context of the 29th European Congress of Psychiatry. \nThe workshop will take place on Monday 12 April from 15:30 to 17:00 CET on Channel 5. \nInfo & registration to the congress here.
URL:https://www.braincouncil.eu/event/ebra-at-epa-virtual-congress/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210410T100000
DTEND;TZID=UTC:20210410T113000
DTSTAMP:20260415T094539
CREATED:20210402T122000Z
LAST-MODIFIED:20210402T122825Z
UID:28522-1618048800-1618054200@www.braincouncil.eu
SUMMARY:EPA Forum on “Quality Indicators of Services and Care for Mental Health in Europe\, from Clinician to Patient Perspective: A Paradigm Shift?”
DESCRIPTION:The European Psychiatric Association (EPA) will hold its 7 th virtual Forum on Saturday 10 April from 9:00 to 11:30 CEST. \nFirst introduced in 2015\, the EPA Forum traditionally precedes the official opening of the annual European Congress of Psychiatry. This event gathers together EPA members\, European organisations\, stakeholders and policy makers to present and discuss matters of relevance in the field of mental health care. \nUnder the title “Quality Indicators of Services and Care for Mental Health in Europe\, from Clinician to Patient Perspective: A Paradigm Shift?“\, this year’s programme will be centred around the importance of quality indicators and the patient’s role in assessing mental health care. The 2021 EPA Forum will allow live interaction with the audience and will be broadcasted on the EPA virtual Congress platform and on the EPA Congress website. Find more information about the speakers and connection details at: https://epa-congress.org/epa-forum-2021/ .
URL:https://www.braincouncil.eu/event/epa-forum-on-quality-indicators-of-services-and-care-for-mental-health-in-europe-from-clinician-to-patient-perspective-a-paradigm-shift/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210410
DTEND;VALUE=DATE:20210414
DTSTAMP:20260415T094539
CREATED:20210128T081936Z
LAST-MODIFIED:20210128T081936Z
UID:27552-1618012800-1618358399@www.braincouncil.eu
SUMMARY:EPA Congress
DESCRIPTION:In light of the continuing COVID-19 pandemic and its likely impact on travel restrictions and physical distancing requirements well into 2021\, the EPA has decided to transform the 29th European Congress of Psychiatry into an innovative online experience. \nEPA Virtual 2021 will take place as planned between 10 – 13 April 2021. \nMany of you joined the EPA for its first virtual congress in July 2020\, and the EPA will once again adapt the participant experience to the online world in order to offer the mental health community the possibility for educational exchanges\, scientific news and best practice updates\, while protecting the safety and well-being of all participants. \nEPA Virtual 2021 will allow for even more live interaction during each session\, as well as facilitate contacts with our industry partners and European institutions and bodies that regularly work together with the EPA for scientific collaborations\, projects and advocacy activities. \nIf you have never attended an EPA congress\, this is the perfect opportunity to see what our event is all about. \nWith no travel plans to consider and the flexibility to fit sessions around your professional and personal obligations\, accessing all the scheduled sessions in their live and on-demand formats through our dedicated platform will be more convenient than ever. You’ll be able to take part in sessions in the morning and see patients in the afternoon\, making the transition from ‘being’ at the congress to implementing new ideas seamless. \nIn addition\, congress sessions will be available throughout the event dates and in the following months\, ensuring your continued access to all the latest updates in the field of European psychiatry. \nThe transformation to an entirely virtual experience will allow us to unlock new opportunities together and make the congress even more accessible to a worldwide audience. \nKeep an eye out for a new virtual congress look\, a new pricing structure\, and new programme announcements in the coming weeks.
URL:https://www.braincouncil.eu/event/epa-congress/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210323T140000
DTEND;TZID=UTC:20210323T170000
DTSTAMP:20260415T094539
CREATED:20210223T112715Z
LAST-MODIFIED:20210224T105426Z
UID:27905-1616508000-1616518800@www.braincouncil.eu
SUMMARY:MULTI-ACT Final Conference: “The MULTI-ACT Model: The Path Forward for Participatory Governance in Health Research and Innovation”
DESCRIPTION:  \nMULTI-ACT Final Conference\n“The MULTI-ACT model: the path forward for participatory governance in health research and innovation”\n23 March 2021\, 14:00 – 17:00 CET\n  \nAfter years of work\, the outcomes of the MULTI-ACT project will be presented at the Final Conference\, “The MULTI-ACT model: the path forward for participatory governance in health research and innovation”\, to be held virtually on 23 March 2021. \nThe EU-funded MULTI-ACT project aims to increase the impact of health research on people with brain diseases. It has worked to create and implement a new model allowing for the effective cooperation of all relevant stakeholders\, which will be applicable in defining the scope of health research as well as new metrics for the evaluation of its results. The MULTI-ACT project has worked with patients and patient organizations\, academics\, private and public stakeholders to develop brand new tools to assess the value of research. \nAmong these tools\, the consortium has produced a governance model\, a roadmap for patient engagement and impact indicators along five dimensions to foster stakeholder engagement in health research and innovation\, which will be presented during the conference. Furthermore\, the MULTI-ACT online toolbox will be presented and available for organisations to conduct health research with a multi-stakeholder and co-accountable approach. \nEBC has been involved in a number of work packages within the MULTI-ACT project and is pleased to be leading the organisation of the Final Conference. Stay tuned for more details: registration will open at the beginning of March. For programme details\, please visit the dedicated Event Page. \nLearn more about the MULTI-ACT project by visiting: https://www.multiact.eu/\, where a number of project brochures\, videos\, factsheets and full deliverables are shared!
URL:https://www.braincouncil.eu/event/multi-act-final-conference-the-multi-act-model-the-path-forward-for-participatory-governance-in-health-research-and-innovation/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210319T180000
DTEND;TZID=UTC:20210319T190000
DTSTAMP:20260415T094539
CREATED:20210105T073815Z
LAST-MODIFIED:20210105T074413Z
UID:27102-1616176800-1616180400@www.braincouncil.eu
SUMMARY:Global Webinar Series 2020-2021: Part 5 - Complications and how to handle them
DESCRIPTION:The Hydrocephalus Society is delighted to announce the Hydrocephalus Society Global Webinar Series on iNPH 2020-2021! A series of 6 monthly webinars will take place\, beginning from November 2020 until April 2021. In these challenging times\, our duty is to support our community in all ways possible. For this reason\, the Hydrocephalus Society board of directors has decided to provide the webinars completely free of charge. They have structured the webinars to favor the European\, Asian and American time zones by turns. \nGlobal Webinar Series 2020-2021: Part 5 – Complications and how to handle them\nChairs\nLawrence Watkins\nMats Tullberg \nLectures\n1. Infections. Antibiotics impregnated catheters: Mark Hamilton\n2. Shunt failure/Shunt obstruction: Giorgio Palandri\n3. Overdrainage: Uwe Kehler \n  \nHYDROCEPHALUS_WEBINARS-CalendarOutline-2
URL:https://www.braincouncil.eu/event/global-webinar-series-2020-2021-part-5-complications-and-how-to-handle-them/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210316T123000
DTEND;TZID=UTC:20210316T140000
DTSTAMP:20260415T094539
CREATED:20210224T091149Z
LAST-MODIFIED:20210312T144645Z
UID:27921-1615897800-1615903200@www.braincouncil.eu
SUMMARY:Patient Engagement in EU-Funded Brain Research Projects (EBC-EFNA-GAMIAN-Europe Brain Awareness Week Event)
DESCRIPTION:  \nBrain Awareness Week 2021 \nEBC in partnership with EFNA & GAMIAN-Europe \nPatient Engagement in EU-Funded Brain Research Projects \nDigital Event – 16 March\, 12:30-14:00 \nPatient engagement in research is an approach that involves meaningful and active collaboration with patients in the governance\, priority setting\, conducting and knowledge translation of research. While patient engagement is becoming increasingly popular and vital prerequisite in research projects\, many researchers are still unsure or hesitant in the involvement of patients in their work and why such engagement is of value. The process is unclear to many and how to fully involve patients can be unclear. However\, many patients are keen to be part of research – “nothing about us without us” –arguing that no research can be fully done without direct insight from the people actually living with these conditions every day. \nFor some time now\, the European Commission\, through its research programmes and related initiatives\, has been increasing its encouragement of involving patients in research\, particularly within the projects it funds. The Responsible Research and Innovation (RRI) approach has been highlighted throughout the objectives of the EU Horizon 2020 Programme. In health research this means to put the expectations of patients and society at the heart of research programs. European initiatives such as the Innovative Medicines Initiative (IMI) have spearheaded the growth of involving patients in European research\, encouraging patient involvement in their activities and project\, and involving patients as speakers and panellists in their events and consultations. Furthermore\, H2020-funded projects such as MULTI-ACT were launched with the aim to increase the impact of health research on people with brain diseases and to create and implement a new model allowing for the effective cooperation of all relevant stakeholders. \nHowever\, most patients and patient representatives still feel like not enough support is given to have their voices fully heard in research—requests and demand for involving patients is growing but a pool of “patient experts” is still lacking. The discussion needs to shift from “we need to show that patients are on board” to “how can we best involve patients and why/how are we involving them to the full benefit for the research conducted”. “What can be done concretely in EU funded health research projects to enforce patient engagement”? This needs to be more than a “box ticking exercise”. \nThis Brain Awareness Week looks to explore the current state of patient engagement in EU-funded Brain Research projects\, looking at IMI and MULTI-ACT as concrete examples and solutions and analysing in discussion with key officials what has been done and what can still be done in order to guarantee change. \nSee programme and concept note included below. Registration is now open HERE. \nBrain Awareness Week-Programme \nDownload the programme HERE.
URL:https://www.braincouncil.eu/event/patient-engagement-in-eu-funded-brain-research-projects-ebc-efna-gamian-europe-brain-awareness-week-event/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210304T110000
DTEND;TZID=UTC:20210304T180000
DTSTAMP:20260415T094539
CREATED:20210121T094947Z
LAST-MODIFIED:20210121T095222Z
UID:27448-1614855600-1614880800@www.braincouncil.eu
SUMMARY:Value Based Healthcare Conference
DESCRIPTION:The event will be held online on the 4th of March 2021 from 10.00 to 17:00 (UTC+2hours).\nHealth systems in Europe and around the world are evolving to adapt to the societal and technological changes and the changing health needs as more people live longer with chronic or degenerative conditions. This requires changes in the health systems’ design and new ways of delivering healthcare. Next to reduced mortality\, improving general health outcomes and quality of life is gaining importance as the main objective of healthcare. \nAll stakeholders acknowledge that a shift of emphasis is required from a siloed budget focused approach towards a more holistic health and social care system approach. Future healthcare will be more personalized in all stages of healthcare where an evidence-based integrated approach will be applied with an increased role of patients in managing their own health and care. \nThe conference aims at raising awareness and knowledge among the healthcare community on the value of patient-centered healthcare. \nAt the conference\, good practices and practical examples will be presented by speakers from Estonia and other countries. These ideas will be focused on developing and implementing patient-centered healthcare approaches. \nParticipation in the conference is free of charge. Information e-mail will be sent to registered delegates with the link enabling to access the internet environment of the event before the beginning of the conference. \nThe conference is co-organised by the Estonian Ministry of Social Affairs\, Estonian Health Insurance Fund\, Estonian Cancer Society\, The North Estonia Medical Centre Foundation\, Tartu University Hospital\, European Federation of Pharmaceutical Industries and Associations (EFPIA) and the Association of Pharmaceutical Manufacturers in Estonia. \n  \nInfo and registration here.
URL:https://www.braincouncil.eu/event/value-based-healthcare-conference/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210227T110000
DTEND;TZID=UTC:20210227T120000
DTSTAMP:20260415T094539
CREATED:20210105T072951Z
LAST-MODIFIED:20210105T074553Z
UID:27096-1614423600-1614427200@www.braincouncil.eu
SUMMARY:Global Webinar Series 2020-2021: Part 4 - Treatment
DESCRIPTION:The Hydrocephalus Society is delighted to announce the Hydrocephalus Society Global Webinar Series on iNPH 2020-2021! A series of 6 monthly webinars will take place\, beginning from November 2020 until April 2021. In these challenging times\, our duty is to support our community in all ways possible. For this reason\, the Hydrocephalus Society board of directors has decided to provide the webinars completely free of charge. They have structured the webinars to favor the European\, Asian and American time zones by turns. \nGlobal Webinar Series 2020-2021: Part 4 – Treatment\nChairs\nGiorgio Palandri\nUwe Kehler \nLectures\n1. Hydrocephalus shunt-valves: Ahmed Thoma\n2. Ventriculoperitoneal and ventriculoatrial shunts: Mark Hamilton\n3. Lumboperitoneal shunts: Madoka Nakajima\n4. ETV in NPH: Richard Edwards \n  \nHYDROCEPHALUS_WEBINARS-CalendarOutline-2
URL:https://www.braincouncil.eu/event/global-webinar-series-2020-2021-part-4-treatment/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210126T123000
DTEND;TZID=UTC:20210126T143000
DTSTAMP:20260415T094539
CREATED:20201014T123747Z
LAST-MODIFIED:20210119T144608Z
UID:25158-1611664200-1611671400@www.braincouncil.eu
SUMMARY:Brain Innovation Days: From Innovative Ideas to Creative Brain Interventions
DESCRIPTION:  \nThe Brain Innovation Days teams is very pleased to announce that the second Brain Innovation Days digital event will be held on 26 January 2021 at 12:30-14:30. \nAfter a successful digital launch on 13 October 2020 kicking off one full year of a packed brain innovation agenda under the overarching theme “Disrupt and rewire: How brain innovation is changing Europe”\, the second event will draw focus on the business and start-up world within the brain ecosystem.  \nThis lunchtime interactive session will fall under the theme “From Innovative Ideas to Creative Brain Interventions”. The event will host the first ever Brain Innovation Days Pitch Competition\, showcasing start-ups\, entrepreneurs and investors in the field. Nine start-ups will go head-to-head to pitch their business in 180 seconds for the chance to win Best Pitch\, awarded by a jury of esteemed experts in related fields and the public via voting during the event. \nFurthermore\, you can look forward to a panel discussion on the challenges faced by innovators in Europe – from idea to business – and the support structures that exist to alleviate and guide the process. Confirmed speakers include representatives from successful European start-ups\, leading pharmaceutical companies and EU innovation support mechanisms. \nRegister for free now here.
URL:https://www.braincouncil.eu/event/brain-innovation-days-pitch-competition/
END:VEVENT
END:VCALENDAR