BEGIN:VCALENDAR VERSION:2.0 PRODID:-//European Brain Council (EBC) - ECPv6.15.19//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:European Brain Council (EBC) X-ORIGINAL-URL:https://www.braincouncil.eu X-WR-CALDESC:Events for European Brain Council (EBC) REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:UTC BEGIN:STANDARD TZOFFSETFROM:+0000 TZOFFSETTO:+0000 TZNAME:UTC DTSTART:20200101T000000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:Europe/Paris BEGIN:DAYLIGHT TZOFFSETFROM:+0100 TZOFFSETTO:+0200 TZNAME:CEST DTSTART:20200329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0200 TZOFFSETTO:+0100 TZNAME:CET DTSTART:20201025T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0100 TZOFFSETTO:+0200 TZNAME:CEST DTSTART:20210328T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0200 TZOFFSETTO:+0100 TZNAME:CET DTSTART:20211031T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0100 TZOFFSETTO:+0200 TZNAME:CEST DTSTART:20220327T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0200 TZOFFSETTO:+0100 TZNAME:CET DTSTART:20221030T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0100 TZOFFSETTO:+0200 TZNAME:CEST DTSTART:20230326T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0200 TZOFFSETTO:+0100 TZNAME:CET DTSTART:20231029T010000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:Europe/Helsinki BEGIN:DAYLIGHT TZOFFSETFROM:+0200 TZOFFSETTO:+0300 TZNAME:EEST DTSTART:20200329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0300 TZOFFSETTO:+0200 TZNAME:EET DTSTART:20201025T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0200 TZOFFSETTO:+0300 TZNAME:EEST DTSTART:20210328T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0300 TZOFFSETTO:+0200 TZNAME:EET DTSTART:20211031T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0200 TZOFFSETTO:+0300 TZNAME:EEST DTSTART:20220327T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0300 TZOFFSETTO:+0200 TZNAME:EET DTSTART:20221030T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;VALUE=DATE:20220625 DTEND;VALUE=DATE:20220629 DTSTAMP:20260414T220038 CREATED:20220318T155450Z LAST-MODIFIED:20220701T114040Z UID:34944-1656115200-1656460799@www.braincouncil.eu SUMMARY:EBC at EAN Congress 2022 DESCRIPTION:EBC was pleased to be part of this year’s Congress of the European Academy of Neurology\, which took place in person on 25-28 June 2022 in Vienna\, Austria. Alongside an Exhibition Stand in the EAN Neurohood\, EBC had a Special Session take place on 28 June at 13:00-14:30 (Room Berlin)\, celebrating 20 Years of Advocacy for the Brain. The session featured the following presentations: \nIntroduction & Moderation by Prof. Wolfgang Oertel\, President\, European Brain Council\nHistory of the European Brain Council by Prof. Jes Olesen\, Founding President\, European Brain Council\nInvolving patients and the Value of Treatment by Joke Jaarsma\, Treasurer\, European Brain Council and President\, European Federation of Neurological Associations\nAdvocating for the brain: the European Brain Research Area by Frédéric Destrebecq\, Executive Director\, European Brain Council \n  \n  \n\n \n \n \n \n \n \n EBC President\, Prof Wolfgang Oertel\, gives introductory presentation on EBC and to key moments in its 20-year history\n \n \n \n \n \n EBC Treasurer\, Joke Jaarsma\, reflects on 20 years of partnership between EBC and the European Federation of Neurological Associations\, a key member of EBC and patient representatives in the field of neurology.\n \n \n \n \n \n Prof Jes Olesen\, Founding President of EBC\, looks back on the last 20 years and the growth of the organisation since its humble beginnings.\n \n \n \n \n \n EBC Executive Director\, Frédéric Destrebecq\, provides insight on the important advocacy work done by EBC to culminate in its latest large-scale project\, the European Brain Research Area (EBRA)\n \n \n\n  \n  \nAdditionally\, EBC projects such as the European Brain Research Area (EBRA) and the Value of Treatment were showcased at the congress in the Scientific Theatre and through ePosters. \nScientific Theatres:\n– EBC Value of Treatment (VOT) Study – Bridging gaps and achieving seamless\, coordinated care\, a study on rare neurological and neurometabolic disorders by the European Brain Council – 25 June 2022\, 14:00 – 14:30 (Theatre 09)\n– EBC Value of Treatment (VOT) Study – A Comparison of Optimal Management vs Current Management of Chronic Pain– 27 June 2022\, 10:00-10:30 (Theatre 25)\n– European Brain Research Area (EBRA): Outcome and results of the Horizon 2020 project – 28 June 2022\, 10:30-11:00 (Theatre 37)\n \nePosters:\n– EBC Value of Treatment (VOT) Study – A Comparison of Optimal Management vs Current Management of Chronic Pain – 26 June 2022\, 12:30 to 13:15 (Screen B7)\n– EBC Value of Treatment (VOT) Study – Assessing the Value of Specialist Centres for the Diagnosis and Management of the Ataxias in Europe – 26 June 2022\, 12.30-13.15 (Screen A9) \n  \n  \n\n \n \n \n \n \n \n Vinciane Quoidbach\, EBC Research Project Manager\, presents the Value of Treatment – Chronic Pain study at the Scientific Theatre\n \n \n \n \n \n Views of the congress space\n \n \n \n \n \n Prof Paola Giunti presents the Value of Treatment Ataxia study at the Scientific Theatre\n \n \n \n \n \n EBC Staff in the Neurohood\n \n \n \n \n \n EBC Project Manager\, Dr Kristien Aarts\, presents the European Brain Research Area (EBRA) project at the Scientific Theatre URL:https://www.braincouncil.eu/event/ebc-at-ean-congress-2022/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220625 DTEND;VALUE=DATE:20220629 DTSTAMP:20260414T220038 CREATED:20211115T145110Z LAST-MODIFIED:20211116T140619Z UID:32492-1656115200-1656460799@www.braincouncil.eu SUMMARY:8th Congress of the European Academy of Neurology DESCRIPTION:  \nThe 8th Congress of the European Academy of Neurology (EAN) will take place in Vienna (Austria) on June 25 to 28\, 2022. \nOur ambition is that the 8th EAN Congress will be a truly pan-European meeting\, in a fact the premier meeting of 2022\, bringing together neurologists and neuro-scientists to network and to exchange knowledge to tackle major challenges in neurology. In previous years EAN congresses have highlighted the developments in the host nation\, but in 2022\, following virtual congresses in 2020 and 2021\, we will break with that tradition. We have planned a meeting with a pan-European flavor\, celebrating the opportunity to meet once more in person in a hybrid meeting that will also maximise virtual participation\, building on our experience in 2020 and 2021. \nOur common European cultural heritage is rooted in innumerable domains: art\, architecture\, film\, philosophy\, literature\, and music to name a few. From a historical perspective\, we also know that great strides in neurology can be attributed European scientists such as Golgi\, Brown-Séquard\, and Romberg. The EAN is confident that the scientific contributions of European experts today will  continue to shape the field of neurology. \nThe overarching theme of the 2022 EAN congress is “Getting Evidence Into Practice”. Topics will include: Which clinical trial designs best inform practice? What evidence informs the use of diagnostic tests? Are guidelines a useful tool for improving outcomes? How do we get guidelines applied and implemented? These questions are timely and relevant\, and we are excited to hear from selected experts from neurology and other disciplines. As with every year\, leading specialists will share the most recent state-of-the-art studies and the newest developments in neurology\, and we invite all participants ask questions in the live Q&A sessions. \nFind more information here! URL:https://www.braincouncil.eu/event/8th-congress-of-the-european-academy-of-neurology/ LOCATION:Vienna\, Austria END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20220623T140000 DTEND;TZID=UTC:20220623T160000 DTSTAMP:20260414T220038 CREATED:20220622T092244Z LAST-MODIFIED:20220622T092808Z UID:37643-1655992800-1656000000@www.braincouncil.eu SUMMARY:Preparing Europe for Novel Psychedelic-Assisted Therapies: Launch of PAREA DESCRIPTION:We all know the feeling of helplessness when we are unable to help people – often our loved ones – who are affected by mental health conditions\, addictions or neurological ailments\, including chronic pain. We know that mental healthcare is in crisis and we don’t have enough options to truly help many people in need. While it is true that there are many people who wouldn’t be here if it weren’t for antidepressants\, there are also millions who are on them and continue to struggle or experience serious side effects. Moreover\, the global expenditure on mental health amounts to a mere 2% of general expenditure (WHO\, 2021) and only a minority of people with mental health conditions in Europe receive treatment. We have a long way to go in improving mental health care\, and in achieving the relevant UN Sustainable Development Goals by 2030. \nAgainst this backdrop\, psychedelic-assisted therapies (PAT) show a promise of being a potent new class of treatments for mental\, neurological and substance use disorders\, as suggested by the rapidly growing\, rigorous\, and compelling body of research. \nIn 2021 alone\, ground-breaking findings were published in journals such as Lancet\, Nature and New England Journal of Medicine. Top tier US universities like NY University\, Johns Hopkins and the University of California are following the example of Imperial College London in the UK\, which in 2019 became the first to establish a centre dedicated to the study of psychedelic compounds. \nDuring 2017 – 2019\, the US FDA granted Breakthrough Therapy designation to PAT for three trials investigating psilocybin for depression and MDMA for PTSD. \nThe fundamental therapeutic benefit of PAT comes from the combination of psychedelic medicine and therapy. The drug is a catalyst for treatment\, not a treatment in itself. Patients report that they get something deeply meaningful out of the altered consciousness – a sense of unity\, of connection. Therapy allows them to incorporate that into an enduring shift in identity and to build a better self. In other words\, psychedelics’ novel therapeutic value stems from their role as enhancements to a psychotherapeutic process\, grounded in a relationship-centred approach\, that views mental health through a biopsychosocial lens. \nThe renaissance of research into the neuroscience and therapeutic applications of PAT represents one of the most promising and important initiatives in brain science and neuropsychopharmacology in recent times\, especially given the huge unmet needs in the therapeutic areas that they promise to treat. \nAt the same time\, much has to be done in Europe to start accommodating those advances and to accelerate the safe and responsible integration of PAT into EU healthcare systems in the years to come. This work must start now. \nWith this in mind\, the Psychedelic Access and Research European Alliance – PAREA was born. We bring together 15 members\, including EU patient advocacy groups in the field of mental health\, neurology and chronic pain\, scientific associations – neuropsychopharmacologists and cancer societies\, psychedelic foundations\, as well as industry partners. \nWe will be launching this partnership on 23rd June\, 2pm – 4pm CEST. See agenda below: \nPAREA agenda URL:https://www.braincouncil.eu/event/37643/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20220604T090000 DTEND;TZID=UTC:20220604T120000 DTSTAMP:20260414T220038 CREATED:20220328T133047Z LAST-MODIFIED:20220425T104134Z UID:35190-1654333200-1654344000@www.braincouncil.eu SUMMARY:European Brain Research Area (EBRA) at the 8th European Psychiatric Association (EPA) Forum DESCRIPTION:EBC\, as project coordinators\, will present the European Brain Research Area (EBRA) project at the upcoming 8th European Psychiatric Association (EPA) Forum (taking place at the upcoming European Congress on Psychiatry 2022)\, centred around “Mental Health Care and Research in Europe: From Bench to Bedside and Back”. The Forum will take place on Saturday\, 4 June 2022\, 9:00-12:00 CEST at the congress venue in Budapest\, Hungary. The project will be presented by EBC Executive Director\, Frédéric Destrebecq. \nThe EPA Forum traditionally precedes the official opening of the annual European Congress on Psychiatry and aims to bring together EPA members and Congress delegates with European organisations\, stakeholders and policy makers in the field of mental health and mental health care to present and discuss matters of European importance. This year’s programme will focus on the role of research and evidence-based policies to improve mental health care in the EU. In this regard\, the EBRA project achievements\, namely the recently released landscape analysis on brain research (mapping report) and upcoming Shared European Brain Research Agenda (SEBRA) will be presented. URL:https://www.braincouncil.eu/event/ebra-at-the-8th-epa-forum/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220604 DTEND;VALUE=DATE:20220608 DTSTAMP:20260414T220038 CREATED:20220429T121209Z LAST-MODIFIED:20220429T121428Z UID:36146-1654300800-1654646399@www.braincouncil.eu SUMMARY:Autism Care Pathway in Europe | European Congress of Psychiatry DESCRIPTION:The 30th European Congress of Psychiatry\, organised by the largest association of psychiatrists in Europe\, will take place virtually on 4-7 June 2022. \nEBC looks forward to presenting the case study on autism spectrum disorder (ASD) as part of the Value of Treatment (VOT) project: \nBackground: Autism is a lifelong complex neurodevelopmental condition that affects brain development and behaviour with significant consequences for everyday life.  Despite its personal\, familial\, and societal impact\, Europe-wide harmonised guidelines are still lacking for early detection\, diagnosis\, and intervention\, leading to an overall unsatisfactory autistic person and carer journey. ​  \nMethods:  The care pathway for autistic children and adolescents was analysed in Italy\, Spain and the United Kingdom (UK) from the perspective of carers\, the autistic community\, and professionals in order to identify major barriers (treatment gaps) preventing carers from receiving information\, support\, and timely screening/diagnosis and intervention. ​  \nResults: Across all three countries\, analysis of the current care pathway showed: long waits from the time carers raised their first concerns about a child’s development and/or behaviour until screening and confirmed diagnosis; delayed or no access to intervention once a diagnosis was confirmed; limited information about autism and how to access early detection services; and deficient support for families throughout the journey. ​  \nConclusions: These findings call for policy harmonisation in Europe to shorten long wait times for diagnosis and intervention and therefore\, improve autistic people and their families’ journey experience and quality of life.  URL:https://www.braincouncil.eu/event/autism-care-pathway-in-europe-european-congress-of-psychiatry/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220604 DTEND;VALUE=DATE:20220608 DTSTAMP:20260414T220038 CREATED:20220425T101931Z LAST-MODIFIED:20220429T121423Z UID:36029-1654300800-1654646399@www.braincouncil.eu SUMMARY:Value of Treatment Symposium on Mental Health | 30th European Congress of Psychiatry DESCRIPTION:Recent studies underscore the severity of the mental health challenges children and adolescents face that can lead to high disability. There are numerous unmet needs along the care pathways\, although effective early detection and interventions exist. Navigating the mental health services system is often complex for families\, due to fragmented or disrupted services. \nThe Value of Treatment for Brain Disorders (VOT) is a health economics and outcomes research project coordinated by the European Brain Council. The second round (VOT2) on new therapeutic areas (anorexia nervosa\, autism spectrum disorder and major depressive disorder) was launched in 2019. This semester will be an important milestone in terms of case study results dissemination. The study looked at early intervention and explored the benefits of improved detection\, continuity of care and treatment\, and collaborative care patterns (also addressing mental health problems with comorbid medical conditions) on outcomes to patients and costs. Case studies which combine a care pathway analysis followed by an economic evaluation were conducted with the support of Academic Partners\, applying empirical evidence from different European countries.  \nThe European Brain Council (EBC) and the European Psychiatric Association (EPA) will convene a meeting at the upcoming EPA Congress 2022 to address challenges especially from the health economics perspective. Study results from VOT2 case studies on anorexia nervosa\, autism spectrum disorder and major depressive disorder\, will be showcased. In this symposium\, we report the findings of the groups of the Value of Treatment initiative and contextualise these by highlighting the limitations of existing economic models; the gaps in data availability; current research to address these gaps as well as directions for future research that will improve our ability to make the economic case for investment as well as our understanding of the patient experience and journey.  URL:https://www.braincouncil.eu/event/value-of-treatment-symposium-on-mental-health-30th-european-congress-of-psychiatry/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220604 DTEND;VALUE=DATE:20220608 DTSTAMP:20260414T220038 CREATED:20211115T143529Z LAST-MODIFIED:20220630T104116Z UID:32485-1654300800-1654646399@www.braincouncil.eu SUMMARY:30th European Congress of Psychiatry DESCRIPTION:  \nThe 30th European Congress of Psychiatry\, organised by the largest association of psychiatrists in Europe\, took place virtually on 4-7 June 2022. \nLinking Clinical Practice and Research for Better Mental Health Care in Europe. This was the guiding motto for the next edition of the EPA Congress. \nAn opportunity to engage with state-of-the-art clinical tools\, to expand the frontiers of research\, explore innovative ideas for mental health care and prevention with a community of global professionals and stakeholders in the field of psychiatry and mental health care. \nEBC was delighted to present: \n\nEuropean Brain Research Area (EBRA) at the 8th EPA Forum\nValue of Treatment (VOT) Symposium on Mental Health\nAutism Care Pathway in Europe\n\nFind more information about the EPA Congress here! URL:https://www.braincouncil.eu/event/30th-european-congress-of-psychiatry/ LOCATION:Budapest\, Hungary END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20220512T140000 DTEND;TZID=UTC:20220512T163000 DTSTAMP:20260414T220038 CREATED:20220427T134537Z LAST-MODIFIED:20220427T134537Z UID:36086-1652364000-1652373000@www.braincouncil.eu SUMMARY:Patient involvement in Brain Health: Safeguarding the future of Brain Health for patients DESCRIPTION:In recent months\, discussions on brain health have much focused on how to bring brain research and brain health on the European agenda. Patient organisations have also been very active in bringing their views to the discussion. However\, we increasingly find that in relation to research in brain health and innovation\, patient involvement has not been not optimally represented and relatively little impact on patient care and diagnosis can be seen. \nThe patient community needs precision medicine\, in prevention and diagnosis\, of brain diseases. Neuroscience\, neurology and psychiatry must more closely align and transform their framework as the field of oncology has done. \nThree leading European patient organizations in the field\, Alzheimer Europe\, the European Federation of Neurological Alliances (EFNA) and GAMIAN-Europe\, have come together to organise a meeting that will underline to the brain health community why engaging patients in the discussion on brain health is crucial. \nThe meeting will present a call for action in anticipation of a possible brain health summit and – later – a brain health partnership. We will emphasise the importance of engaging the patient community in the discussions on brain health\, with the overall goal of bringing people from the entire community together\, outlining what our organisations hope to achieve\, and most of all raising awareness of this important matter. \nIn order to safeguard the future of brain health it is: \n\n\n\n\n\n\n\n\n\n\nEssential to systematically align all agendas in order to work towards agreed upon commitments to the brain health agenda. \nImperative that all stakeholders ensure that the priorities\, needs and expertise of all those living with Brain Health disorders are considered and included. \nImportant to make sure research is intrinsically connected to reality \n\n\n\n\n\n\n\n\n\nRegister here URL:https://www.braincouncil.eu/event/patient-involvement-in-brain-health-safeguarding-the-future-of-brain-health-for-patients/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20220510T100000 DTEND;TZID=UTC:20220510T160000 DTSTAMP:20260414T220038 CREATED:20220502T080912Z LAST-MODIFIED:20220502T080912Z UID:36219-1652176800-1652198400@www.braincouncil.eu SUMMARY:8th Academy of National Brain Councils DESCRIPTION:The 8th Academy of National Brain Councils will be held on 10th May 2022 in Brussels\, Belgium\, hosted at the Representation of the Free State of Bavaria to the European Union. \nThis year’s Academy will host the launch of the German Brain Plan\, led by the German Brain Council\, including a presentation on how the plan was formed and plans for its implementation. Furthermore\, updates and sharing of good practices in developing National Brain Plans will be presented by the Norwegian\, German\, Belgian\, Dutch and Polish Brain Councils. \nThe meeting will take place from 10:00-16:00\, including both closed and public programmes\, also including presentations on the future plans of the European Commission for brain disorders: the EU “HealthierTogether”Initiative and the presentation of EBC’s Strategy and National Brain Plans to decision-makers. \nFor more information\, please contact events@braincouncil.eu  URL:https://www.braincouncil.eu/event/8th-academy-of-national-brain-councils/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220504 DTEND;VALUE=DATE:20220507 DTSTAMP:20260414T220038 CREATED:20211116T142438Z LAST-MODIFIED:20211116T142608Z UID:32611-1651622400-1651881599@www.braincouncil.eu SUMMARY:8th Annual European Stroke Organisation Conference DESCRIPTION:  \nThe 8th European Stroke Organisation Conference (ESOC 2022) will take place 4-6 May 2022 in Lyon\, France as a hybrid event. \nESOC is Europe’s leading forum\, and indeed a leading forum worldwide\, for advances in research and clinical care of patients with cerebrovascular diseases. ESOC 2022 will live up to its expectation\, and present to you a packed\, high quality scientific programme including  major clinical trials\, state-of-the-art seminars\, educational workshops\, scientific communications of the latest research\, and debates about current controversies. \nThe European Stroke Organisation’s mission is to reduce the burden of Stroke and to erase existing inequalities in stroke care in Europe. We firmly believe that together – through science\, education and research\, as well as networking and harmonizing how stroke is treated – this aim can be reached. \nESO acts as the Voice of Stroke in Europe and combines 43 organisations as well as over 2\,000 individual members. Over 5\,000 participants attend our conference and benefit from first-hand information about the latest breaking news and the newest ESO guidelines. ESOC also presents the perfect stepping-stone for young (and established) career professionals. \nVisit the conference website for more information! URL:https://www.braincouncil.eu/event/8th-annual-european-stroke-organisation-conference/ LOCATION:Lyon\, France END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20220501T102000 DTEND;TZID=UTC:20220501T104000 DTSTAMP:20260414T220038 CREATED:20220330T114515Z LAST-MODIFIED:20220330T114515Z UID:35253-1651400400-1651401600@www.braincouncil.eu SUMMARY:Value of Treatment (VOT) case study on phenylketonuria (PKU) | EPNS Congress 2022 DESCRIPTION:  \nThe Value of Treatment for Brain Disorders (VOT) is a health economics and outcomes research project coordinated by the European Brain Council (EBC). According to the World Health Organization\, disorders of the brain affect up to one in three people worldwide.  \nA second round (VOT2) on new therapeutic areas was launched in 2019\, focusing on The Value of Early Diagnosis and Coordinated Care for Rare Diseases (Ataxia\, Dystonia and Phenylketonuria); and The Value of Early Intervention and Continuity of Care for Mental Disorders (Anorexia Nervosa\, Autism Spectrum Disorder and Major Depressive Disorder). \nProf. Anita MacDonald will present a case study on phenylketonuria (PKU) at the 14th European Paediatric Neurology Society Congress in Glasgow\, on 1 May (10:20 – 10:40). URL:https://www.braincouncil.eu/event/value-of-treatment-vot-case-study-on-phenylketonuria-pku-epns-congress-2022/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20220430T102000 DTEND;TZID=UTC:20220430T104000 DTSTAMP:20260414T220038 CREATED:20220330T113927Z LAST-MODIFIED:20220330T113943Z UID:35246-1651314000-1651315200@www.braincouncil.eu SUMMARY:Value of Treatment (VOT) case study on ataxia | EPNS Congress 2022 DESCRIPTION:  \nThe Value of Treatment for Brain Disorders (VOT) is a health economics and outcomes research project coordinated by the European Brain Council (EBC). According to the World Health Organization\, disorders of the brain affect up to one in three people worldwide.  \nA second round (VOT2) on new therapeutic areas was launched in 2019\, focusing on The Value of Early Diagnosis and Coordinated Care for Rare Diseases (Ataxia\, Dystonia and Phenylketonuria); and The Value of Early Intervention and Continuity of Care for Mental Disorders (Anorexia Nervosa\, Autism Spectrum Disorder and Major Depressive Disorder). \nProf. Paola Giunti will present a case study on ataxia at the 14th European Paediatric Neurology Society Congress in Glasgow\, on 30 April (10:20 – 10:40). URL:https://www.braincouncil.eu/event/value-of-treatment-vot-case-study-on-ataxia-epns-congress-2022/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20220429T140500 DTEND;TZID=UTC:20220429T155000 DTSTAMP:20260414T220038 CREATED:20220114T110915Z LAST-MODIFIED:20220330T115028Z UID:33648-1651241100-1651247400@www.braincouncil.eu SUMMARY:Promoting Child Neurology in Europe | EPNS Congress 2022 DESCRIPTION:  \nOn 29 April 2022\, Joke Jaarsma\, Treasurer of the European Brain Council\, will hold a presentation on “Promoting child neurology in Europe” in the context of the 14th Congress of the European Paediatric Neurology Society (EPNS) in Glasgow. \nThe EPNS Congress provides an opportunity to learn about the latest developments in the rapidly evolving field of child neurology\, including basic science\, diagnostic methods\, and novel treatments. You can network with colleagues and industry partners all focused on delivering the best possible care for children with neurological disorders. \nFor more information\, please visit: https://epns-congress.com/ URL:https://www.braincouncil.eu/event/how-ebc-can-promote-child-neurology-in-europe/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220429 DTEND;VALUE=DATE:20220501 DTSTAMP:20260414T220038 CREATED:20220317T092031Z LAST-MODIFIED:20220427T123503Z UID:34862-1651190400-1651363199@www.braincouncil.eu SUMMARY:EMSP Annual Conference 2022: ‘’A Holistic Approach for Personalised MS Care’’ DESCRIPTION:The EMSP Annual Conference 2022 will take place on 29-30 April 2022 in hybrid format\, virtually and in person in Madrid\, Spain. \nThe theme of this year’s conference is ”A Holistic Approach for Personalised MS Care”. The personalised care model seeks to deliver whole-population approaches to support people of all ages and their carers to manage their physical and mental health and well-being\, build community resilience\, and make informed decisions and choices when their health changes. \nBy bringing the MS societies\, the patient communities\, healthcare professionals\, researchers\, and policy decision makers together on a European level\, the conference will aim at improving the understanding of the latest development in the field of personalised healthcare for people with MS\, sharing knowledge and expertise\, identifying good practices across Europe and cross-sectors. \nThe programme is built around 3 pillars: \n\nEmpowering people affected by MS to make informed choices by learning about latest research developments and the latest digital support tools\nSocial inclusion\, the Impact of the social environment and participation in society on physical and mental health\nBuilding community resilience\n\nEBC is delighted to be invited as a contributor this year\, with EBC Executive Director\, Frédéric Destrebecq\, to take part in the session “MS in Europe: the value of integrated and personalized health and social care approaches” on the 29th of April\, from 12:00 to 12:30. \nGet your free virtual ticket here! URL:https://www.braincouncil.eu/event/emsp-annual-conference-2022-a-holistic-approach-for-personalised-ms-care/ LOCATION:Madrid END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220428 DTEND;VALUE=DATE:20220503 DTSTAMP:20260414T220038 CREATED:20200605T134018Z LAST-MODIFIED:20220330T114835Z UID:21910-1651104000-1651535999@www.braincouncil.eu SUMMARY:14th European Paediatric Neurology Society Congress DESCRIPTION:The 14th European Paediatric Neurology Society Congress\, to be held under the overarching theme “Precision in Child Neurology” from 28 April – 2 May 2022 in Glasgow (UK) and virtually\, provides an opportunity to learn about the latest developments in the rapidly evolving field of child neurology including basic science\, diagnostic methods and novel treatments. The congress theme explores how networks\, systems and technology can help deliver precision care and better outcomes. \nYou will have the chance to learn about the EBC activities and projects in a virtual booth. In addition\, EBC is pleased to hold several sessions at the congress: \n\nPromoting Child Neurology in Europe: 29 April 2022\, 14:05 – 15:50\nValue of Treatment (VOT) case study on ataxia: 30 April\, 10:20 – 10:40\nValue of Treatment (VOT) case study on phenylketonuria (PKU): 1 May 2022\, 10:20 – 10:40\n\nRegister now for the 14th European Paediatric Neurology Society Congress! \nFor privacy reasons YouTube needs your permission to be loaded. For more details\, please see our Privacy Policy.I Accept URL:https://www.braincouncil.eu/event/14th-european-paediatric-neurology-society-congress/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20220311T100000 DTEND;TZID=UTC:20220311T163000 DTSTAMP:20260414T220038 CREATED:20220128T101043Z LAST-MODIFIED:20220128T101043Z UID:33863-1646992800-1647016200@www.braincouncil.eu SUMMARY:Shining a Spotlight on Life After Stroke DESCRIPTION:Welcome to the European Life After Stroke Series 2022: Shining a Spotlight on Life After Stroke\nWe look forward to you joining us for a day of building education and awareness around topics that impact the stroke community.\nPlenary 1\, 10.00 – 11.30 CET: Be inspired and share control: the added value of self-management support \nThis webinar will share new ways of thinking about and building the evidence base on self-management. Drawing on examples from research and clinical practice\, the session will inspire and challenge delegates to consider the potential of self-management support to deliver outcomes that matter most to stroke survivors. It will include suggestions for expanding the evidence base and accelerating the route to impact to enable more people post stroke feel supported\, engaged and confident to self-manage.\nPlenary 2\, 15.00 – 16.30 CET: Communication in everyday life \nCommunication is the cement that makes partnerships successful on personal\, professional\, societal\, and political levels. Clearly communicating thoughts\, ideas and expectations is a challenge in the lives of stroke survivors. Stroke survivors will share their experiences as they relate to communication dilemmas and successes. We will show that even without aphasia\, communication failures are common and can result in confusion and distress. This session will address ways to overcome communication barriers.\n\nTo view our full event programme including presentations and speakers\, please click here.\nRegistration for this event is free of charge.\nIf you have any questions about this event\, please get in touch with us at ELASF@mci-group.com.\nRegistration here. URL:https://www.braincouncil.eu/event/shining-a-spotlight-on-life-after-stroke/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/Paris:20220127T083000 DTEND;TZID=Europe/Paris:20220127T140000 DTSTAMP:20260414T220038 CREATED:20211215T130501Z LAST-MODIFIED:20211215T130501Z UID:33224-1643272200-1643292000@www.braincouncil.eu SUMMARY:PFUE Brain Health DESCRIPTION: URL:https://www.braincouncil.eu/event/pfue-brain-health/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/Paris:20211210T120000 DTEND;TZID=Europe/Paris:20211210T124500 DTSTAMP:20260414T220038 CREATED:20211118T120853Z LAST-MODIFIED:20220322T080225Z UID:32651-1639137600-1639140300@www.braincouncil.eu SUMMARY:The European Brain Research area: Building a Brain Health Partnership DESCRIPTION:The European Brain Research Area project — EBRA — was created as a catalysing initiative for brain research stakeholders (researchers\, clinicians\, patients\, governments\, funders and public institutions) to streamline and better co-ordinate brain research across Europe while fostering global initiatives. The Consortium consists of the EBC membership\, the Network of European funding for Neuroscience research (NEURON)\, Joint Programme – Neurodegenerative Disease Research (JPND) and the Human Brain Project (HBP). During the last 3 years\, the EBRA partners worked to facilitate efficient collaboration\, communication and operational synergies\, including transparent procedures and setting up of governance mechanisms; foster alignment and better co-ordination of research strategies across European and global brain initiatives; facilitate the emergence of research projects in specific areas in active clusters\, and provide them with support for effective collaboration; and increase the visibility of the brain research portfolio as a whole and promote the uptake of EBRA results to key stakeholders. \nDuring this webinar\, we will focus on the importance of such coordination and collaboration in the brain space highlighting the Shared European Brain Research Agenda (SEBRA). In addition\, 2 EBRA clusters\, the  Predictive Models Systems (PREMOS) cluster and the European Cluster for Imaging Biomarkers (ECIB)\, will be showcased as examples of how coordination and collaboration can increase the impact of their community. They will shortly share the objectives and activities with the audience. These talks will be followed by a panel discussion with all the speakers on collaboration and coordination in brain research. FENS president\, Prof Jean-Antoine Girault\, will moderate the discussion. \nRegister here \nFENS Friday webinar – December 10th – mini programme \n  \n12:00:                                The importance of coordination and collaboration in brain research: The European Brain Council and the European Brain Research Area \nM. Di Luca \nTwo examples of coordination and collaboration in brain research: \n  \n12:10:                                Introduction to the Predictive Models Systems (PREMOS) cluster \nS. Holter-Koech \n12:20:                                Introduction to the European Cluster for Imaging Biomarkers (ECIB) \nThilo Van Eimeren \n12:30:                                Panel discussion on collaboration and coordination in brain research \nModerator: FENS representative: Jean-Antoine Girault\, FENS President. \n  \n12:45:                                    END URL:https://www.braincouncil.eu/event/the-importance-of-coordination-and-collaboration-in-brain-research/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/Paris:20211130T143000 DTEND;TZID=Europe/Paris:20211130T160000 DTSTAMP:20260414T220038 CREATED:20211025T081341Z LAST-MODIFIED:20211123T092727Z UID:32002-1638282600-1638288000@www.braincouncil.eu SUMMARY:Best practices for patient safety: An EU-wide view on the use of medicines off-label DESCRIPTION:Save the date: 30 November (14:30 – 16:00 CET)\nREGISTER HERE\nIn 2016\, the Declaration for Good Off-Label Use Practice was launched\, supported by a coalition of European organisations dedicated to ensuring that high standards of patient care are upheld and that progress in medical research and innovation is achieved. The GOLUP Declaration recommends that off-label use of medicinal products should only occur if certain criteria\, drawn together by independent experts\, are met. \nNow it becomes necessary also to take action at national level. On the one hand to actively involve national organisations and stakeholders working at local level\, allowing for a wider dissemination of the declaration. On the other hand\, to allow an exchange of ideas and experience among local actors\, to understand which paths to take in individual member states and to allow a continuous exchange of ideas and information. \nThis event follows the workshop on Patient safety and informed consent: The importance of good off-label use practices held on 17 June 2021. The purpose of this new digital event is to bring together patients\, clinicians and policy makers to ensure greater awareness of the use of medicines off-label through the exchange of ideas and best practices from different European countries. \nREGISTER HERE\n  \n  URL:https://www.braincouncil.eu/event/best-practices-for-patient-safety-an-eu-wide-view-on-the-use-of-medicines-off-label/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20211012T150000 DTEND;TZID=UTC:20211012T173000 DTSTAMP:20260414T220038 CREATED:20210920T094611Z LAST-MODIFIED:20210920T095157Z UID:31395-1634050800-1634059800@www.braincouncil.eu SUMMARY:International Brain Initiative: Shaping the future of globally coordinated neuroscience DESCRIPTION:The European Parliament Panel for the Future of Science and Technology (STOA) will hold a workshop with the International Brain Initiative on Shaping the future of globally coordinated neuroscience\, to take place virtually on 12 October at 15:00-17:30 CET. \nUnderstanding the human brain is one of the most significant challenges of our time. Despite considerable research\, neuroscientist still lack an integrative\, comprehensive understanding of the human brain. Neuroscience initiatives\, such as those funded by the EU and other countries\, are undertaking large-scale efforts to tackle this moonshot challenge. \nThe International Brain Initiative (IBI) has been established to coordinate efforts across existing and emerging national and regional brain initiatives. In this STOA workshop\, IBI representatives will describe the approach to shaping the future of international neuroscience collaborations through efforts in neuroethics\, data policy\, and the dissemination of scientific resources. The initiatives involved in the IBI aim to provide a robust forum for global information sharing and resources for collaborations. The event will be introduced with a talk by the 2014 Nobel Prize in Physiology or Medicine\, Professor Edvard MOSER and moderated by EBC President\, Prof. Monica Di Luca. \nThis STOA workshop will be livestreamed as part of the programme of the European Brain Summit\, which takes place on the afternoon of Day 1 of the Brain Innovation Days. \nFull programme details available here URL:https://www.braincouncil.eu/event/international-brain-initiative-shaping-the-future-of-globally-coordinated-neuroscience/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/Paris:20211012T133000 DTEND;TZID=Europe/Paris:20211012T180000 DTSTAMP:20260414T220038 CREATED:20210729T112345Z LAST-MODIFIED:20210923T131106Z UID:30367-1634045400-1634061600@www.braincouncil.eu SUMMARY:European Brain Summit DESCRIPTION:The European Brain Council and the EBRAINS Research Infrastructure are pleased to invite you to the first European Brain Summit\, a joint event that will take place on 12th October 2021 in Brussels from 13:30 to 18:00\, in conjunction with the Brain Innovation Days and Human Brain Project Summit. \nThis will be a unique opportunity to explore the challenge of understanding the brain and the role that Europe should continue to play in this endeavour. High-level speakers and experts will present their vision of the future of European brain health research in the context of the European Health Union. New innovative solutions and technological advancements will be highlighted. \nOur objective is to create a genuine momentum for scientific breakthroughs and policy advancement to the benefit of European citizens. \nMark your agenda now for this unique meeting to discuss ways of advancing brain research through scientific collaborations\, digital innovation\, data management and patient centricity. Registration will open soon. \nDISCOVER MORE URL:https://www.braincouncil.eu/event/european-brain-summit/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20211012 DTEND;VALUE=DATE:20211014 DTSTAMP:20260414T220038 CREATED:20210621T132558Z LAST-MODIFIED:20210928T130816Z UID:29713-1633996800-1634169599@www.braincouncil.eu SUMMARY:Brain Innovation Days: United for Brain Innovation DESCRIPTION:  \nWe are excited to announce that after one year of digital sessions\, the Brain Innovation Days will take place in person on 12-13 October 2021 in Brussels\, Belgium! \nUnder the overarching theme\, United for Brain Innovation\, the Brain Innovation Days will bring together key opinion leaders and stakeholders from the ever-growing brain innovation ecosystem to create synergies and showcase the importance of brain innovation. \nThis will take place over two days filled with policy-driven sessions\, application-led breakout sessions and Agoras\, an exhibition and showcase space\, matchmaking/networking activities and inspiring Brain Talks. \nFor more info and registration\, please visit braininnovationdays.eu URL:https://www.braincouncil.eu/event/brain-innovation-days-united-for-brain-innovation/ LOCATION:Brussels\, Belgium END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20211006T143000 DTEND;TZID=UTC:20211006T170000 DTSTAMP:20260414T220038 CREATED:20210920T085715Z LAST-MODIFIED:20210920T085815Z UID:31392-1633530600-1633539600@www.braincouncil.eu SUMMARY:Third European Patient Advocacy Summit – Inclusion of the Patient Voice in HTA DESCRIPTION:EBC will be present at the upcoming third European Patient Advocacy Summit\, organised by Pfizer. The 2021 capability strengthening programme will focus on patient participation in Health Technology Assessment (HTA)\, with an emphasis on involvement in early stages of the process and the future impact of an EU-wide HTA. The summit will be organised in three sessions via Webex\, to be held on October 6\, 13 and 20 from 2.30pm to 5.00pm C.E.T. \nHTAs assess whether a new pharmaceutical innovation works better\, equally well\, or worse than existing alternatives\, while also considering its cost implications for the patient and impact on healthcare systems. As patients know what it is like to live with a disease and have the needed experiential knowledge on existing treatments and the desirability of innovations\, patient involvement is crucial at an early stage to ensure the full integration of patient perspective into HTA outcomes. This includes involvement in early dialogues\, working to identify technologies\, up to the development of the assessment by helping to set the scope and formulate research questions. However\, the type and level of patient involvement in early dialogue and assessments is varied across Europe\, reflecting the different rationale\, motivation and approach applied in each country. \nSuch differences aim to be tackled within the soon-to be adopted regulation for an EU-wide HTA\, as Member States will be called out to better cooperate\, work towards joint clinical assessments and identify emerging health technologies together. It’s important that patient organisations understand the implications of this new legislative framework on their engagement activities\, to best approach and integrate themselves within this complex\, yet vital HTA process. \nWith this in mind\, this Summit aims to empower your voice as a patient organisation in your national and pan-EU HTA processes\, by helping you to strengthen the advocacy skills needed to participate. Practical workshop sessions will recap the importance of patient participation\, provide an overview of the significance of the upcoming EU-wide HTA legislation\, explain where early dialogues and assessments fit into the overall HTA process and approaches to achieving effective patient input and practical examples of best practice. \nEBC will be represented by its Executive Director\, Frédéric Destrebecq\, presenting “The patient voice is at the core of Europe’s rapidly evolving health policy landscape”. URL:https://www.braincouncil.eu/event/third-european-patient-advocacy-summit-inclusion-of-the-patient-voice-in-hta/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20211003 DTEND;VALUE=DATE:20211008 DTSTAMP:20260414T220038 CREATED:20201209T093048Z LAST-MODIFIED:20201209T093048Z UID:26465-1633219200-1633651199@www.braincouncil.eu SUMMARY:21st European Congress of Neurosurgery DESCRIPTION:The European Association of Neurosurgical Societies (EANS) is both an independent federation of European national neurosurgical societies and a fast-developing association of individual neurosurgeons from around the world. \nWe are a professional community whose aim is to enhance the quality of neurosurgical patient care through training\, education and research. A key way in which we fulfil this objective is by facilitating the exchange of scientific information at the highest level through the organisation of meetings\, symposia and educational courses – with the annual Congress as our flagship event.\n\n\n\nWebsite: http://www.eans.org/events/ URL:https://www.braincouncil.eu/event/21st-european-congress-of-neurosurgery/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20211002 DTEND;VALUE=DATE:20211006 DTSTAMP:20260414T220038 CREATED:20201209T091217Z LAST-MODIFIED:20201209T091217Z UID:26461-1633132800-1633478399@www.braincouncil.eu SUMMARY:34th ECNP Congress DESCRIPTION:The annual ECNP Congress is Europe’s premier scientific meeting for disease-oriented brain research\, annually attracting between 4\,000 and 6\,000 neuroscientists\, psychiatrists and neurologists from around the world. \nECNP is an independent scientific association dedicated to the science and treatment of disorders of the brain. It is the largest non-institutional supporter of applied and translational neuroscience research and education in Europe. \nVisit the website. URL:https://www.braincouncil.eu/event/34th-ecnp-congress/ END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210901 DTEND;VALUE=DATE:20210904 DTSTAMP:20260414T220038 CREATED:20210202T110527Z LAST-MODIFIED:20210406T080739Z UID:27659-1630454400-1630713599@www.braincouncil.eu SUMMARY:7th European Stroke Organisation Conference DESCRIPTION:  \nThe 7th European Stroke Conference will take place online\, from 1 – 3 September 2021. Once again we’ll come together to learn about the latest trial results\, new technologies\, hear innovative ideas and begin to understand how our future is being shaped by them. \nMore info here. URL:https://www.braincouncil.eu/event/7th-european-stroke-conference/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/Helsinki:20210827T150000 DTEND;TZID=Europe/Helsinki:20210827T160000 DTSTAMP:20260414T220038 CREATED:20210723T124731Z LAST-MODIFIED:20210723T125648Z UID:30251-1630076400-1630080000@www.braincouncil.eu SUMMARY:EBRA at FENS Regional Meeting DESCRIPTION:This Special Event will introduce you to the Shared Brain Research Agenda (SEBRA)\, which aims to identify research opportunities and research and innovation gaps to be addressed in the field and to provide recommendations on future areas for brain research in Europe. SEBRA is framed within the European Brain Research Area project\, coordinated by the European Brain Council. \nThe FRM 2021 is organized jointly by the Polish Neuroscience Society (PNS) and the Lithuanian Neuroscience Association (LNA) under the auspices and with support from the Federation of the European Neuroscience Societies (FENS)\, and also with support from the International Brain Research Organization Pan-Europe Regional Committee (IBRO PERC). The FRM 2021 original city venue was Krakow\, however\, due to the COVID-19 pandemic\, the Organizing Committee decided to hold the event on-line to ensure all attendees may meet safely. \nThe conference will present the latest developments in neuroscience research and host panel discussions on topics ranging from directions for future development to diversity issues in the academia. Traditionally\, the Regional Meetings foster interactions among the researchers in the region. This year\, we want to take the on-line format as an opportunity\, and showcase neuroscience research in our region to the global community \nFor more info\, please visit fensfrm2021.pl URL:https://www.braincouncil.eu/event/ebra-at-fens-regional-meeting/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20210825T080000 DTEND;TZID=UTC:20210827T170000 DTSTAMP:20260414T220038 CREATED:20201209T084115Z LAST-MODIFIED:20201209T084115Z UID:26459-1629878400-1630083600@www.braincouncil.eu SUMMARY:FENS Regional Meeting DESCRIPTION:The FENS Regional Meeting (FRM) set to take place on 25-27 August 2021\, and jointly organised by the Polish Neuroscience Society and the Lithuanian Neuroscience Association\, will take place as an online meeting. \nIn light of the challenges presented by the pandemic across Europe and the continuing uncertainty of the global health situation\, the Organising Committee has decided to hold the FRM as a virtual conference. Read the announcement on the FRM website. \nFENS supports this decision which will allow the Organising Committee to design an event that will offer attendees an enhanced online experience. The virtual FRM will be an excellent platform for strengthening neuroscience regionally in all European countries\, promoting scientific exchange within and across European regions\, and securing representation and access to the FRM programme for all scientists. As such\, it also reflects FENS’ and its member societies’ active commitment towards the values of inclusiveness\, diversity and equality in neuroscience. \nFENS is looking forward to supporting the Polish Neuroscience Society and the Lithuanian Neuroscience Association in the organisation of the FRM. URL:https://www.braincouncil.eu/event/fens-regional-meeting/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20210629T083000 DTEND;TZID=UTC:20210629T110000 DTSTAMP:20260414T220038 CREATED:20210526T113226Z LAST-MODIFIED:20210526T113303Z UID:29343-1624955400-1624964400@www.braincouncil.eu SUMMARY:OneNeurology Global Advocacy Workshop DESCRIPTION:EBC recently joined the OneNeurology Partnership. The focus of this Partnership in 2021 will be in influencing the development of the World Health Organisation’s new Global Action Plan on epilepsy and other neurological disorders [GAP]. \nThe GAP represents a unique opportunity to build an integrated response to neurology across the life course and within healthcare systems – to improve lives of people living with neurological disorders worldwide. However\, to be successful\, we need to mobilise the community to ensure that the plan serves the needs of all those living with neurological disorders across the globe. \nWe are now searching for effective advocates at national and regional levels to get involved\, in working with us to develop our response to the first draft of the GAP\, and to advocate at all levels for a plan that addresses the real burden of neurological disorders. \nIf you are interested in learning more and getting actively involved\, the OneNeurology Partnership will host\, on June 29th 2021\, a virtual Global Advocacy Workshop where we will: \n\nPresent the first draft of the GAP to advocates worldwide\nPresent the views of the OneNeurology Partnership on the first draft of the GAP\nBring together neurology advocates from across the world (regional and national)\, to gather their perspectives on the GAP – based on their region/disease area/stakeholder group.\nEmpower global advocates with the information\, tools and resources needed to ensure a coordinated response to the GAP consultation via submissions\, regional hearings and outreach to national policy makers.\n\nThe event is open to individual health care professionals\, researchers\, people living with neurological disorders\, their carers or anyone else who is interested in engaging in neurology advocacy. Advocates may also come from the organisations who represent these various stakeholder groups. \nTo cater for all timezones\, there will be two sessions during the day. \nSession 1: 8.30-11am CET or Session 2: 4.30-7pm CET \nSign up before June 20th at this link: https://forms.gle/TReR19f1oCtznGVK9 \nOr find out more at: www.oneneurology.net \n  URL:https://www.braincouncil.eu/event/oneneurology-global-advocacy-workshop/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20210622T130000 DTEND;TZID=UTC:20210622T143000 DTSTAMP:20260414T220038 CREATED:20210406T064730Z LAST-MODIFIED:20210601T135909Z UID:28570-1624366800-1624372200@www.braincouncil.eu SUMMARY:EBRA at EAN: Special Session 14: The European Brain Research Area DESCRIPTION:During the 7th EAN Congress in June 2021\, EBRA will hold a roundtable in Room Seville addressing the importance of cooperation and collaboration in the European brain space and presenting more about the project. \nEBRA clusters\, partners\, policymakers\, clinicians and patient representatives will participate discussing among other topics:\n\nThe priorities\, gaps and enabling actions in brain research in Europe\nHow to promote European brain research in the world?\nUnderstanding the importance of operational coordination of brain research in Europe\nUnderstanding the value of coordination in brain research communities\nActivities to enhance coordination in brain research\n\nTo have more information on the Congress and register for the event\, please visit the official website. URL:https://www.braincouncil.eu/event/ebra-at-ean-special-session-14-the-european-brain-research-area/ END:VEVENT END:VCALENDAR