Open co-design workshop on next generation tools to manage Amyotrophic Lateral Sclerosis and Multiple Sclerosis
Started on January 2021, the 4 years Horizon 2020 BRAINTEASER project seeks to exploit the value of artificial intelligence, big data—including those related to health, lifestyle habits and environment—, low-cost sensors and smart apps to support patients living with amyotrophic lateral sclerosis (ALS) and multiple sclerosis (MS) and their caregivers. Its goal is to develop [...]
Value of Treatment 2 Synthesis Meeting
The European Brain Council (EBC) is pleased to invite you for the Value of Treatment 2 (VOT 2) Synthesis Meeting, to be held virtually on 8 June 2021 (13:00-17:00 CET). Experts participating in the research will present a synthesis of the results so far and examine the most critical issues in brain diseases in Europe from different perspectives including policymakers, innovators, academia [...]
EMSP 2021 Virtual Conference
The EMSP 2021 Annual Conference will be held virtually and will be taking place online on the 9th, 10th and 11th June. The theme of this year’s conference is “MS Care in a Changing World”, with special focus on the healthcare professionals and non-professional caregivers for MS patients, and how everyone has had to adapt [...]
Myalgic Encephalomyelitis in Europe: Roundtable of European Stakeholders and Policymakers
Following joint planning sessions, EMEA and EFNA (European Federation of Neurological Associations) are arranging a multi-stakeholder, roundtable meeting on Myalgic Encephalomyelitis (ME/CFS) in Europe. The meeting will bring together a variety of initial stakeholders in Europe, including clinicians, researchers, policymakers, industry and patient representatives from EMEA's members, in order to create a better understanding of [...]
EBC at the Africa – Europe Science and Innovation Platform
AERAP is a response to the call of the European Parliament, through the adoption of its Written Declaration 45 “on Science Capacity Building in Africa: promoting European-African radio astronomy partnerships”. This call was repeated by the Heads of State of the African Union, through their decision “Assembly/AU/Dec.407 CXVIII”, for radio astronomy to be a priority [...]
Patient safety and informed consent: The importance of good off-label use practices
In 2016, the Declaration for Good Off-Label Use Practice was launched, supported by a coalition of European organisations dedicated to ensuring that high standards of patient care are upheld and that progress in medical research and innovation is achieved. The GOLUP Declaration recommends that off-label use of medicinal products should only occur if certain criteria, drawn together [...]
7th Congress of the European Academy of Neurology – Virtual 2021
The European Academy of Neurology has decided to go virtual again for the 7th EAN Congress on June 19-22, 2021, originally to be held in Vienna. Once again, we look forward to offering you the opportunity to learn from experts in your field, grow your professional network, and discover the latest best practices in neurology, all in the comfort of your [...]
EAN2021 Scientific Theatre – The Value of Treatment Project: The Value of Early Coordinated Care for Patients Affected by Rare Neurological Diseases
The 2nd round of the EBC Value of Treatment project will be presented at the Scientific Theatre at the upcoming EAN Congress 2021. EBC Vice President, Prof. Wolfgang Oertel, will present The Value of Treatment Project: The Value of Early Coordinated Care for Patients Affected by Rare Neurological Diseases on 21 June 2021, from 11:30 to [...]
EBRA at EAN: Special Session 14: The European Brain Research Area
During the 7th EAN Congress in June 2021, EBRA will hold a roundtable in Room Seville addressing the importance of cooperation and collaboration in the European brain space and presenting more about the project. EBRA clusters, partners, policymakers, clinicians and patient representatives will participate discussing among other topics: The priorities, gaps and enabling actions in [...]
OneNeurology Global Advocacy Workshop
EBC recently joined the OneNeurology Partnership. The focus of this Partnership in 2021 will be in influencing the development of the World Health Organisation’s new Global Action Plan on epilepsy and other neurological disorders [GAP]. The GAP represents a unique opportunity to build an integrated response to neurology across the life course and within healthcare systems [...]