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DTSTART:20190101T000000
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DTSTART;TZID=UTC:20200406T160000
DTEND;TZID=UTC:20200406T170000
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SUMMARY:“Huntington’s disease and the Covid-19 pandemic – a difficult combination” - EHA & ERN-RND webinar
DESCRIPTION:Special webinar organised by the European Huntington’s Disease Association (EHA) and  the European Reference Network for Rare Neurological Diseases (ERN-RND): \nDate: Monday April 6\nTime: 4 pm – 5.30 CET\nTopic:  “Huntington’s disease and the Covid-19 pandemic – a difficult combination”\nJoin the webinar: https://zoom.us/j/284555212 \nThere is no need to sign up in advance to the webinar. \n  \nFurther details: \nThe current situation related to the Covid-19 pandemic causes a lot of strain and isolation on Huntington’s disease (HD) patients and their families.  All the restrictions imply big changes in daily life and the routines are hard to maintain.  We hear that families struggle\, feel scared and isolated. \nIn order to support you in this situation\, EHA and ERN-RND are organizing a webinar  on  Zoom with a panel of multi language HD experts from a variety of European countries well-known in the HD community and active members of the European HD Network (EHDN). \nThe webinar will give you information about the specific risks for HD patients\, update on consequences for the ongoing HD studies and trials\, and some advice on how to cope with this new situation. The experts are there to answer any question you have in your language. \nConfirmed speakers: \n\nAstri Arnesen – European Huntington Association\nProfessor Bernhard Landwehrmeyer (Neurologist) – Germany\nAlzbeta Muehlbaeck (Neuropsychiatrist ) – Germany/Slovakia\nProfessor Anne-Catherine Bahoud Levi (Neurologist) – France\nProfessor Hugh Rickards (Psychiatrist) – UK\nDr Yuri Seliverstov – Russia\nNatalia Grigorova (Psychologist) – Bulgaria\nFilipa Julio (Neuropsychologist) – Portugal\nDr Alzbeta Muehlbaeck (Neuropsychiatrist) – Germany\nProfessor Maria Judit Molnar (Neurogeneticist) – Hungary\nDr Jose Lopez Sendon (Neurologist) – Spain\nDr Lasse Philstrøm (Neurologist) – Norway\nRamona Moldova (Neuropsychologist ) – Romania\nDr Wioletta Krysa (Geneticist ) – Poland\nProfessor Ferdinando Squitieri (Neurologist) – Italy \nThe primary target audience are patients and patients’ family members but clinicians are also very welcome to attend. \nhttp://www.ern-rnd.eu/?p=7032 
URL:https://www.braincouncil.eu/event/huntingtons-disease-and-the-covid-19-pandemic-a-difficult-combination-eha-ern-rnd-webinar/
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